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    •  it is ironic isn't it? (77+ / 0-)

      As is the fact that I was divorcing when diagnosed, covered at the time by my now ex-husband's insurance, working for a small non-profit myself that did not offer insurance at the time: and was strongly advised by everyone from the hospital's financial counselors to my own attorney to give up every asset to the ex, take on all joint financial obligations, and never, ever, consider going to work for an employer who offers insurance: because the bean-counters would soon discover the burden to the company in "surcharges" and "adjustments" would far outweigh my worth as an employee - so they would find "cause" to fire me.  

      Two or three of those experiences and you are not just uninsurable, you are also unemployable.

      Sort of the perfect storm of health-care-system irony.

    •  Actually it's not EXTRA ordinary (37+ / 0-)

      It is all too ordinary.  There are millions of cancer survivors in this country.  How insurable are they? Or anyone who has ever had a serious illness?

      And what happens when someone does get sick.

      I have a bone lesion that almost everyone thought would be malignant and a death sentence.  Sure I would have been covered up to my death through my husband's small business - but one of my biggest worries was that if I had cancer, and if I died, my husband's small business's health insurance history would be so bad due to my expenses that their preimiums would go through the roof and his business would no longer be able to provide health insurance for their employees and that 12 families would lose coverage b/c I got sick.  Just one more thing to worry about while waiting for the test results.

      With the current sytem you'd have to be nuts to be tested to see if you have carry a gene for cancer or any other disease - you'd be uninsurable.  You'd have to be nuts to pursue a diagnosis for a disease for which there is no effective treatment or cure - just management of symptoms - you'd be uninsurable.  What happens to folks who get sick with something like MS or cancer and have to quit work.  What happens to their coverage after COBRA ends?

      With the current system having health insurance is NO COMFORT.  There is no guarantee that it will be there when you need it, or that it will not be cancelled or taken away.  It is really just a scam.

      If you want something other than the obvious to happen - you've got to do something other than the obvious...Douglas Adams

      by trillian on Tue Jan 23, 2007 at 07:04:25 AM PDT

      [ Parent ]

      •  you are right (18+ / 0-)

        The only really effective way to get access and keep it under the current system is to never get sick and actually need access.

      •  What are you talking about? (35+ / 0-)

        I'm over 50 and I only pay $269/month with a $10,000 deductible, can only get sick on the third Tuesday of the 7th month of leap year on the southern tip of Mongolia where there is no transportation to any expensive modern hospitals.

        It's a terrific policy. Anyone can buy one. Call Joe's Health Insurance and Pawn Shop. Pawn your shit to get insurance.  (/snark)

        Seriously, I have never gotten sick ever. Never made a claim ever. I'm scared to get a check up because if they do find something, my rates with take a moonshot and I can't afford it. Better to use it in an emergency or for an illness where's it possible to recover, extend treatment out as long as possible, and then wait until medicare or death. I can stop working and see if I can get medicaid.  We do have some state insurance plans, and I plan to check into it, but being self-employed and getting health insurance even if you've never been sick is huge.

        A friend of mine is 59 and had a triple by-pass. His wife had a knee operation and now his monthly premiums are $2500. But if they are late 1 day past any grace period in the policy, they'll be dropped like a rock and they won't be able to find insurance.

        Watching Lou Dobbs one night: Dobbs was talking about the health care system with a pretty smart Doc. Dobbs said "We have the finest health Care in the world but very few can get access to it ( Paraphrased). The Doc responded; "Lou, your a little bit off; we no longer have the greatest health care system in the world. It's not even in the top ten and we still can't afford it.

        I think people still operate under the assumption that we do have the greatest health care system in the world, it's just the price is out of reach.

        Wrong.

        We are paying out the nose for access to second rate care. If something major was wrong, I would have no qualms about going out of the country to get treated and paying cash. It would be 10-20% of what it costs here and my Health Insurance company wouldn't get a claim.

        Support Col Hackworth's because tomorrow is just a promise, not a guarantee

        by Dburn on Tue Jan 23, 2007 at 07:52:18 AM PDT

        [ Parent ]

        •  Oh My (20+ / 0-)

          I'm scared to get a check up because if they do find something, my rates with take a moonshot and I can't afford it.

