Skip to main content

View Diary: Butterfly Woman: Food-like products are making us sick. (116 comments)

Comment Preferences

  •  For true celiacs (and those with sensitivities) (4+ / 0-)

    the gluten fad is both a gift and a curse.

    I'm staying with friends in the States while I try to heal from the terrific damage caused by years of living with the condition undiagnosed and they truly do not understand why I refuse to eat in restaurants even if there is a 'gluten free' menu available. How do I know if the cook washed his hands before wrapping my food in tin foil? What surface was the food sitting on before during the prep process? Was anything containing gluten being prepped near by? Is the residue from a previous order's crouton still on the salad maker's hands? The risk is just too high for me.

    The truth is that many who think they are 'gluten free', aren't. The stuff hides EVERYWHERE.

    I also get an autoimmune reaction to the protein in corn (not uncommon for celiacs) and it is even more difficult to eliminate than gluten.

    I was so happy when I discovered that Rice Chex was truly gluten free. My happiness ended however when blisters broke out all over my tongue after eating. There is a theory on some celiac web forums that the BHT preservative used is the problem. Sigh.

    •  I am so sorry (4+ / 0-)
      Recommended by:
      ExpatGirl, rb137, Cassandra Waites, JaxDem

      I know that that disease can be hell. Like I said above I have my own digestive issues. I have autoimmune problems along with problems left over from a butcher job of a gastric bypass in 1980.

      I get really sick periodically, really really sick and it doesn't mellow out for weeks. My Drs were convinced it was celiacs, but no. Not classic Crohn's either. They believe that it's an inflammation that starts quietly and then spreads thru the whole system.

      I keep losing weight because I can't make up what I lose when I'm sick. When this first started I weighed 132 on a 5'3" frame, I'm now down to 117 and going thru another bout of the sick again. It's not good for me, I'm freezing all the time because I have no body fat and my bones are bad.

      I totally sympathize with anyone who suffers from one of these kinds of illnesses.

      And daddy won't you take me back to Muhlenberg County Down by the Green River where Paradise lay. Well, I'm sorry my son, but you're too late in asking Mister Peabody's coal train has hauled it away. John Prine

      by high uintas on Fri Oct 25, 2013 at 08:08:58 AM PDT

      [ Parent ]

      •  Ugh! I'm with you in spirit! (3+ / 0-)
        Recommended by:
        rb137, high uintas, JaxDem

        I lose weeks of my life when I get poisoned and am just coming out of an episode now.

        When I first accepted that something chronic and progressive was wrong (in April) I wrote a diary about it to vent my frustration. My self-diagnosis of possible thyroid disease was all wrong but the responses were really interesting and I've just gone back to reread. I think FlowerFarmer got it right when she pinned it to leaky gut syndrome. Did the autoimmune disease cause the leaky gut or vice versa? Who knows.

        I've thought about starting an autoimmune disease group on Kos from time to time. I always learn so much from the experiences others share here!

        •  I just breezed thru your diary (2+ / 0-)
          Recommended by:
          rb137, JaxDem

          and as soon as I have time to do it justice I'll really read it. So many things you described happened to me or happens to me.

          My first brush with my ongoing mess was in '71 when one of my eyes stopped moving. It was very painful and I was diagnosed w/MS. After a decade they decided it wasn't MS but Graves. It wasn't that either, still don't know. I have no peripheral vision as a result of it.

          Later I tested positive for scleroderma, don't have that. But, I await another scary ass diagnosis at any time. Thankfully my Dr. is sensitive to what is happening to me and doesn't freak out if I test positive to something odd because she knows the next time I won't.

          I have so much to do right now that I gotta run, but I will get back to reading your diary. Like you I learn a lot from reading what others are dealing with.

          And daddy won't you take me back to Muhlenberg County Down by the Green River where Paradise lay. Well, I'm sorry my son, but you're too late in asking Mister Peabody's coal train has hauled it away. John Prine

          by high uintas on Fri Oct 25, 2013 at 09:35:43 AM PDT

          [ Parent ]

          •  Feel free to contact me directly if you want (3+ / 0-)
            Recommended by:
            rb137, JaxDem, high uintas

            to crosscheck any symptoms I didn't list. Costochondritis, for example, or neuropathy/meralgia paresthetica, severe bone pain (from malnutrition), arthritis flares, etc. No question is too personal.

            I can tell you that every single symptom began to resolve once ALL gluten and corn derivatives were removed from my life. This extends beyond food to soaps, hair products, cosmetics, shampoos, dog food, etc. I'm back in a gluten-filled environment at the moment and the impact on my health is noticeable.

Subscribe or Donate to support Daily Kos.

Click here for the mobile view of the site