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  •  Defined by disabilities... (3+ / 0-)
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    never forget 2000, Wee Mama, Noddy

    Before I had high hopes for our family to be out of poverty by now. Not rich, but in a much better place than we are.

    I was a COTA/L. Now I'm a COTA but I've let my state license lapse because I don't have the money to keep up with CEU's and fees.  This is another barrier to work if I ever get to the point where I can again (or find a way to work around it), because I'll have to find a way to take the CEU's to reinstate my state license.

    I used to walk a lot, I took my kids to the park, or the pool, went bike riding. Now I can't walk to the end of my very short driveway and back without stopping to catch my breath.. on a good day. A day like today I can't walk to the kitchen and back (and I am walking at a snail's pace besides).

    I can't plan outings well, because I never know what kind of day I will be having. A day at the museum? Sure.. maybe, if I can breathe, if I can walk, and if I can keep my eyes open. I try to rest the day ahead, but even that doesn't always ensure it.

    I used to sing. I took lessons, I've been in bands (local mostly practice few gig bands, but still), I've been in church choirs and school choirs from 1-12 grade. I was even accepted to an arts school in 5th grade, my parents couldn't afford the tuition, but I was accepted, and to the opera program. I had a VERY wide range. Now I can sing in tenor, alto or maybe soprano I on a good day. I can't hit the Descant and below baritone any longer.

    My disabilities have greatly affected my self image and self definition. They've also affected how other people see me, since my disabilities are mostly hidden (unless I'm wheezing loudly).

    "Madness! Total and complete madness! This never would've happened if the humans hadn't started fighting one another!" Londo Mollari

    by FloridaSNMOM on Wed Nov 14, 2012 at 10:34:18 AM PST

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