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View Diary: KosAbility: Surviving a Hospital Stay (221 comments)

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  •  Hi Kelley, Happy New Year. (18+ / 0-)

    Indeed. We of a certain age have a difficult time with standing up, especially if we think complaining may make our treatment yet worse.

    There needs to be an escape plan, I swear, and a way to get admitted to a system where old records don't follow if your care gets really bad at the hospital you are in. We had a friend literally disconnect his wife from all her tubing and carried her out the door. They had labeled a very sick woman as a head case and he had to get her moved in a hurry.

    I found this out the hard way. And that means being in a city with more than one system and more than one teaching hospital/University.

    Community hospitals in small towns used to be the best. But at least in our state they have been taken over by very large systems, and that mean autonomy is gone without better staffing.

    I looked at that paragraph and could swear I have never seen any of those things done. At the university hospital they used disposable pressure cuffs.

    Good advice about the floors.

    Having an advocate is probably the best thing a person can do.

    Science is hell bent on consensus. Dr. Michael Crichton said “Let’s be clear: The work of science has nothing to do with consensus... which is the business of politics. Science, on the contrary, requires only one investigator who happens to be right,”

    by Regina in a Sears Kit House on Sun Dec 30, 2012 at 06:12:19 PM PST

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    •  {{{Regina}}} How are you, my friend? (13+ / 0-)

      I want to believe that your nightmare of an experience was caused by some kind of organizational psychosis ... I really want to believe that. When I heard the details I was so gobsmacked that I couldn't comment or even think straight for a while.

      And now you tell me it's happened again, to a friend of yours, and it scares the hell out of me. What are we to do?

      "Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

      by KelleyRN2 on Sun Dec 30, 2012 at 06:49:35 PM PST

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      •  We are hanging in. My local doc who (17+ / 0-)

        sorted out the reactions to food and found something that is buying time, agrees that we have ridden that horse about as far as we can.

        We have had the food reactions under control for most food groups, and I started to put on weight. But just before Christmas my meds started to fail sporadically.

        We have appts. in DC Jan 22nd. I am hoping all hell won't break loose before then.

        It's back to day by day. We just don't know. How we will do from day to day.

        We were all hoping for super stable before treatment, but it just isn't going to happen. So the docs, my DH and I are going to have to have some guts. It may not be pretty.

        I see ERs in my future. Yarrghh.

        But so far so good.  Blessings my dear.

        Science is hell bent on consensus. Dr. Michael Crichton said “Let’s be clear: The work of science has nothing to do with consensus... which is the business of politics. Science, on the contrary, requires only one investigator who happens to be right,”

        by Regina in a Sears Kit House on Sun Dec 30, 2012 at 07:10:59 PM PST

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        •  Do you have a lawyer you can call on? (12+ / 0-)

          It never hurts to have that one critical business card on hand.

          "Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

          by KelleyRN2 on Sun Dec 30, 2012 at 07:14:16 PM PST

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          •  You know I don't. I just don't know what they (12+ / 0-)

            would do to help and with what.

            Like someone else said in this thread, they did not sue the hospital "down to the sidewalk" because they were dealing with serious illness and couldn't take anything else on.

            I know not treating Borreliosis ( a spirochete similar to Syphilis) with cheap and easy to obtain antimicrobials, can lead to permanent damage or death, the "standard of care" or as one hospital administrator said to my DH, bring it on little man, we did what we were supposed to do.

            The tide will turn: there are too many of us these days. My god, Chuck Schummer has it and has been treated in NY; Richard Bluementhal, D, CT, has it and has been treated; you'd be surprised how many, but they have connections and doctors who will treat. George W. effing Bush, oh by the way.

            I would like to know how people get kick ass lawyers and what they do. We could use the money. heh.

            Science is hell bent on consensus. Dr. Michael Crichton said “Let’s be clear: The work of science has nothing to do with consensus... which is the business of politics. Science, on the contrary, requires only one investigator who happens to be right,”

            by Regina in a Sears Kit House on Sun Dec 30, 2012 at 08:12:06 PM PST

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