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View Diary: Top Comments 7/6/13: And Now For Something Light and Fluffy ... (154 comments)

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  •  She had a scratch test a few years ago (1+ / 0-)
    Recommended by:
    emeraldmaiden

    which turned up nothing. Her Pulmonologist and pediatrician both felt her breathing difficulties seemed more like allergies than her CF, so we retested. Scratch tests still came up negative, so the allergist injected into her arm -- and that worked. Trees, weeds, dust mites. So I think we'll be doing the injection for corn.

    And if that shows nothing, her gastroenterologist wants to do an elimination diet after doing an endoscopy (looking for celiac, GERD and/or Congenital Sucrose Isomaltase Defiency).

    She's complicated...

    First the thing is impossible, then improbable, then unsatisfactorily achieved, then quietly improved, until one day it is actual and uncontroversial. ... It starts off impossible and it ends up done. - Adam Gopnik

    by theKgirls on Sat Jul 06, 2013 at 08:20:28 PM PDT

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    •  Poor kid (1+ / 0-)
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      theKgirls

      but I'll bet she takes it mostly in stride. How bad is her CF? I have an online friend who had a lung transplant a year ago due to hers - she's in her mid-20's, IIRC. She is doing quite well, and was amazed at how different it felt to breathe with healthy lungs.

      •  She mostly takes things in stride... (1+ / 0-)
        Recommended by:
        emeraldmaiden

        She's rebelling against taking her medication, three pills everytime she eats. Thankfully -- very, very thankfully, her illness is limited to her pancreas. A small percentage of people with CF only have pancreatic issues, so I'm hopeful. And she's being followed by a Pulmonologist regularly just in case...

        First the thing is impossible, then improbable, then unsatisfactorily achieved, then quietly improved, until one day it is actual and uncontroversial. ... It starts off impossible and it ends up done. - Adam Gopnik

        by theKgirls on Sat Jul 06, 2013 at 08:42:33 PM PDT

        [ Parent ]

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