Skip to main content


IMG_2804
Cedwyn's quilt at her memorial celebration this past Saturday, in Portland, OR

Gordon20024 has a cancerous mass on his neck.  It will be removed this Thursday -- so let us keep him in our thoughts.  This is from a comment he made in the Monday Night Cancer Club diary last night:

Thursday will be my day for removal of 'neck mass, limited neck dissection and removal of overlying skin'.

Seven weeks ago I noticed a small lump on the side of my throat about the size of a 00 buckshot pellet or 3/16" diameter. I'm not one to waste a lot of time sitting in an ER but was curious. Was it safe, normal or something to be addressed. The more the ER Dr probed it the more angry it became. Biopsies have tested positive for malignancy.

PET and CT scans have been conducted so the medics should have a good road map to work from.

I really appreciate the outpouring of support and well wishes from the DKos community. I means a lot to have so many wonderful friends from the far reaches of the compass who send healing energies and thoughts.

Bless you all.

Put your good thoughts for him on his quilt!  Just leave a message of love and support in the messages and I will transcribe it in archival ink onto muslin -- and my sister and I will sew it in.

We are short 9 messages and $67 for this quilt.  I will keep these numbers updated.

Continue Reading
Reposted from Onomastic by Onomastic
"The time has come," the Walrus said,
"To talk of many things:
Of shoes--and ships--and sealing-wax--
Of cabbages--and kings--
-Lewis Carrol, The Walrus and The Carpenter
The time has come to talk of Cedwyn. The time has come to celebrate our brilliant Flutterby. She will always rest gently on our hearts.

             photo Cedwyn Celebration of her life pink butterfly on a bleeding heart flower_zps7y5zwi2v.jpg

I didn't think it would be this way. None of us did. How could such a vital force leave us? How could someone who would have painted the moon purple if she could, be gone?

         photo Cedwyn paiting the moon purple_zpsg1pa6rno.jpg

 

                J.R.R. Tolkien
“PIPPIN: I didn't think it would end this way.

GANDALF: End? No, the journey doesn't end here. Death is just another path, one that we all must take. The grey rain-curtain of this world rolls back, and all turns to silver glass, and then you see it.

PIPPIN: What? Gandalf? See what?

GANDALF: White shores, and beyond, a far green country under a swift sunrise.

PIPPIN: Well, that isn't so bad.

GANDALF: No. No, it isn't.”

― J.R.R. Tolkien, The Lord of the Rings

This is not goodby. Love never dies. Cedwyn lives on in all our hearts.
She lives on when we open ourselves to the wonder around us.

          photo Cedwyn bubble in the purple flowers_zpsraxgvfly.jpg

Did you know she loved bubbles? She did, so make some for her. Make a cloud of bubbles for your own heart's joy and memory. People will be making bubbles in her honor at Mt. Tabor Park, in Portland, Oregon this afternoon. Cedwyn would love it.

               photo Cedwyn clour of bubbles_zps3ltkvtty.jpg

Today from Portland, Oregon to Portland, Maine, from Coast to Coast, and country to country, we are gathering to celebrate the gift that was and will always be our own Chaos Fairy, our lover of all things winged, our Cedwyn.

Today, people are wearing her favorite color, purple, and raising their glasses to her laughter and life.

Today, we gather to share tears, comfort, laughter, and magic. Cedwyn would not have wanted it any other way.

So come on in. There are comfortable chairs amidst the flowers that she loved.

                     photo Cedwyn sitting amidst the purple flowers_zps1gneqipu.jpg

             photo Cedwyn Lilacs_zpsuvnz2u0q.jpg

                         photo Cedwyn Chair in the garden_zpswvzq2uto.jpg

Continue Reading

Tue May 19, 2015 at 05:00 PM PDT

Community Quilt for Gordon20024

by Sara R

IMG_2774
CelticLassie's quilt.  Please keep her and her family in your thoughts...