          Should have thought of this.  So now we can add "underutilization of primary care by essentially healthy people that could prevent bigger problems out of paralyzing fear" to "underinsured" eh?

          And I bet there are a lot of people with coverage who see it this way - it just never occurred to me.

          Is there really any way this system could be any more screwed up?

          •  I am insured but my sick husband isn't. (10+ / 0-)

            I am insured through my college. If I wasn't a full-time student, I would not have been covered. At 43, I'm too fucking old. My husband's 54, and has just been diagnosed with Multiple Myeloma. I couldn't have added him to my policy if I wanted to: he's too old. And if we could, and he fell ill while insured by the college's insurer, we would have had to pay 10% of all the costs he incurred while they were figuring out what he had anyway. In a weird way, being destitute and a candidate for MediCal is better than being insured in his case.

            I had to wait 6 months to be covered for the blood pressure meds I'm on, and I have to do my birth control through FamilyPACT which is a special service in California because it's not covered by the college's insurance. The fact that I don't get my insurance through an employer and it's paid for by student loans (oww my aching bunghole) means I still get my mental health services through the County.

            We are through the looking glass with health care in America. We are OVERDUE for single-payer here.

            I did a diary asking Canadian and European Kossacks to talk about their health care experiences on Sunday. It was really interesting if 100% statistically invalid.

            http://www.dailykos.com/...

            It's already expired, but it's still quite interesting.

            New frame: they aren't pro-life, they are advocates of forced childbearing.
            "The two Americas are the very rich and everybody else." -- J. Edwards

            by Snakes on a White House on Tue Jan 23, 2007 at 08:38:24 AM PDT

            [ Parent ]

            •  Statistically invalid (5+ / 0-)

              Yeah.  But still...

              As Twain observed, there are lies, damned lies and statistics.  We get screwed over with carefully crafted statistics all the time.  

              We're urged not to listen to non-statistical evidence (and sometimes, with good reason).

              But it's easy as hell to find Americans without health care coverage.  It's easy as hell to find Americans with it who are terrified of losing it AND dissatisfied with it.

              It's hard to find that many Canadians and Europeans as upset with theirs.  After all, they have it.  Sure, it's not perfect (nothing is).  But they have it, it works, the statistics show that people are generally very happy with it, and they're not living in fear of losing their health care, and then losing everything they own because of an illness, and then being unable to file bankruptcy.

              We need not think alike to love alike -- Ferenc Dávid

              by ogre on Tue Jan 23, 2007 at 09:21:04 AM PDT

              [ Parent ]

          •  That's me. (9+ / 0-)

            I just got laid off last week, so I don't really know where I am (literally and figuratively).

            But I HAD pretty good insurance. My sister is a Nurse Practitioner and she looked over it for me once and was amazed at the coverage. It even covered mental health and elective abortions! (It was an international company that is more enlightened than most.) But I was afraid to use it for fear I still couldn't afford it for even simple things.

            I had a problem with one of my knees a while back and I am still paying for the MRI to tell me that there really wasn't anything they could do except put me on meds (VIOXX!) forever. I also got a good screwing over by the doctor and insurance company in what can only be described as a scam on their parts. They got me in to the office and performed procedures knowing full well what insurance I had, then when they billed it, I got some cockamamie story about their insurance person forgetting to pay the bills for my company and their agreement lapsed, so even though I had coverage they couldn't take it and now I'm liable for everything.

            So I never went to the doctor for anything ever again -- even when I was really sick with the flu. I might have be able to afford the co-pays for visits and meds, but I couldn't have paid all the extra charges for tests and things they tack on all the time and think nothing of it. So even though I had pretty good insurance, I haven't had a check up or a well-woman exam in almost 5 years. Who knows what's going wrong inside me?

            And now it really doesn't matter anyway -- my insurance went away when my job did.

            I wish I could marry a Canadian.

