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View Diary: My 5th Annual World Autism Awareness Day Diary - Social Isolation and Making the Best of Things (77 comments)

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  •  I worry about police (5+ / 0-)

    Because being stopped etc is a triggering experience for me. And I know that it's very possible that i can die in their "care" because they not only don't understand - but don't have to.  

    Add to that my Mum is rather manipulative and threatens me with 911 when I disagree with her over pretty much anything.  (I will call 911 and have them take you to the hospital rather than admit I'm goading you into a meltdown!) Total FOX viewer as well, so I think on some level she believes I'm potentially dangerous - and we have a ton of guns I have zero interest in here in the house.  I fully expect if she follows through with it I will die, no matter how much I cooperate.

    I got stopped on the way here by border patrol and state police (both in Texas) having been reported as a "terrorist" because I'm Jewish and usually wore solid white kippas.  I don't anymore - as a result.  BP actually pulled my belongings out of the car (including the cat) and put me in a very loud confusing room to wait while they tore my shit up.  

    I was lucky in the fact that one of the officers has an autistic child and helped me.  He explained what was happening, put the cat carrier where I could see it and put me in a corner where I could calm down and maintain myself until we could go.

    I don't know what would have happened if he hadn't have been there and able to spot I was ramping up for a meltdown.

    And we sail and we sail and we never see land, just the rum in the bottle and a pipe in my hand...

    by Mortifyd on Tue Apr 02, 2013 at 02:03:09 PM PDT

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    •  The only good thing about the increase in autism (6+ / 0-)

      spectrum disorders: More people are aware of autism and how it affects those who have it. They are also more likely to be compassionate towards those they recognize it in, especially if it's a similar symptom to one their relative or friend has.

      Once upon a time it was a rare disorder few knew about, that isn't the case any longer. In some ways that's working for us.

      "Madness! Total and complete madness! This never would've happened if the humans hadn't started fighting one another!" Londo Mollari

      by FloridaSNMOM on Tue Apr 02, 2013 at 03:02:43 PM PDT

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    •  I made a card for my daughter to keep (7+ / 0-)

      in her wallet, explaining that she is autistic, and showing all her emergency contact numbers. In an upsetting situation like being stopped by police, she might not be able to communicate verbally, but I think she would be able to remember to pull out this card to show them.

    •  Your mom threatens you with the police? (6+ / 0-)

      That's very bad on her part.  Threats never work.  Love and understand with a bit of empathy and lots of hard work does much better.

      Stress doesn't suit my son well at all either.  He tends to lose his voice and then his arms flail around.  Not a good situation with a transit cop screaming spittle at your face demanding your student id because you have a student transit pass.  

      I wish the "cops" around here would "protect and serve" our disabled citizens.  But I'm afraid they are our biggest fear.  Cops that is.  

      Oh yes, there's a few good ones.  But not much so here where I live.  Most are just a brute squad with impunity to beat and kill.

      Stay safe.

      "Love One Another" ~ George Harrison

      by Damnit Janet on Wed Apr 03, 2013 at 07:48:12 AM PDT

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      •  We need more education for police (5+ / 0-)

        I don't think, at least I really hope, that most cops aren't bad guys (said as the daughter of a retired cop), but they do tend to be reactionary.

        I think if they had more training and/or exposure to recognizing special needs as differentiated from non-compliant people of other sorts, life would improve for all of us.

        You probably have already tried this, but have you ever contacted someone higher up in the transit authority to talk about introducing your son around as an educational tool for them, but also a way of defusing hotheaded situations?

        I live across the street from a member of the sheriff's department, and she says you can register your kid here with the police as someone who is non-verbal (I know that doesn't apply to your son, but it does to my daughter).

        I blog about my daughter with autism at her website

        by coquiero on Wed Apr 03, 2013 at 08:05:39 AM PDT

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      •  my parents see autism as a failure on their part (4+ / 0-)

        rather than simply how I work.  My younger brother has been diabetic since infancy, so he was the focus and I was sort of left to myself to manage as best I could.  I spent a lot of childhood "on restriction" in my room - which in many ways was very good for me - but I have to control my environment to thrive - and this is not my environment - it's theirs.

        Now that I am living back with them temporarily - I was diagnosed with mild schizophrenia, unrelated to my autism - they still  have me mentally boxed as "the healthy one" and don't have any real understanding or skills to cope with what I need in order to function as well as I could in my own environment.  They are older people and FOXbots, so their information is... iffy at best to begin with.

        I came from Oregon to Louisiana - and I'm terrified of the local police just on principle.  I do not expect them to understand, I do not expect my parents to help me should they become involved and I expect to get shot.

        And we sail and we sail and we never see land, just the rum in the bottle and a pipe in my hand...

        by Mortifyd on Wed Apr 03, 2013 at 08:53:24 AM PDT

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