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View Diary: This is Your Brain on Lyme. . . my own experience (178 comments)

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  •  MsGrin, some of these side effects are common (4+ / 0-)

    for coumadin and I have seen a friend go downhill fast after having a small TIA and then be put on coumadin.

    •  Warfarin can sure make life tricky (5+ / 0-)

      I'm not sure which side effects you mean are common for it...  

      We've had to do some social archeology in my life to figure out when I was likely infected because I never had a rash.  

      I became disabled by Lyme in the aftermath of an unrelated medical accident where I lost nearly half my blood volume, so my first guess was that I had become infected through blood transfusion (blood banks don't screen for it).  I had leaked about 3 liters of blood internally at that point (according to the trauma surgeon who got it out), but when I have counted up the number of units I have received from various hospital stays over the course of a decade, it was just over 80.

      Because sudden massive hearing loss is a (rare) symptom of Lyme, we can pinpoint my likely infection date to 1993.  Warfarin became a way of life for me in 1995 when I got my first mechanical heart valve.

      I've had bouts of anticoagulation sky-rocketing, and I have not noticed any increase in cognitive issues at those times.

      Fortunately, since having abx treatment, a number of my cognitive and other issues have improved significantly, which suggests they are Lyme related.

      ‘When you look at the... wealth controlled by the top 1%... it’s tempting to see our growing inequality as a quintessentially American achievement—we started way behind the pack, but now we’re doing inequality on a world-class level’ Joseph E. Stiglitz

      by MsGrin on Sun May 08, 2011 at 09:25:25 AM PDT

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      •  I have fibro and am on Warfarin (4+ / 0-)

        I wasn't aware of specific issues tying Warfarin to cognitive fog?  Any links or pointers I should be aware of?  I'm on the blood-thinners due to heart issue, and have several other chronic health conditions that make life interesting--largely due to the genetic lottery.   I should note that the brain fog began (along with the muscle pain and extreme fatigue) many years before the blood thinners......

        "Because inside every old person is a young person wondering what happened." -Terry Pratchett

        by revsue on Sun May 08, 2011 at 03:08:42 PM PDT

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        •  We'll see if Cap'n Laser answers (3+ / 0-)

          this was totally news to me...  I've never noticed any issue with bloodthinners themselves in terms of how I feel, and I'm sensitive to BP meds/dossages, so I do notice changes.  The only change I've ever noticed was with massive hemorrhaging - it's actually kinda pleasant... I suspect the body calls in endorphins when it goes into shock.

          ‘When you look at the... wealth controlled by the top 1%... it’s tempting to see our growing inequality as a quintessentially American achievement—we started way behind the pack, but now we’re doing inequality on a world-class level’ Joseph E. Stiglitz

          by MsGrin on Sun May 08, 2011 at 03:19:26 PM PDT

          [ Parent ]

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