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View Diary: Monday Night Cancer Club: When the Worst Happens (103 comments)

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  •  Good information to know (2+ / 0-)
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    peregrine kate, ZenTrainer

    thank you for sharing your knowledge about Xolair.  I will keep that in my hip pocket for the future, just in case the need arises for me.  I have had a rocky course of treatment and response to treatment for lung cancer in my left lung over the past 2 years.

     I have been in remission for over a year. I recognize that since I had 2 bouts of pneumonia in the last 20 months,   I have to be hyper-vigilant for infectious diseases until I can put more calender than just the past 11 months between me and my last pneumonia hospitalization.

    Life is not a problem to be solved but an adventure to be experienced.

    by DarkHawk98 on Tue Apr 15, 2014 at 07:13:29 PM PDT

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    •  The first year was the hardest for me, too (2+ / 0-)
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      peregrine kate, ZenTrainer

      I hope it keeps getting easier for you.  Congratulations on being cancer free for over a year.

      There is a simple blood test that can be used to determine if Xolair might help.  They can check your IGA level which indicates if your lungs are overly immune responsive.  This is common in people with asthma.  After what you went through, even if you didn't have this type of over-active immune response in your lungs, I suppose it is possible that you could now.

      Lungs are so important and can be so fragile.  But you can definitely bring them back to strong function.  My husband did - through a combination of support from his doctor and gradually doing more exercise to build them up.  Now he can hike up mountains and feel great doing it.  Anyone who didn't know his history would never even suspect he'd been a 98 pound weakling - in and out of hospitals, etc.

      Understanding is limited by perspective. Perspective is limited by experience. America is a great place to live but it limits our ability to understand.

      by CindyV on Wed Apr 16, 2014 at 09:01:51 AM PDT

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      •  I too have been (1+ / 0-)
        Recommended by:
        peregrine kate

        slowly increasing my level of exercise and staying in close contact with my doctors.  I continue to make progress with my fitness levels but I get impatient, I keep remembering what my abilities were BEFORE cancer, memories of hiking to the top of Mt. San Jacinto (2nd tallest peak in socal) above Palm Springs and Mt. San Antonio (3rd tallest peak in socal) above Glendora, in Southern California.  

        silly brain I know.  LOL

        Life is not a problem to be solved but an adventure to be experienced.

        by DarkHawk98 on Mon Apr 21, 2014 at 08:33:37 AM PDT

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        •  What a coincidence (1+ / 0-)
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          peregrine kate

          I grew up in the Palm Springs area so I know Mt San Jacinto well.

          Anyway, I know the feeling of impatience and remembering where you used to be.  It took much longer than I expected to get back to "normal".  But worth the wait/effort.

          Sounds like you're definitely on the right track.  So glad for you!

          Understanding is limited by perspective. Perspective is limited by experience. America is a great place to live but it limits our ability to understand.

          by CindyV on Mon Apr 21, 2014 at 10:30:19 AM PDT

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