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View Diary: The conversation we should be having about private data (343 comments)

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  •  umbilical cord blood banks gone astray.../nt (1+ / 0-)
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    Odysseus
    •  Frozen eggs, frozen fertilizer embryos.... (6+ / 0-)

      Heck, your average blood bank. How hard would it be for them to take a tiny sample of blood for DNA testing, all without your knowledge? Or urine samples when you have a bladder infection or have to do a drug test for work.  For all we know, they are.

      That's the problem with this secrecy. Things we never thought to doubt are suddenly suspicious.

      I pay my home alarm company to know when I open my doors and windows. In fact, the standard home alarm system doesn't arm every single window. I paid extra for that.

      I felt the trade-off was worth it.

      When my husband and I saw Xfinity advertise how you can install interior cameras with Xfinity Home Security, we thought that was creepy. The trade-off wasn't worth it. Comcast knows what TV shows we watch, what movies we rent, and carries our Internet. It doesn't need to look around our home as well.

      But all this assumes prior knowledge and consent. The problem is that we just learned knowledge and consent for much of this data-gathering never existed.

      So we're left to ask, what else is there that we don't know?

      © grover


      So if you get hit by a bus tonight, would you be satisfied with how you spent today, your last day on earth? Live like tomorrow is never guaranteed, because it's not. -- Me.

      by grover on Wed Jun 12, 2013 at 11:56:01 AM PDT

      [ Parent ]

      •  How easy is it? Jusk ask the Havasupai! (3+ / 0-)
        Recommended by:
        grover, hooper, 417els

        They volunteered their blood for a specific kind of research. It was "diverted" (try "stolen", it's more accurate) for other kinds of research that they hadn't agreed to, known about, and would not have agreed to had they been asked. Of course, they were never asked! The tribe sued, of course, when they found out about it, and they won.

        We won't win.

        Organ donors save lives! A donor's kidney gave me my life back on 02/18/11; he lives on in me. Please talk with your family about your wish to donate.

        Why are war casualty counts "American troops" and "others" but never "human beings"?

        by Kitsap River on Wed Jun 12, 2013 at 05:58:45 PM PDT

        [ Parent ]

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