It is a shock when you learn that a friend has cancer.  Gordon20024 recently learned that he does.  He is a person who is always there for others, as many Kossacks in several groups know well.  So now it is time for us to be there for him...  We can do this with a community quilt, full of words of love and support, that he can take with him to treatment or use anytime at home as he heals.

Continue Reading

At NN13, a number of our quilt recipients were kind enough to give video interviews about their community quilts and what they meant to them.  Among them was someone who has become a good friend, peregrine kate. At the time we made her quilt, she was undergoing a rigorous treatment for cancer. Today, she is thankfully NED ("no evidence of disease"), and still facilitating the Monday Night Cancer Club which she founded here on Daily Kos, a group for people who have or have had cancer or are caring for someone who has it.  Given the prevalence of this terrible disease, it is a very important and most helpful group, a wonderful place to get information and advice.  We belong to it because a fair number of community quilts are made for Kossacks who have had cancer, as you can see from the listing of our work, below the orange doodle.

Here she is, peregrine kate, in her own words, as interviewed by linkage (who also filmed, edited and produced the video).

Continue Reading

Fri May 15, 2015 at 10:07 AM PDT

DKos Asheville: Celtic Lassie's Quilt

by randallt

Reposted from DKos Asheville by Sara R
DKos Ashevillians traveled to Tennesee Wednesday to present Sara and Ann's amazing community quilt to Celtic Lassie with Otteray Scribe. A worthy dose of love from Kossacks. Gordon20024 drove down from Roanoke to meet us for the presentation and Joy of Fishes flew in on Tuesday and is there now. She is being the most loving mother hen in the whole world. When she tells you to "shoo" with that wonderful little smile and the twinkle in her eye, you know she means it. I'm sure all of us being there for OS meant the world to him. That's what families are for right? Additional help around the house would always be appreciated if anyone is able to help. Just let me know.

After we drove back to Asheville, we met up with DawnN and SteelerGrrl and Guy and had a nice meal at Rosetta's kitchen, Asheville's premier hippy vegetarian food and love cafe. I am hoping that some of us can get together again today. SteelerGrrl is attending a conference in Asheville this week so I was able to pick up a pair of tie dye sox from her for Celtic Lassie on the way to Tennessee Wednesday.

Please join us below the fold for a few photos. Thanks for being part of this community and please keep Chuck and Brandi and their family in your thoughts and prayers.

Continue Reading
Reposted from Onomastic by Onomastic

   photo Celtic Lassies quilt for diary_zpsg2vjrawh.jpg

The quilt is done. In spite of Sara and Ann both being hit with illness, they have bent time to make it so. The messages of love and support from all of you are there to be read, surrounded by Otteray's family tartan and Celtic Lassie's favorite yellows.

The comfort your messages give are so badly needed. The only thing left to do is get the quilt to Celtic Lassie and Otteray as quickly as possible. There is no time to spare, for either of their sakes. So here is what needs to be done.

With all of your help they will have the quilt tomorrow, if we raise $200 for overnight shipping. We don't want any one person paying for it all. If twenty of you can give ten dollars each or whatever you can give, Celtic Lassie and Otteray will have the quilt's beautiful manifestation of your love, strength, and comfort on Tuesday.  

If you would like to donate whatever you can afford towards the shipping costs, the link for donations is here.

If the link does not work, go to Pay Pal and enter Sara and Ann's business email.  
hairbraider33@yahoo.com
That should take you to their donation page. My deepest apologies for any difficulties.
Each donation ensures that Celtic Lassie and Otteray will have the comfort and support they so badly need within hours instead of days.

I can not stress enough how important that is to both of them.
Otteray needs us with him, needs to know that we are there with him and his dying child. He has lost so much already. Surely we can do this for him, for them both. How could we not?  

Continue Reading

IMG_2763
TrueBlueMajority's quilt

It breaks my heart that this quilt is needed -- yet it is needed, urgently.

