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View Diary: This is what losing your kidneys looks like (229 comments)

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  •  Wow (3+ / 0-)

    My thoughts are with you.  We all seem to have our battles.

    My mom just found out she has CKD (Chronic Kidney Disease) with a Glom rate of 35.  She knows this will probably shorten her life (I think she hoped to live to be 90, 85 and she will be one very lucky woman).

    Wow.  

    -6.13 -4.4 Where are you? Take the Test!!!

    by MarciaJ720 on Thu Jun 11, 2009 at 08:12:17 AM PDT

    •  You can live on dialysis (1+ / 0-)
      Recommended by:
      Charles CurtisStanley

      You can live on dialysis for quite a while, and if she researches and chooses a dialysis method that works best with her life rather than letting herself be steered to one of someone else's choosing, she'll be happier with it and probably more compliant with it as well.

      Home Dialysis Central is a great website to start researching all the methods available to her. They have info on pretty much everything including in-center dialysis, which some people do prefer. Then once she has some idea of what methods she wants to investigate further, she can start asking people who do them about the pros and cons. One thing I would highly recommend to her (or to you if she doesn't want to do it herself) is to get on the dialysis boards and start asking questions of people who do each of the methods she's interested in. I'm happy to be a resource on PD; email me at r i v e r c s aat g m a i l dott c o m  and I will answer anything you ask about it.

      Yahoo groups I am on: EndStageRenalDisease, kidneykidneydisease, dialysis-support
      Another helpful site is ihatedialysis.com
      These are boards run by and for patients and we are very candid with each other. kidneykidneydisease welcomes anybody with any stage of any kind of kidney disease and their caregivers, transplant recipients included. EndStageRenalDisease mostly does too, though it is geared more towards those who are losing or who have lost all or almost all of their kidney function and their caregivers than towards the early stages. By the way, this includes transplant recipients, because that's still considered ESRD. dialysis-support is for dialysis patients of all kinds and their caregivers. If she's pre-dialysis but knows for sure that she has to go on it eventually, this is a good board to join now even though she's not to that stage yet.

      But if she can prolong her kidney function where it is, and stave off dialysis for a while, she should do it. Has she been given a renal diet to follow in order to do so? If not, she needs to ask for referral to a renal dietitian, pronto, because there are ways she can prolong her kidney function with diet and with medication. A nephrologist is in order, too, if she doesn't have one already.

      And people can live for decades on dialysis if they have to; I know people who have and are. I even know people who had to go before the old Life And Death Committees and get dialysis before all of us could, way back in the 60s, and they're still on dialysis now and still very much alive. Dialysis is not a death sentence.

      Hugs to you and your mom. She can still live to be 90 and whistle at the cute techs in the clinic. A sense of humor  is critical, and so is exercise; what she can do, she should. See if she can get qualified for a transplant, too; even older patients can get one, especially if they're willing to consider extended donor criteria kidneys.

      Want to be a living kidney donor? I need one from someone with a bloodtype of B or O. Drop a note at riverheart.livejournal.com.

      by Kitsap River on Thu Jun 11, 2009 at 02:56:25 PM PDT

      [ Parent ]

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