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View Diary: Sometimes, it's just not fair (24 comments)

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  •  As a doc, I'll tell you, MS care far better now. (3+ / 0-)
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    ladybug53, Abelia, WI Deadhead

    Not saying for an instant that it's not a miserable cross to bear, and you and your wife have my deepest sympathy.

    I'm an older doc, and I can recall vividly what a ghastly thing MS was 30 years ago, when there was essentially no worthwhile treatment. We pretty much managed our patients' declines with little to offer beyond sympathy.

    Things are much better now, as there are a range of immunomodulant therapies that substantially reduce the frequency of exacerbations, and research is extremely active. Most of my patients do really well, frequently better than my diabetics over time. And it's a truism that MS is probably the most likely rotten disease to be completely understood and fixable in the next decade.

    Still sucks, though, and some patients still do poorly. For many, the biggest problem is that treatment is so fearsomely expensive. Folks lacking great insurance can easily be priced out of effective care or financially ruined.

    Best of luck.

    •  Yeah, (1+ / 0-)
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      we're lucky that she actually works at a hospital, so she has amazing insurance, and her docs are great.  Makes it a lot easier - but I can't imagine if she didn't .  And all those people who are against the health care act can kiss my ass - no, it's not perfect, but it's a hell of a lot better than wondering what the hell you're going to do when something like this smacks you in the face.  I wouldn't even wish this fucking disease on John Boehner, and I hate that asshole.

      If at first you don't succeed, try again. Then quit. No need to be a damn fool about it. - W.C. Fields

      by Isaacsdad on Wed Nov 09, 2011 at 07:56:02 AM PST

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