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View Diary: A little scared tonight.... (76 comments)

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  •  No, I totally get it, louisev! (25+ / 0-)

    My aldosterone-renin ratio was really, really high in all of my blood work, which is why they were thinking Conn's. In addition, my potassium was low enough that they put me on a supplement. My left adrenal showed some slight evidence of hyperplasia, but then they did the saline suppression test my aldosterone level dropped (they'd previously been in the high 20s/low 30s...after the test it was like 5).

    As a perimenopausal woman, spiro sucks. But if they need to bring the dosage higher I'm ready. It's better than being a basket case. And my potassium looks really good for a change.

    Oh, thank you! I so don't feel as alone in this!

    "Train yourself to let go of everything you fear to lose." ―Yoda to Anakin Skywalker

    by Auntie Neo Kawn on Tue Jan 29, 2013 at 06:48:44 PM PST

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    •  no worries (10+ / 0-)

      I don't understand how they tested you for hyperplasia, but then again I only really know basic adrenal chemistry and CAH.  With 11-beta, renin level is low (in my case quite low), sodium is high, chloride can be high, potassium of course low, BP is high (due to sodium) and aldosterone is low.  My aldosterone when first measured during this process, was .2   But as I say, that isn't death-dealing in my case, but it is diagnostic for my particular form of hyperplasia.

      I am curious: what does spironolactone do to you? I have no side effects (not surprising since I have no reproductive organs functional) but I'd be curious to know.  I didn't know there were side effects.

      "Kossacks are held to a higher standard. Like Hebrew National hot dogs." - blueaardvark

      by louisev on Tue Jan 29, 2013 at 07:02:25 PM PST

      [ Parent ]

      •  Mine is a bit different (12+ / 0-)

        So my renin levels have been mostly below 1 (0.2 was one of the lower numbers). My aldosterone ranges from 20-30, and my K was in the low 3's. My sodium excretion was also low, but mostly because I'm not a big salt person. The hyperplasia was via MRI....my left adrenal showed some thickening. But we never got to the selection venous sampling because my aldosterone levels crashed during the saline suppression (two NaCL bags via IV in four hours).

        Spiro makes everything about being a woman more difficult. Swollen, painful breasts, more painful menstruation, etc.

        "Train yourself to let go of everything you fear to lose." ―Yoda to Anakin Skywalker

        by Auntie Neo Kawn on Tue Jan 29, 2013 at 07:12:18 PM PST

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        •  ah, i see (8+ / 0-)


          thanks for explaining. I am so used to the clinical diagnosis of hyperplasia I forgot that it produces a large adrenal gland too! :)   those of us with CAH tend to think of the condition as "adrenals going all the time" which is what they do, which is what causes them to grow.  if you have one adrenal enlarged then there is at least some physical anomaly to explore further and some indication it's coming from there - so it's not an entire black box.

          "Kossacks are held to a higher standard. Like Hebrew National hot dogs." - blueaardvark

          by louisev on Tue Jan 29, 2013 at 07:17:43 PM PST

          [ Parent ]

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