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View Diary: Chronic Tonic: Adventures in Chronic Pain (Stranded Wind) (214 comments)

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  •  Hmmm. I'll read your diary (11+ / 0-)

    Sure sounds a LOT like Lyme, if you ask me - and the only reason I'm being annoying about that is because of the extremely high rate of false negatives of the first round of tests, the ELISA - something like 35% of the negatives are false negatives because the darn spirochetes have evolved so that they can trick the immune system into not responding to them.

    My ELISA came back inconclusive, but thankfully, the doc who ordered the test thought that my symptoms were likely Lyme and knew what to do next.  She ordered the Western Blot, but before I took it, she had me take a month of doxycycline 100 mg 2x a day.  It's called 'challenging.'  It provokes the critters from coming out of hiding, and once they do, the body identifies them and starts ramping up defenses.

    Now, as a former city girl, I didn't think there was a chance in Hades I had Lyme.  The MOMENT I suspected I did was when I finished that month of Doxy and took the test.  I'd been having these little fevers  pretty much nightly (at least in spells) for several years.  My normal temp is 97.2, and my temp would get up to the high 99s and low 100s (all below 101).  When I stopped the Doxy, my nightly fevers were up at 101 and 102 and higher.  Hmmmmm.

    Sure enough, the Western Blot came back positive.

    Recovery is slow-going, but I'm feeling less bad.  ;-)

    Torture: An act... specifically intended to inflict severe physical or mental pain or suffering upon another person within his custody or physical control.

    by MsGrin on Thu Jul 02, 2009 at 05:19:38 PM PDT

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    •  I'm pretty much a city girl, too (8+ / 0-)

      and have had little chance of exposure to ticks (Seattle area suburb).

      However, I did take a week last October and go to SW Oregon (where I grew up and the only place where I've historically been exposed to ticks). The vector for infected ticks is not clear there - the tick that carries the Lyme bacteria is not the tick that is common down there. Nonetheless, it's a concern.

      If this doesn't clear up, I'll re-request another round of testing. I'll forward your info on doxy to my Rheumatologist, though it's pretty clear he was dubious.

      How long between exposure to ticks and the time your symptoms developed - or do you know?  I didn't start to feel lousy until late November - over a month after I left the coast of Oregon and returned home.

      I've also never had a fever that I know of at any time, and no other physical manifestations of lime (rash, circle stuff, etc.)

      "We are one, after all, you and I, together we suffer, together exist, and forever will recreate each other."
      Teilhard de Chardin

      by exmearden on Thu Jul 02, 2009 at 05:31:33 PM PDT

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      •  My diagnosis is still relatively new (7+ / 0-)

        I've been pretty seriously sick for at least five years, but only got the diagnosis a few months ago.

        We did a series on it here in May LymeDiseaseAwareness.  I've linked the diary I think may be most interesting, but there's a dozen of them, or nearly that (the last got a SCATHING diary on the Rec List for over a day calling me anti-science... long story, I'm certainly not by any means).

        I'm no one to talk from my own experience because I have a pretty odd theory about how I likely got mine and you'll think I have a tinfoil hat (and that wasn't what got me called anti-science, btw).

        But to answer your question, symptoms can show up a month to several months after infection.  Only just upwards of half of people who certifiably have Lyme ever get the rash which is connected with the tick bite.

        We were very gratified to learn that after reading the diary linked above, a woman not far from you got tested when she recognized herself in my symptoms.  She's been living with this for 35 years.  Many, many, many people go undiagnosed for a really long time.  For me, it was five years, and I'm on the short side of that by far.

        Torture: An act... specifically intended to inflict severe physical or mental pain or suffering upon another person within his custody or physical control.

        by MsGrin on Thu Jul 02, 2009 at 05:41:19 PM PDT

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      •  I fought off Lyme for over a year (6+ / 0-)

        The windows between being bit and being really sick can be very llloooonnnnngggggg. Lyme breeds 4x daily, other bacteria 20x hourly :-( It takes a good long while to cause symptoms.

        "Not dead ... yet. Still have ... things to do." -Liet Kynes

        by Stranded Wind on Thu Jul 02, 2009 at 06:16:07 PM PDT

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