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View Diary: What I wrote to my Komen sponsors (68 comments)

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  •  Revelations about withholding stem cell research (13+ / 0-)

    funds; about undisclosed lobbying against Patient Bill of Rights, against undisclosed items in health care reform, against research on links between environmental toxins and cancer, and more. Revelations about Komen's corporate bias.

    I was not paying sufficient attention. In future, I will only support charities that fund research that also embrace the tenets of Breast Cancer Action:

    "Sitting on corporate boards and organizations that have vested interests in cancer policies is an even higher level of conflict than taking funds: a board member is expected to promote the interests of that corporation," said Batt, who also spoke against tamoxifen at the 1998 FDA hearing.

    "Even the NBCC takes money from the pharmaceutical industry, but I doubt (its leaders) sit on corporate boards," a fact confirmed by an NBCC spokeswoman in a recent interview.

    San Francisco-based Breast Cancer Action goes one step farther, refusing all donations from corporations that make money off breast cancer such as pharmaceutical companies, tobacco and pesticide manufacturers, and cancer treatment facilities. BCA also launched a campaign to expose similar sponsorship ties inherent in the Avon cosmetic company's fund raising run.

    Explained BCA's executive director Barbara Brenner, "With the growing effort by corporations to look like 'good guys' by supporting cancer organizations, it is difficult, if not impossible, to know whether an advocacy organization's positions are based on well thought out policies or on who's paying the bills."


    Excerpted from this 2002 article.

    The test of our progress is not whether we add more to the abundance of those who have much; it is whether we provide enough for those who have too little. -FDR

    by SoCalSal on Sun Feb 05, 2012 at 06:44:01 PM PST

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    •  While much of what you quote is (3+ / 0-)
      Recommended by:
      annan, LSophia, StateofEuphoria

      admirable, I'm a bit startled to read that the speaker "spoke against tamoxifen in 1998."

      My mother lived for 20 years with metastatic breast cancer, most of that time with an excellent quality of life, thanks largely to tamoxifen. If you know anything about breast cancer, you will recognize that that is an extraordinarily long time to survive with active disease. I treasured every one of those years.

      May I ask what is so terrible about tamoxifen? Not all drugs are evil.

      "The only thing we have to fear is fear itself."........ "The test of our progress is not whether we add more to the abundance of those who have much; it is whether we provide enough for those who have too little." (yeah, same guy.)

      by sidnora on Sun Feb 05, 2012 at 07:29:53 PM PST

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      •  I should look it up, but too tired... (4+ / 0-)

        so off the top of my head, tamoxifen has been linked to increase in cervical cancer so the thinking is tamoxifen is over prescribed for all breast cancer patients but appropriate for some. My mother was on tamoxifen for nine years before she died in the mid 1980s after cancer metastasized to bone and then vital organs. I think I read that tamoxifen is now prescribed as prevention, and that is what some object to. For someone with metastatic cancer, the risk of cervical cancer would be outweighed by the benefits.

        I hope I got that correctly.

        The test of our progress is not whether we add more to the abundance of those who have much; it is whether we provide enough for those who have too little. -FDR

        by SoCalSal on Sun Feb 05, 2012 at 08:33:24 PM PST

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        •  OK, tamoxifen as prevention (3+ / 0-)
          Recommended by:
          SoCalSal, LSophia, StateofEuphoria

          is a whole different story. Even apart from the increased risk of cervical cancer, which I do recall hearing about now that you mention it, it has other, less serious, but still annoying side effects. My husband's aunt, whose cancer had not metastasized, ended up getting herself taken off it because she found them unbearable (and she's still with us, almost 20 years later, and over 90 years of age).

          But for people in our mothers' position, it is, literally, a life saver. It's not always the drug per se, but how it is used.

          "The only thing we have to fear is fear itself."........ "The test of our progress is not whether we add more to the abundance of those who have much; it is whether we provide enough for those who have too little." (yeah, same guy.)

          by sidnora on Sun Feb 05, 2012 at 08:47:28 PM PST

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