Skip to main content

View Diary: KosAbility: Shhhhhhhhhhhhh (206 comments)

Comment Preferences

  •  Question, Kelley? (11+ / 0-)

    I had a total hyster for my 25th birthday.  I'm turning 55 soon and wondering if anything will change. Unfortunately, I never received the appropriate estrogen replacement (which is part of the reason for the severe osteoporosis and resulting broken back, sigh.)  Am I out of the woods for any "changes" now, would you know?

    You are my brother, my sister.

    by RoCali on Sun Jan 20, 2013 at 05:22:31 PM PST

    [ Parent ]

    •  Is your osteoporosis being treated now? (10+ / 0-)

      That's critical, imo. There are specialists who assess and treat hormone deficiencies, if you can find a good one. I'd also hope you have an on-going relationship with a gynecologist?

      "Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

      by KelleyRN2 on Sun Jan 20, 2013 at 06:13:59 PM PST

      [ Parent ]

      •  Yes, they (9+ / 0-)

        are treating the osteoporosis.  They said I had the bones of 110 yr old woman.  Three spinal fractures the first time, the compression ones, from sitting down hard.  They put me on Forteo, unfortunately, I lost my insurance 2/3 of the way through and couldn't complete the series ($1,500 per month for the shots.)  Now I take oral meds to prevent further bone loss but they don't reverse it.  I had a couple more fractures this year, and then the disks ruptured between the fractures to boot.

        Yep, friendly with my GYN too.   I'm just wondering what else I may have to look forward to.  The materials I've read on menopause don't seem to pertain to me.

        You are my brother, my sister.

        by RoCali on Sun Jan 20, 2013 at 06:25:09 PM PST

        [ Parent ]

        •  Normal stats don't apply to you, unfortunately. (8+ / 0-)

          In statistics, you're what is called an "outlier", someone who deviates markedly from other members of a given sample. Your GYN should have access to longitudinal research studies composed of women who entered menopause at a very early age, as you did, studies that followed the group over time. The information is out there, I have no doubt, so get with him/her. You're entitled to the information.

          If all else fails, let me know. I'm a member of The Sister Study, a longitudinal study of women whose sisters had breast cancer. While this study is being conducted by the NIEH, there is a parallel study of thousands of women who experienced BC early in life, and I'm sure there's a large cohort who went through surgical or medical menopause. I may be able to get in touch with a researcher who can point you in the right direction.

          "Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

          by KelleyRN2 on Sun Jan 20, 2013 at 08:00:34 PM PST

          [ Parent ]

Subscribe or Donate to support Daily Kos.

Click here for the mobile view of the site