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View Diary: Epilepsy Awareness- What is a Seizure Like? (131 comments)

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  •  It can be difficult to diagnose (5+ / 0-)

    Probably what has improved the situation is the greater availability of cheap diagnostic equipment and a better recognition in the medical profession that some symptoms merit a closer look, but it's true that some of the symptoms such as disorientation are common for a myriad of conditions.

    So in many cases including my own and others described here, until you exhibit more serious symptoms, it goes unnoticed.

    Some forms of epilepsy peak in the period from mid-adolescence to mid/late 20s (such as mine) and the severity and frequency becomes more obvious then. When I was 17 I had my first known Tonic-Colonic seizure, which is kind of difficult to ignore, but once diagnosed, as I learned the symptoms, I immediately knew I had some symptoms quite frequently in childhood but never thought anything was wrong - it was that frequent.

    So those unfamiliar can be excused for not recognizing what is going on in someone else's head without obvious outward signs.

    The other thing is, epileptics seldom broadcast their condition to the world at large because of general ignorance and prejudice, and a desire to be treated as normal (which in turn, becomes self-reinforcing of the problem).

    The fact that we can't totally control this makes us want to control the terms of engagement, so to speak. "Im OK!"

    So this discussion may be a little window into this experience.

    I'm pretty certain you know or have met some people who are epileptics that you would never suspect, because it's under control and/or their little secret.

    It's kind of like buying a red car: until you do, they are just part of the traffic; after you do, suddenly they are everywhere.

    No one is coming to save us, the future is in our hands.

    by koNko on Tue Mar 18, 2014 at 03:31:51 AM PDT

    [ Parent ]

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