UPDATE: The situation is dire.  CelticLassie's brother and sister-in-law are on their way.  When they arrive and all the tests are back, hospice will be consulted and decisions made.  We will pull out all the stops to get this quilt done and will need the messages ASAP.
A little backstory: CelticLassie survived cancer as an infant.  Otteray Scribe and his wife (a nurse) adopted her from St. Jude's, determined to save her life.  They lovingly nursed her to health with great success.  Up until now, she's had a very active and happy life.  But the monster (cancer) appears to be back.  Since Christmas, CelticLassie has had some trouble walking and has been in pain.  A few days ago, she fell and broke her hip.   When the hip was imaged, a huge pelvic mass was found.  The doctors think the mass has weakened her bones, thus the fracture.  It is also pressing on other parts.  Long story short, CelticLassie is in agony and is likely to be in the hospital for an extended period.  We are going to make a community quilt to support her spirit through this ordeal and would welcome loving messages from you for her.

Clinic 1989
CelticLassie with her new big sister and mama

1st day B&W
CelticLassie's first day home, here with her father

As you will see below, she grew into a strong and lovely young woman with an infectious smile, a spirit for adventure, and a deep love of her family's Scottish heritage.  She is an accomplished piper, too -- not easy!  Some more photos below the orange cloud...

Continue Reading
Reposted from Sara R by Sara R

Sara Reed1401
Meteor Blades' quilt -- CSM's will be in a completely different color palette but the pattern and size of the star will be the same.

We are making a star quilt for Common Sense Mainer, a major project that will take some time, but which will be so fitting for someone who does so much for the community, much of it behind the scenes.  He is a star!  So this is truly the right pattern for him.

The reasons for this quilt are more fully explained in his first quilt diary from last week but in brief, the quilt is for his service to community including his above-and-beyond actions for Cedwyn, and the fact that he has recently had the unfortunate diagnosis of COPD, something that he will live with now for the rest of his life.

The star will have exactly 200 spots for short messages, no more, no less.  Please condense your thoughts to just a line or two.  This photo detail of MB's quilt will give you some idea of how much room there is.

Sara Reed1405

Continue Reading

Wed Apr 08, 2015 at 10:58 PM PDT

Under Sara's Fingernail

by ruleoflaw

Reposted from ruleoflaw by Sara R

Under Sara's Fingernail

In a box from Portland
across half a continent
care of Sara and Ann, of hands and souls
carrying hope, good, and true
from strange friends, friendly strangers,
opened with feathers and fingertips

Wrapped like an onion
of like minds dissonant,
paper shelled, agreed to differ in layers.
Savor and sob sweet sulphur.
Many voices, much to consider,
makes my heart hurt well.

Mushy legged, fright coughed
needle stuck, copper mouthed man,
duck feet wrapped in the blessings,
gathered, wound, woven, sewn.
Torn is bound, bound is healed
one stitch at a time.

Our divinity dreams our world into being.
Tears of gods stain our pillows.
We rise on the grass of our own gardens.
Wash in the dew of Eden daily born.
Poppies, hops, cabbage and the joy we have planted here
feed others after we have dissolved into eternal rain.

See the creator of the universe.
Look up from the sink.
Look into the eyes of those around us. Love what we see there.
We are forever bone-dust, tears and stray sparks.
If you missed my call, look for me on the nearest leaf,
beside a creaking gate, under the hoof of a she-goat.



Continue Reading
Reposted from Sara R by Sara R

Sara Reed1401
Meteor Blades' quilt -- we would like to make something similar for CSM in a wild and bright color palette

Everybody knows of Common Sense Mainer as Bill in Portland Maine's beloved life partner.  But unless you have been fortunate enough to have met him at a Netroots Nation conference or other meet up, you won't have seen how he lights up a room so that everyone suddenly finds themselves in a good mood.  Michael has that rare gift of quiet efficiency that makes things (social situations, logistics, organization) flow with ease but without being in the forefront, himself.  He is gracious and giving to a fault as well as being a hell of a lot of fun.  

