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View Diary: defusing the Bomb of Gilead (18 comments)

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  •  As a long term survivor, who's life was saved by (1+ / 0-)
    Recommended by:
    Denise Oliver Velez

    Gilead, I am afraid I don't see the point, other than Big-Pharm is profiting, not just Gilead.  I see ALL corporations as being profit driven, not just Gilead, ad I have to say that Gilead is MORE compassionate towards patients than any other company I know of.

    It is COMMON practice in Big-Pharm to change the formula of a drug the second the patient expires. Gilead is a profit driven company, but in my life they have shown tons of compassion.

    When my T-cells were at 24, my doctor approached Gilead about a new drug that they had that was promising, and at that time MY only hope.  Gilead found a slot for me in A STUDY and I got the drug in days after my Doctor had approached them.  In weeks I THRIVED on this drug, my t-cells went from 24 in 2005 to over 400 in 2006, to now over  750 in 2012.  Gilead paid for ALL my AIDS drugs for years until life circumstances lead me to being barred from the study.

    When life circumstances allowed, my doctor was able to reformulate my cocktail without unapproved drugs.  But I still give thanks for Gilead, their drug assistance programs, and their willingness to as a corporation show such compassion as to allow one thriving patient to be kept on a drug that was clearly a failure to everyone else.

    I agree, CORPORATION ARE EVIL, I agree that there is NOTHING BUT profiteering in Big-Pharm, but having been a life thanks to Gilead and their drug research, I think that you are pointing out a systemic problem, and making Gilead a bad guy when as far as I am concerned, they are least EVIL of the profiteering Big-Pharm companies, and in my one singular case, showed nothing but compassion.

    It doesn't surprise me Gilead would want a meeting, they are the best of a bad bread, they have been patient advocates for as long as I can remember and their Compassionate Use program has to be the best and most generous in the industry.  I hope that you go to the meeting with Gilead, and I hope they explain all they have done to help patients in this pandemic.

    When my lfe went to hell in a hand basket, the one thing I could count on was Gilead, they continued my health care and drug therapies when I was broke and insurance-less, when my doctor of 17 years retired and closed his practice, it was researchers at Gilead that helped in my search for a new doctor, and lead me to my new Doctor who I totally think is an Angel!\

    I have to agree that their are Systemic problems in the way drugs are researched and developed, but I believe that Gilead's Compassionate Use program has to be the most liberal in the industry.

    Gilead might be over charging the Big Bad Government and AIDS Inc. for their drugs, but if you are a patient in need they will do everything in their power to make sure one get's the drugs they need to survive.  In my own case it was Gilead that fought for me, and tried to move Mountains to ensure my continued good health.

    One could argue I was a data point to Gilead, but I never felt that way.  I will be at the protest to protest what I see as a systemic problem and systemic  means FDA in this case, Gilead and all corporations are just doing what they are supposed to do, increasing profits for their shareholders.  But I think as a corporation Gilead shows patients a lot of heart!

    - Jeff US Army/Retired ... With a long enough lever one person can move the World! DoSomething-Anything.Info

    by l3m0n on Wed Dec 12, 2012 at 06:25:22 PM PST

    •  Glad to read about your T's (1+ / 0-)
      Recommended by:
      bubbanomics

      many people near and dear to me are still here because of Compassionate Use.

      But I fault them, and all of Big Pharma for raising prices on drugs and were it not for activism (and shaming) those compassion programs wouldn't exist.  

      ARV affordability and access is still a major problem in developing countries,
      Without activism Gilead and other companies would not have made compromises.  

      http://www.avert.org/...

      The battle must continue.  

      Democrats Caution Gilead Over Quad Pricing

      http://www.pharmalot.com/...

      In an attempt to get ahead of the curve, 14 Democratic members of Congress have written Gilead Sciences to caution the drugmaker to maintain a reasonable price for its forthcoming ‘Quad’ AIDS drug, a once-a-day treatment that was recently recommended by an FDA panel and may be approved by the agency this month. They express concern that Gilead may charge as much as $34,000 for Quad, which they say might contribute to further strain on state AIDS funding programs.
      How so? They note that Gilead froze prices through 2013 for drugs provided to ADAPs, or AIDS Drug Assistance Programs, run by the states. But at the same time, the drugmaker boosted prices for its meds in the commercial market: a 7.9 percent increase on Truvadam, a 7.3 percent increase for Complera and a 6.6 percent increase on Atripla, which raises costs for privately insured and Medicare patients.
      “As a result, Ryan White Part B programs that help these patients afford their co-pays and deductibles now face overwhelming demand and have instituted waiting lists. Given that Ryan White Part B funds both the co-pays and deductibles of privately insured patients as well as ADAP, price increases for antiretroviral drugs in the commercial market diminish the ability of ADAPs to purchase drugs and sustain their case loads,” they write to Gilead.
      I have always questioned the R&D cost excuses, and supported Brazil and Nicaragua in ignoring patents and producing their own generics at very low or no cost.

       

      Join us on the Black Kos front porch to review news and views written from a black pov—everyone is welcome.

      by Denise Oliver Velez on Wed Dec 12, 2012 at 07:35:17 PM PST

      [ Parent ]

      •  Actually, you can get my tens of thousands (0+ / 0-)

        per month AIDS drugs in Africa for 32 cents a month.  The problem is not Gilead it is BIG Government, AIDS has become big business, and no one is looking for a cure, just longevity on their over priced drugs!

        I just think that the problem with pricing has to do with Big Government PAYING what they are asking.  AIDS Inc is not just businesses, it is also Government programs that just continue "more of the same".  I think Single Payer insurance would help with this.  Revisions to the FDA Fast Track program would help with this, and making drugs patentable is ALSO a huge problem.  

        Why single out Gilead when the things that were pointed out are true of all drug companies.  I will be honest GILEAD IS MY HEROS, I AM HER TODAY TO BE ABLE TO WRITE THIS BECAUSE OF GILEAD.

        Why aren't we protesting a failed government system like the FDA Fasttrack, which is a broken system costing millions in overhead.

        - Jeff US Army/Retired ... With a long enough lever one person can move the World! DoSomething-Anything.Info

        by l3m0n on Wed Dec 12, 2012 at 08:17:13 PM PST

        [ Parent ]

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