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in a more or less "factual" way. It is much harder to discuss the personal angle and how it has affected one family - my sister's family.
As for your statement that I referred to in my initial comment - "The same goes for arguments that it would be better to not be born with Down's Syndrome and have to deal with the stigmatization that implies."
This kind of got me in the gut. I'd parse it better, I know, if I were a bit more detached, less involved with the situation, and I would probably agree with you for the most part.
However. It's not just the stigmatization of having Down's that I see as the major problem - at least as it relates to my family.
It's the day-to-day life, the way that the future plays out, the downhill slide from beginning to end, the lack of resources - from within the family and from without, the never-ending realization that this is never going to get any better, any better, any better, the isolation that occurs no matter how hard everyone tries, the understanding that your child can never reach, never really have what they need, grasp a potential that you as a parent always hope for in your children, the subliminal guilt that something you've done, something in you has caused this to happen, no matter what science says, no matter how much or how little we know about DS.
I'll stop now. Suffice it to say that I think it's better not have been born with Down's.
See? I really am an "insensitive assaholic troll".
I don't think I'll be able to write a diary, I guess. I suspect I've said enough here.
"When Bigbad Shit come, no run scream hide. Try paint picture of it on wall. Drum to it. Sing to it. Dance to it. This give you handle on it." Kesey
by exmearden on Sun Feb 18, 2007 at 08:31:15 PM PDT
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wide narrow
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