            •  I almost moved to Canada (1+ / 0-)

              Recommended by:
              Nina

              at one point right after my cobra expired.  I had a horrible job-offer, but considered it very seriously anyway, as a Canadian friend informed me you are covered whether a citizen or not the second you cross the border.  But I had kids in high school and college and just couldn't afford to go.

            •  You should be able to get COBRA (0+ / 0-)

              Fed law says the employer has to let you continue your health insurance for a limited period after layoff, if you pay the premiums yourself.  Check with the HR dept.  This might be the only way you can get insurance if you have a pre-existing condition.

          •  Exactly (0+ / 0-)

            I had health Insurance in the 90s and had to take meds that were running around $300 a month. They raised rates relentlessly to cover the costs ( you will pay for those meds one way or the other). I missed a bill, and was a day late past the grace period. I was immediately canceled. No appeal. Bye , you're history.

            I was able to get a short term major medical policy with company that filed for bankruptcy, 1 month after I canceled. Gee Guys, sorry. That missed premium must have hurt. Seriously, Imagine if something happened.

            Then I slowly jumped from a crappy policy to a less crappy policy until I got to just a crap policy. I manage my health care. I take my BP at home and send out for Cholesterol exams. I try to keep the numbers below optimal. I beat down 250 Total Cholesterol by taking massive amount of Niacin , exercise and diet to  a total of 137. I haven't had a a triglyceride reading for awhile. But I feel like I'm in ok shape for an old fart. My weight is at college level-thin. I don't smoke or drink.

            The drugs that I was on I could no longer afford so I researched the equivalents and told the Doc here's what I want. Got the generics and get em from Costco  for $18.00 a month. The same drugs sell for $560 ( 90 day supply) at Wal Greens.

            Folks if you are using your health Insurance cards and getting your drugs for low co-pays at that convenient corner chain drug store you are part of the problem because they are marking drugs up 2000% - except for patented drugs- and making a bloody fortune because they know people only care about their co-pay and if they have to take 5 minutes out of their day to pick up a script.

            The Insurance company gets the bill and they keep jacking their rates up. Until they get so high you get informed at your jobs that your coverage has either been discontinued , you have been laid off or you get a choice to pay a monster rate or do without.

            The Insurance problem isn't all the Insurance companies. Its the Pharmacies, it's the people who don't bother to price drugs out until they finally are faced with the prospect of not having a copay. Then they become some real mean shoppers like I am.

            It's the Doctors who prescribe expensive patent protected drugs becuase the drug rep just filled up his tank with gas and it's patients who don't ask their doctors for equivalents and insist on buying the cool new advertised overpriced re-patented drug that was re-labeled and got a cool new color and the price went up 200% after they paid the generic company a few hundred mil to hold off for 3 or 4 years.

            I don't know what the percentage of the overall health care bill is occupied by drugs, but based on personal experience I have a feeling insurance rates would become more affordable if drug companies, doctors, patients and pharmacies weren't confident that insurance companies would be covering the bill.

            One of the many ways of bringing drug prices down is  to stop listening to that R&D bullshit from the drug companies. Give them short hard and fast patents and regulate the fuck out of them. Then move on to all the other offenders.

            We all share a bit of blame for the sad state of our system. It would be nice to blame it all on the Insurance companies - sure they deserve some- but it's way past time that we start taking a holistic look ( no pun intended) at the whole system that keeps those rates rising relentlessly until no one can afford it. Ask an insurance company what would happen if they discontinued Health insurance and I don't think you would see too many tears.

            Consider this- The Insurance rep who sold me the current policy doesn't get her first commission for the sale for one year. If I turned in a bunch of claims I imagine they would find a way of cutting it down to 0

            Until Costco was able to get some of the ones I needed, I was getting them from Canada.

            Support Col Hackworth's because tomorrow is just a promise, not a guarantee

            by Dburn on Tue Jan 23, 2007 at 09:15:18 PM PDT

            [ Parent ]

      •  so true (3+ / 0-)

        Recommended by:
        Nina, emeraldmaiden, kurt

        I had a skin lesion that at first thought was cancer.  My first reaction was not oh my god I hope I live; it was oh my god I hope my insurance doesn't drop me.  How sick is that?

