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View Diary: Don't let this happen to you. (73 comments)

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  •  Honestly, this isn't really uncommon (0+ / 0-)

    The doctors see a lot of patients, and they know that the test came back negative.  So, they just don't think to call you and tell you.  It's not exactly intentional, I don't think, it's just part of the job.  A lot of these doctors are overworked, and something like 50% of PCP are burned out on their job.  

    You have to really try to get attention.  And if you want it, make another appointment.  Just go in and talk about it.  They can't avoid you that way, and they probably don't mind discussing the results.  

    I've been dealing with a chronic health condition for the past year and a half, and have had numerous tests that all came back perfect.  At first I didn't hear anything and eventually learned that if I didn't hear anything in a few days it meant the test didn't show anything.  Eventually I complained to my doctor about this and then his nurse started calling all the time telling me my test results were normal.  Ironically, I started to feel almost more irritated that his nurse kept calling me with no news, although on balance it was better to be informed.  

    Anyway, the good news is my PCP finally ordered a abdominal CT which amazingly actually showed something.  Of course, it was something totally rare, called mesenteric panniculitis, which my doctor (and probably all of the ones I'll see going forward) had never heard of.  

    But at least after 1.5 years of being treated like a hypochondriac, I finally have something that shows there's something wrong.  Hopefully now I'll have some credibility to help me convince the doctors going forward to actually help me find the rest of the answer!  

    In any case, I totally agree with you, it is a full time job to get the care you need.  You have to be a real pain in the ass.  Don't let yourself get discouraged if you're blown off or treated rudely.  See a new doctor if you have to, but don't give up!  

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