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View Diary: 15 Months in Virtual Charter Hell: A Teacher's Tale (99 comments)

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  •  Arrrgh this pisses me off!!! (30+ / 0-)

    Today was my first day back in the classroom since December 18th and it was a really long day. I takes a lot out of kids and teachers to return to the real world of school after a long winter break. I am tired, some of my classes were not mentally there which means kids were squirrelly, I have planning to do and all I want to do is go to sleep….AFTER I wring these peoples necks.

    W. T. F. ??????

    This should be illegal.

    If I say that enough times will it come true?

    Ken, thanks for bringing this to our attention because it really is important. I forgive you the level of irritation irritation it brings me.

    •  I hope it's not (0+ / 0-)

      If someone outlaws our charter virtual school, then my special needs child will have nowhere else to go, and I and my husband, who have full-time jobs, will have to figure out how to home-school our child.

      It's not a choice.  It's a necessity.

      Most of us with special needs children are invisible to you and to the public, and it seems like an easy choice to just ignore us and leave us with no options, and let us just drop off the radar, and home school, and deal with our difficult, inconvenient, messy problems ourselves, and not bother the public with our expensive and difficult needs.

      Thank GOD for charter virtual school.  It is the only thing that kept us in the public school system.

      My daughter has primary juvenile fibromyalgia, which has many of the symptoms of chronic fatigue syndrome, and more.   In order to provide an appropriate educational environment, she needs to work at her own pace, take frequent rests, have high numbers of unpredictable absences, provide an environment which is appropriate for her sensory sensitivities -- ergonomic furniture, place to go lie down and rest, low lighting controlled by the student, texts on an e-reader because fibro eyes jump,  no crowded hallways because being bumped into can cause excruciating pain, no strong smells,  no loud noises, no bright lights, minimal breeze or an opportunity to put a blanket over your head, options for heating or cooling different parts of the body because the body can't regulate heat well, control over whether sitting or standing, because standing can cause syncope (fainting spells)...

      Need I go on?   Does that sound like a typical school to you?

      IEP's are a joke to families like ours.   How can you write an IEP to basically redesign the entire school system to fit your needs.

      There are some kids that need to learn at home.   Period.

      •  None of the ire here is aimed at situations (1+ / 0-)
        Recommended by:
        travelerxxx

        like yours. The anger is aimed at the average student being pushed toward such alternatives as "just as good as regular school" when it is most emphatically not.

        "Nothing happens unless first a dream. " ~ Carl Sandburg

        by davewill on Wed Jan 08, 2014 at 09:40:02 AM PST

        [ Parent ]

        •  I wasn't pushed (0+ / 0-)

          In fact, I had no idea it existed.  I only found it, when I was forced to look for some alternative.   You have no idea how reluctant we really were to leave public school, and I found that to be the case with almost all the other parents that I spoke to.

      •  DFWmom (0+ / 0-)

        DFWmom,

        Your daughter exhibits classic symptoms of lyme disease and or/bartonella infection. Especially bartonella. It's a common bacterial infection that most cats carry {and fleas and ticks} and it's easily passed through contact. Those with compromised immune systems can get quite severe symptoms from it. It can also cause immune dysfunction. Your daughters symptoms are textbook bartonella.

        Many studies are underway regarding bartonella and it's many strains. It's often mistakenly diagnosed as Fibro, CFS, etc. Years ago my son's symptoms were identical to your daughters and we eventually found out it was lyme, bartonella and babesia. All from a tick bite when he was five years old. He did a prolonged antibiotic regimen and today lives quite normally and pain-free.

        Galaxy Labs in North Carolina is the foremost authority on bartonella in the nation. The website www.ilads.org can direct you to doctor's that specialize in treating these infections. The foremost lab for lyme testing is www.igenix.com. Other testing is very inaccurate.

        All the best,

        •  That is true (0+ / 0-)

          I have investigated Lyme disease, as well as other similar diseases, such as ME, CFS, etc.   Her condition is classified in a group of diseases referred to as neuro-immune disease and there are many that have similarities in symptoms.  Her paternal aunt,and paternal grandmother were also diagnosed with fibromyalgia, so it seems very likely that the disease has been inherited in her case.   There are also symptoms of sensory sensitivity in at least a couple of close relatives on the maternal side as well, so, unfortunately, genetically speaking, she got a genetic double whammy of screwed up nervous system.

          I do appreciate the tip.   It would be very cool if it was Lyme, because there are treatments for that, even though it's still a tough road.

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