Ann and I want to make a star quilt for CSM to honor him for his huge heart and many contributions to community, especially in light of his role in helping us all feel represented at Cedwyn's bedside.  Like Jotter and Jill Richardson, he traveled a long way to see Cedwyn -- and he picked up ericlewis0 and 4Freedom along the way.  He kept a lot of us, including the quiltmakers, in the loop on Cedwyn's condition, even when his visit was done -- and it was at his insistence that Ann and I got the community quilt to Cedwyn in time for her to enjoy it awhile.  Yes, CSM lit a fire under us, all the way from Portland, ME to Portland OR and we are so grateful for it!  Like many, I really admire CSM for all he did for Cedwyn.  I know it was not easy for someone as sensitive as he to witness the vital and vibrant Cedwyn so physically diminished by mortal illness and yet rise above the shock to cheer her up (which he did, beautifully).  Such things take an emotional toll and you cannot forget them...Ann and I know.

There is another reason we want to make this special quilt for CSM.  He has recently had a diagnosis of COPD, a serious medical condition and something he will live with for the rest of his life.  Now he is on two inhalers and tells me they are not giving the best relief.  Difficulty in drawing breath is a bitter limitation for someone like Michael and is enough to make any bright spirit feel blue.  I don't know if a quilt like this can make breathing easier but, filled with love and light and color as it shall be, it should be an effective antidote for the blues.

So, would you like to leave a short message for CSM to let him know how you love and value him?  We are looking for 200 short messages to make a star.  The messages need to be brief and pithy so they will fit.  See MB's quilt for an example of the size limit:

Sara Reed1405

Continue Reading

Mon Mar 16, 2015 at 03:43 PM PDT

Update on my hand

by Sara R

Reposted from Sara R by Sara R

IMG_2746
When they said a bulky bandage, they weren't kidding

Kind friends have been asking what happened last Thursday.  I had a fingernail removed so that a biopsy could be taken of the skin underneath.  It may be a couple weeks until I know the results -- and there is a possibility that the biopsy will need to be repeated if it seems likely that the problem was originating from the matrix.  I'm really hoping that won't be necessary because it will likely mean the nail will grow out funky forevermore.  Also, I will be back to square one as far as healing is concerned.

The dermatologist who did the procedure was terrific and really put me at my ease (I was terrified, I admit).  It didn't hurt while she was doing it.  The worst pain was for two days afterwards -- but there are pills for that and I took 'em!  Right now, I am okay.  I am just inconvenienced by a bulky bandage that I will have for at least two more days.

The problem?  My nail changed.  A split developed that never went away and a discoloration later appeared under the nail.  The discoloration was growing and changing.  And the nail became very sensitive if hit. There are a number of benign things that this could be -- so that is what I am hoping for.  I never in a million years thought that a person could develop a skin cancer under a nail -- but apparently, you can.  If you ever see a change in a nail, get it checked!

Once again, I am deeply and most sincerely grateful for ACA.  And my friends.  And my sister who is picking up the slack.  I am most fortunate.

Discuss

Sun Mar 08, 2015 at 04:33 PM PDT

I need some help -- ruleoflaw's quilt

by Sara R

Reposted from Sara R by Sara R

IMG_2694
Dusty inspects Yasuragi's quilt

I need some help completing the subscription to ruleoflaw's quilt.  I need to write out all the messages by end of day Wednesday because Thursday, I am having a surgery on my right hand.  I'll be in a big, fat bandage for a couple weeks at least, unable to transcribe messages -- and ruleoflaw really needs his quilt.  He is undergoing a very harsh and risky therapy and we really want to get this quilt out to him, pronto.

Hooray!  We now have the minimum number of messages for the pattern.  But there is always room for more if you would like to have a message on this quilt!

Ruleoflaw's quilt diary is here.  You can leave messages there or in a comment to this diary.  I will keep the totals above updated.

Here is a PayPal link for ruleoflaw's quilt.  

Thank you very much for helping with this!

Continue Reading
You can add a private note to this diary when hotlisting it:
Are you sure you want to remove this diary from your hotlist?
Are you sure you want to remove your recommendation? You can only recommend a diary once, so you will not be able to re-recommend it afterwards.

RSS

Subscribe or Donate to support Daily Kos.

Click here for the mobile view of the site