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View Diary: "When you come back in 24 hours, the legal side is over." (116 comments)

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  •  not really the case. There is a shortage of (6+ / 0-)

    living arrangements for people with serious disabilities and a really great shortage of good places. Many live with their parents and few of these parents are rich. And when the parents are too elderly to care for a severely disabled grown child, they may end up in places that are at best barely adequate.
    Seems like Santorum must have a staff to deal with his youngest child since everyone else is on the campaign trail, but having been part of the disability community I can tell you that is the exception not the norm. I knew of only one family in the school our son went to who had a live-in person who took care of their severely disabled child around the clock. The rest of the families at the school all managed by patching together all sorts of arrangements.
    Our son needed daily respiratory therapy but our insurance would only cover it a couple of times/week, so my husband got up extra early almost every morning to pound on his chest. Imagine how hard it is to go out since you can't just hire your local teenager to babysit.
    I went to bed exhausted and woke up exhausted and in-between worried about my son's future. What would happen to him if something happened to us? Would he be warehoused and treated like an inanimate object (we had seen exactly that in an institution). I couldn't stand the idea of him not getting hugged and loved and talked to.

    We're not perfect, but they're nuts! -- Barney Frank

    by Tamar on Fri Mar 16, 2012 at 08:12:29 PM PDT

    [ Parent ]

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