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View Diary: Doug Sanders, please talk to my daughter Kyla (19 comments)

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  •  I think you hit the nail on the head- (1+ / 0-)
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    it's the inclusion of the entire spectrum that makes Wright's description so offensive to many.
    When my son was diagnosed in 1970, there was no spectrum designation. And trust me, to get a diagnosis in those days, the child had to be at the most extreme end of what we now call the spectrum. Every word Wright said would apply to our son and our family in those days- we often went days at a time with no sleep at all. (And we all, including my other kids, have the sleep disorders to prove it).

    My granddaughter, on the other hand, is so high-functioning that most people who don't know her well think she's just shy, if they notice anything at all. Her diagnosis is shared on a need-to-know basis at this point, with selected staff at her school and with trusted family and friends.

    She doesn't know about it yet- and that is very much against our policy of being forthright with kids. We're trying to figure out the best way to talk to her about it without scaring her- and statements like Wright's make that more difficult.

    But it's not all Wright's fault. We should be smarter about diagnosis and labels. A system that will make my granddaughter think "I have what Uncle David has" is a ridiculous system.

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