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View Diary: KosAbility: The Lost Weekend (34 comments)

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  •  This is SO true (11+ / 0-)
    When you're disabled, you don't just pack a bag and take off.
    My wife's list is pretty similar.  Doing anything social, even if not leaving the house, requires much of this.   Keep in mind this is WITH me helping both before and on the trip.

    1. figure out when to bathe (often best the day before, not on the day, due to the energy it takes to do this)
    2. lay out clothes for the day, plus pack enough stuff for the trip.  There needs to include blankets and jackets in case she gets cold, and layers in case she's too hot unexpectedly.
    3. figure out food (she's celiac and allergic to lots of things, and her condition gets worse rapidly if she doesn't eat).  This involves a mix of bringing some food along, and trying to find restaurants in the area that know what is in what they serve.
    4. check to see if the venue has comfortable chairs.  If not, try to arrange a wheelchair
    5.  Make sure there is food in the house for when she gets back (see #2).
    6.  Take meds on the travel day, then pack them plus the B-PAP machine.  Ditto vitamins that reduce inflammation, and emergency meds like migraine and pain medicine.  Don't forget the emergency allergy meds, inhaler and epi-pen.
    7.  Make sure wherever we stay has a bath (not just a shower) and the beds are comfortable
    8.  Pack the earplugs.

    If I'm traveling, I pack clothes and toiletries and I'm done.  I can rely on nearly any hotel or motel  having sufficient amenities for me, I can eat anywhere, even at crappy fast food restaurants or overpriced awful convention food.   An uncomfortable chair is merely annoying, not crippling for the next three days.  Etc.

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