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View Diary: Caveats for Caretakers (6) (25 comments)

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  •  Here in Oregon, a relative of mine recently spent (10+ / 0-)

    about 15 months on hospice before she died, and the family had no difficulty in keeping her in the program.  Perhaps there is some difference from place to place in how hospice agencies apply the rules.  Our experience with hospice was wonderful (and I don't hesitate to apply such a positive word).  Our relative was given a great deal of support to be able to spend her last days at home (which was her strong desire), and she and her family members received a lot of counseling to help with the process of letting go.

    So, I would like to stress that when it works properly, hospice care need not have any negative connotations.  Still, there is no way for us, as adult children, to make these kind of decisions without stress and second-guessing.  

    To Disinterested Spectator, your love and care for your mother shines through, and I would like to reassure you that she would thank you for helping her in her last days.  It feels strange to make decisions for our parents--isn't it supposed to be the other way around?  But to delay, or to prolong their suffering because we can't stand to take the responsibility, seems wrong as well.  I hope you can find peace with your decisions.

    •  Some times it is a matter of space (3+ / 0-)

      In the county I live in there are not enough hospice beds available for those who may live longer. At least that is what I keep getting told.

      "the government's role should be to uplift, enlighten, educate and ennoble the citizen, not oppress them with taxation and intrusive laws," Gatewood Galbraith, Historic Marijuana Advocate, aka "The Last Free Man In America," RIP 1-3-12

      by SmileySam on Sat Sep 22, 2012 at 10:39:18 AM PDT

      [ Parent ]

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