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View Diary: My Dad and Cancer (88 comments)

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  •  Staying ahead of the pain (19+ / 0-)

    In the case of my mom, we used or should have used:

    a couple milligrams of morphine every 2 hours, instead of every four hours.   Steady dosage instead of "as needed"  Some sweet juice to wash down the bitter morphine was a big help.  

    I found that early morning was the stressful time.   I asked my hospice staff to arrive between 7-9 a.m if possible.   After that, we were ready for the day for other visitors or medical events.  

    Diet management is key.  It manages heart burn, constipation, appetite, spirit.    We made a lot of soups in small containers.  Have a blender or two ready.  

    An iPad is good to have around.   Its good for sharing photos or music.

    It will be teamwork all the way.   Your dad, hospice, family and visitors, and those of us at Daily Kos.

    •  excellent points (14+ / 0-)

      about staying ahead of the pain, and some juice to help wash it down.

      some of the teaching or university hospitals have patient care navigators, and these are nurses who specialize in advocating for patients, and teaching the families to be effective advocates.  a navigator will know if a new therapy becomes available, or suggest equipment that makes going home, even for visits, much easier.  they work very closely with families, too, and offer resources that aren't available or even known about sometimes.

      •  My sister was assigned a palliative care team, (1+ / 0-)
        Recommended by:
        Killer of Sacred Cows

        who visited her at home.  But, with all of her appointments and family visits, it was very irregular.  All the while, the word "hospice" was never used, although in hindsight I see now that's what it was.  But it was not ideal and not the best choice for her family.  She wanted to stay home, but when she finally was taken to the hospital due to a seizure, her family considered hospice.  My other sister fought it tooth and nail, making the decision a very difficult one for the family but in the end my 23 year old niece and brother in law went ahead and made the arrangements, which I supported.  Although she only spent one day there, in a beautiful, almost resort-like setting, it was wonderful and we saw my sister pass away in a peaceful, quiet way.  I highly recommend it and if your father is willing to discuss this at this time, it will prevent alot of distress and heartache for you and your siblings and you can devote your energy to spending time with your Dad.  

    •  That would make a good diary for the Monday (8+ / 0-)

      Night Cancer Club. I just sent you an invite.

      Tracy B Ann - technically that is my signature.

      by ZenTrainer on Wed Nov 14, 2012 at 04:30:41 PM PST

      [ Parent ]

      •  I completely agree, and hope you will too, Fleet. (6+ / 0-)

        You clearly have a lot of useful knowledge to share, and the compassion to get it across effectively. I'm sorry that it was so hard-earned for you.  

        I'm seeking to organize DKos members in SE Michigan--roughly, from the Ohio line at Lake Erie NE to Port Huron, W to Flint and back S from there. If you'd like to join our new group, Motor City Kossacks (working title), please Kosmail me.

        by peregrine kate on Wed Nov 14, 2012 at 08:26:14 PM PST

        [ Parent ]

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