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View Diary: You Amaze Me... (189 comments)

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  •  I have had fibro and Chronic fatigue syndrome for (11+ / 0-)

    a decade now. I heard it all. But even after being diagnosed, some of my friends still struggle with understanding it because I do not look disabled in their eyes. They figure it is like the fatigue and aches and pains they suffer. It is far different. I describe it as

    Bone crushing fatigue.

    Fatigue so bad that there are times I must lie down as my head feels too heavy to sit up.

    Deep muscle aches and pains that are not joint related.

    Sleep disorder when I can never sleep for more than 3 hours at one time so thus I have to take several naps per day.

    Digestive problems that come and go and run the gamut.

    Difficulty concentrating especially when fatigue is high.  

    Mood swings

    and the list goes on.

    My spouse and my late parents were always so great in understanding it and supporting me. It took my sister a while but now she is quite good and understanding about my limitations. My best friend has been great from the beginning but some friends  cannot understand it and they think I am just being lazy or using excuses.

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