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View Diary: Epilepsy Awareness- What is a Seizure Like? (131 comments)

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  •  10 (10+ / 0-)

    It was my 10th birthday and my dad was putting together my new bike. I was helping him, giving him the tool he needed and whatnot. He asked for something and I didn't respond. He called my name several times and I didn't do anything. Finally I snapped out of it and did what he wanted.

    He told my mom about it and she was somewhat familiar with the symptoms due to a graduate class she had taken for her masters in special education. We were off to the doctor soon and got the referral to the neurologist.

    I never was allowed to ride my bike on the street. Only in cul-de-sacs and gravel driveways. I had to walk it down the main road until I could get it back to my gravel driveway.

    •  There must be a spectrum (4+ / 0-)
      Recommended by:
      koNko, JVolvo, Dave in Northridge, otto

      of manifestations related to epilepsy, then, that I, as a non-sufferer, have been ignorant of all of my 50+ years. That surely must make diagnosis difficult, not to mention the sporadic nature of seizure onsets.

      I appreciate very much the diary and the comments I have seen to date and I apologize for being previously ignorant of what sufferers must go through on a daily, hourly basis. I'm sorely tempted to throw in a snarky "Hey, free trip, eh" line but I am sure those unbidden excursions from the world are not at all welcome.

      I had no idea...

      "It may be true that the law cannot make a man love me, but it can keep him from lynching me, and I think that's pretty important." Martin Luther King Jr.

      by Arabiflora on Mon Mar 17, 2014 at 10:51:36 PM PDT

      [ Parent ]

      •  It can be difficult to diagnose (5+ / 0-)

        Probably what has improved the situation is the greater availability of cheap diagnostic equipment and a better recognition in the medical profession that some symptoms merit a closer look, but it's true that some of the symptoms such as disorientation are common for a myriad of conditions.

        So in many cases including my own and others described here, until you exhibit more serious symptoms, it goes unnoticed.

        Some forms of epilepsy peak in the period from mid-adolescence to mid/late 20s (such as mine) and the severity and frequency becomes more obvious then. When I was 17 I had my first known Tonic-Colonic seizure, which is kind of difficult to ignore, but once diagnosed, as I learned the symptoms, I immediately knew I had some symptoms quite frequently in childhood but never thought anything was wrong - it was that frequent.

        So those unfamiliar can be excused for not recognizing what is going on in someone else's head without obvious outward signs.

        The other thing is, epileptics seldom broadcast their condition to the world at large because of general ignorance and prejudice, and a desire to be treated as normal (which in turn, becomes self-reinforcing of the problem).

        The fact that we can't totally control this makes us want to control the terms of engagement, so to speak. "Im OK!"

        So this discussion may be a little window into this experience.

        I'm pretty certain you know or have met some people who are epileptics that you would never suspect, because it's under control and/or their little secret.

        It's kind of like buying a red car: until you do, they are just part of the traffic; after you do, suddenly they are everywhere.

        No one is coming to save us, the future is in our hands.

        by koNko on Tue Mar 18, 2014 at 03:31:51 AM PDT

        [ Parent ]

      •  I learn new stuff (1+ / 0-)
        Recommended by:
        otto

        about this all the time! Just in the last few months I've heard the term "the epilepsies" because there are just so many types. The kind that the CBD oil is so very effective for in kids is called Dravet syndrome, and it's just incredibly devastating. No comparison to the little blinkouts I had when I was young.

        I'm very thankful for this diary and the comments. We're all learning new things.

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