    •  We should print out all these stories... (6+ / 0-)

      ...and put them on Bush's desk.

      In TX-32, track the voting record of Pete Sessions at SessionsWatch.

      by CoolOnion on Tue Jan 23, 2007 at 07:12:30 AM PDT

      [ Parent ]

    •  For-profit insurance is a scam (15+ / 0-)

      You can only get it if the insurance companies don't think you're going to need it. Look at what's happening to home owners in coastal areas -- they can't get insurance either.

      What people need is health care, not insurance.

    •  It doesn't have to be cancer ... (8+ / 0-)

      A friend stopped taking her antidepressant because she didn't like how it made her feel.  Instead of consulting her doctor, who would have helped her taper the drug, she just stopped. A few days later, she had a seizure on the street and a bystander called an ambulance.  The ER set up a drug-tapering schedule and she has had no further problems.

      This person worked for a small (less than 15 people) business.  When their insurance came up for renewal, because of that seizure, their group rate went up so high the employer couldn't afford it. So -- in a truly nice gesture -- he gave everyone a raise equivalent to what he had been paying for their insurance the previous year and told them to buy individual insurance.  It worked out fine for everyone except my friend. She was uninsurable and had to change jobs (and take a cut in pay) so she could be covered.

      •  I'm reading these (12+ / 0-)

        "can't get health insurance" posts and thinking to myself "You guys are exaggerating". Not in the sense that you're overstating the case - you're making it appear that it takes something actually serious (cancer, seizure) to be denied coverage.

        When my daughter was less than a year old, we noticed one of her fat little legs was bigger around than the other, and occasionally she had little marks (hemangioma) appear on them. Being good parents we asked the doctor about it, and after seeing a specialist or two ended up at a pediatric surgeon. He ordered X-Rays of her legs with dye injections - it was a vascular condition.

        It turned out she has "Klippel-Trenaunay Syndrome", where basically one leg has a better blood supply than the other, so it gets bigger. Both legs are within normal range - they're just different. The end result is that there were no symptoms other than the difference in size - no pain, no effect on her gait or skeleton - and no treatments. We had letters from the doctors that said exactly that.

        But a year or so later, when we went to get health insurance because I quit my job and we were now both self-employed - my daughter was uninsurable, as we were informed by several companies. Fortunately, in WI the state has private carriers operate an insurance program for "high-risk" people, and so while my wife and I (both overweight smokers approaching our 40s at the time) could get cheap coverage, my daughter's insurance cost more than that for both of us.

        We eventually found another company who would cover her with a rider denying any coverage for anything related to her "condition".

        My daughter, now almost 20, has never had any treatment for her "condition" - it never stopped her from taking dancing lessons, gymnastics, playing volleyball, backpacking, and even playing rugby for a while last year. She just has one leg that's larger and you probably wouldn't even notice if you didn't know, but it's made her a "high-risk" person. I've told her to never mention it when she applies for insurance on her own.

        I have my fears, but they do not have me - Peter Gabriel

        by badger on Tue Jan 23, 2007 at 10:09:39 AM PDT

        [ Parent ]

        •  That is outrageous. (6+ / 0-)

          Recommended by:
          badger, tamens, Nina, ladybug53, kurt, ilex

          But you know, if she doesn't mention it and they find it in her old records, she could be cancelled for not disclosing it.

          The insurance companies get you coming and going.  Which is the point.  They're TRYING to "get you," not help you avoid financial disaster in case of illness.

        •  lying about her condition is the way to go (5+ / 0-)

          Recommended by:
          badger, tamens, Nina, kurt, ilex

          I'm normally not for dishonesty, but these idiot insurance companies deserve it.
          A few years back I was self-employed and was trying to buy health insurance.  Blue Cross denied me because I had had a sinus infection that past winter.  I was only 31 years old, not on any medication, totally healthy, never been hospitalized my whole life.  So you know what I did?  I called the next day, spoke to a different agent, lied about that sinus infection, and got a PPO for $200 per month.  

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