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  •  Did they check for a gluten allergy? (3+ / 0-)
    Recommended by:
    sacrelicious, ladybug53, borkitekt

    The symptoms and physician-related experiences you've described seem to map on almost perfectly to what my sister went through for years until she started dating someone who had a gluten allergy, put two and two together, decided to have all real tests done, and low and behold, she was also allergic to gluten.  Adjusting her diet was and continues to be hellacious - the sheer number of food products that have wheat-based products both directly and indirectly is really quite stunning (for example, many spices can contain a wheat-based product to help prevent clumping).  And making sure to stay really fully gluten-free is a constant challenge. Not to mention the absence of good quality baked goods when you need comfort, well, that hasn't helped either.

    But, it made a huge difference - health, mood, ability to focus, heck, even her hair dramatically improved (from thin and flat to full and wavy which stunned everybody).  She's not out of the woods because that wasn't the whole ball of wax but wow was that huge and really helped her get a foothold on a life that was slipping away from her.  

    •  Yes. (2+ / 0-)
      Recommended by:
      ladybug53, borkitekt

      That was one of the many areas that we thought "hey, that could be it!".  Alas the allergist found no issues.

      There is no question that diet can have an enormous impact.  I've seen cases where children with perceived hyperactivity disorders turned out to have no more than milk allergies.  Her brother was actually one of them.

      •  Gluten allergy - false negatives rampant (2+ / 0-)
        Recommended by:
        ladybug53, borkitekt

        Zergle - I know you said your allergist tested for this.  I agree with StlInquirer that her symptoms totally sound like gluten intolerance.  Your wife can test negative for celiac and still be gluten intolerant.  Enterolab has a test which is more reliable.  Also, a gluten free diet, while difficult at first, is not impossibly so.  I had panic attacks, body pain, wierd reactions to chocolate, dairy, alcohol, was tired all the time, the list goes on and on.  A naturopath put me on an elimination diet, and after a few weeks, I improved.  After a little more than a year, I am a new person. I leave the house without medication or antianxiety meds all the time now, without a second thought.  Please, try a second opinion on the gluten.  It is one of the most commonly misdiagnosed/underdiagnosed illness in this country. Try the Enterolab test (google them or look on celiac.com's message board.  If this is her issue, it may take some time to heal and to be able to tolerate things like dairy and soy again, but it's worth a shot.  Best of luck.

      •  Does removing gluten from the diet (2+ / 0-)
        Recommended by:
        ladybug53, borkitekt

        help her symptoms? I'm not sure that the fibromyalgic response to gluten is literally an allergy; I don't remember whether celiac disease in primarily an allergic response. My fibro symptoms get much worse when I eat gluten foods; I discovered this when I was re-introducing carbs to my diet after low-carbing to lose the weight that my meds helped me put on. I don't know whether I have celiac disease -- I won't get tested because I suspect that if it's shown that I do, the insurance that (begrudgingly) pays for my fibro med bills will refuse to pay for anything.

        I think you said she's been on an elimination diet already, so you may have already tested this. But it's fairly common for gluten to be an issue with fibro. If you haven't already determined that it isn't, it might be worth doing.

        It's the Sausage Grinder of Snark: the Daily Show/Colbert Report spoiler (and chat) thread, Live at 11.

        by TiaRachel on Fri Jan 26, 2007 at 10:09:14 AM PST

        [ Parent ]

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