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View Diary: Epilepsy Awareness- What is a Seizure Like? (131 comments)

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  •  An interesting factoid about brain waves&epilepsy: (4+ / 0-)
    Recommended by:
    otto, oslyn7, No Exit, outragedinSF

    About 30 years ago I saw a documentary on the brain... (it was a 10 Part mini-Series on NOVA on "The Brain" ... a fascinating series if you can find it).... anyway, in one of the segments, they were comparing:

    (a) the pattern of a "healthy" brainwave,
    to...
    (b1) the pattern of a "healthy" heartbeat,
    to...
    (b2) the pattern of an "unhealthy" heartbeat,
    to...
    (c1) the pattern of an epileptic's brainwaves (normal),
    to...
    (c2) the pattern of an epileptic's brainwaves (during seizure),

    and what they found was the following:

    (a) a healthy brainwave
    is erratic,
    (not excessively so, but it is NOT like the "healthy" heart beat)

    compared to:
    (b1) a "healthy" heart beat,
    which is even & steady,

    compared to:
    (b2) an "unhealthy" heartbeat,
    which is erratic,

    compared to:
    (c1) the pattern of an epileptic's brainwaves (normal),
    which is even & steady,

    compared to:
    (c2) the pattern of an epileptic's brainwaves (during seizure),
    which is explosively erratic
    (ie: we're talking OFF THE CHARTS erratic.)

    In other words, there seems to be sort of a balancing YIN/YANG dynamic in our brainwaves, which epileptics' have out of sink.... out of balance. It seemed as if the "slightly" erratic nature of a "healthy" brainwave served as sort of a "pressure relief valve" whereas, since epileptics' brainwaves are "steady & even" (ie: "too constricted" or "too rigid") they do not have the "pressure relief valve" and so when too much "erratic" energy builds up..... as soon as some sort of stimuli pushes it over the limit... wham... the brainwaves explode like the pent up damn breaking... or a volcano erupting.

    Anyway. I also wanted to share this:

    I had a dear close friend when I was a teenager who had epilepsy. He was Colombian. His name was Tyro (but the T is pronounced like a "D" ... ie: "Dryo") ... I have been with him during several seizures.... He passed away when I as 14.... he was several years older than I ... His death might have been related to his epilepsy.... they found him drowned in the East River of NYC. He died during the seizure, but they were not sure if he had the seizure first, and then fell into the water and drowned, or if he was pushed into the East river and then the seizure hit. Tyro was gay... and slightly effeminate ... and that was a harsh time for gays in NYC ... and Tyro might have been selling sex for money, etc... It was a dark time. Also, when Tyro had seizure, he wouldn't fall or shake so much.... rather, his entire face and eyes would contort, as if he were glaring at you .... but if you looked close, his eyes would be fluttering in the back of his eyelids.... and his hands would clench in a fist ..... In other words, if you didn't know better, you might think it was some sort of a threatening challenge.

    hmmm... I've been wanting to write a diary about Tyro for a long time... as a tribute.  

    I always found that fascinating and wondered if this dynamic might be a key to curing epilepsy, without a life long dependence on a drug.

    * * * DONATE/VOLUNTEER: Marianne Williamson for CA-33 * * * #CampaignFinanceReform is the lynchpin of our democracy. #AIKIDOPROVERBMoveSoonerNotFaster ~

    by ArthurPoet on Mon Mar 17, 2014 at 11:05:13 AM PDT

    •  And thank you for sharing such a personal glimpse (3+ / 0-)
      Recommended by:
      otto, oslyn7, No Exit

      into your experiences with epilepsy.

      * * * DONATE/VOLUNTEER: Marianne Williamson for CA-33 * * * #CampaignFinanceReform is the lynchpin of our democracy. #AIKIDOPROVERBMoveSoonerNotFaster ~

      by ArthurPoet on Mon Mar 17, 2014 at 11:06:25 AM PDT

      [ Parent ]

    •  There is an electrical counterbalance (2+ / 0-)
      Recommended by:
      No Exit, ArthurPoet

      I know that nerve stimulators are installed in order to be able to deliver an electrical impulse to counteract the growing erratic wave patterns.  

      I have been meaning to look into the advances in those to see if they apply to me, yet.

      There are some tutorials on youtube for how to read an eeg.  They introduce strobing to produce the expected effect, and then they look for the waves against the background.  something like that.

      it's that they are able to identify the consistent waves of the epileptic against the erratic responses to the strobing.

      I think that's roughly how it works.

      Streichholzschächtelchen

      by otto on Mon Mar 17, 2014 at 11:30:15 AM PDT

      [ Parent ]

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