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View Diary: Comes a boy who may soon be dead (45 comments)

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  •  my brother is diabetic and 40 (21+ / 0-)

    He works at VoldeMart.  He has to have a roomie and trade shifts with people to have enough to pay for the shitty VoldeMart insurance to afford insulin - and basically struggles to stay alive.

    I'm 43 and on psychiatric meds for schizophrenia and autism - which I get from a sliding scale community clinic for free.  I live with my parents because I can't hold down a job without the meds - but if I get a job, I can't get the meds anymore - I'll make too much to use the clinic but won't have enough after basic bills to get insurance.  I got through the state low income insurance lottery once - only to work too much one month and lose my insurance for making too much money.  That was my last job before my breakdown.

    I applied for SSDI in October and my case is still in process - and most people are turned down on their first run through the hoops.  So I can live one step above homeless in my boat with no meds and no job, or I can live with my retired parents draining their resources with meds and no job.  

    Shitty options.

    And we sail and we sail and we never see land, just the rum in the bottle and a pipe in my hand...

    by Mortifyd on Tue Jun 04, 2013 at 07:12:26 AM PDT

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    •  Shitty options (14+ / 0-)

      I've spoken of my neighbors before, Grandma, mom, two kids 7 and 9. All of them in the same single wide trailer living on Grandma's SSI.

      This family lost in the gene lottery. If you just take Grandma's sibling's families and hers, they have RA, CA, Lupus, Fibro (bunches), and frankly I can't remember all the other life altering or threatening problems. Grandma's daughter in in her early thirties and her bladder has stopped functioning.

      The whole extended family lives in extreme poverty because they need it to cover their medical needs. Any number of them would die if they had an actual bank account. They get to trade living their lives for little things like toilet paper that lasts the month.

      BTW, the little girl age 7 just won an academic achievement award of a $1000 scholarship. She reads chapter books already and is brilliant. Thank gawd the scholarship doesn't count against them or they would have had to turn it down.

      "The scientific nature of the ordinary man is to go on out and do the best you can." John Prine

      by high uintas on Tue Jun 04, 2013 at 07:48:01 AM PDT

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      •  if you want to live... (2+ / 0-)
        Recommended by:
        FloridaSNMOM, high uintas

        you live at the bottom of what we consider livable in the west.  And then you still have to struggle to live.

        And we sail and we sail and we never see land, just the rum in the bottle and a pipe in my hand...

        by Mortifyd on Tue Jun 04, 2013 at 02:42:58 PM PDT

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