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View Diary: This is Your Brain on Lyme. . . my own experience (178 comments)

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  •  a spinal tap for lyme is very bad idea (6+ / 0-)

    A spinal tap is the least useful way to diagnose lyme, and anectdotally, can result in very unfortunate clinical worsening if the patient requires a blood patch (if they leak after the puncture).

    There is a really well done website, cpnhelp.org re treating MS as a chlamydia pneumoniea infection. Vanderbilt University has done some research here.  Interestingly, the antibiotic protocol looks a lot like the protocol used to treat lyme.

    •  I will look into that, thanks (2+ / 0-)
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      MsGrin, 42

      I wasn't thinking about lyme disease when I asked for spinal tap, I just didn't want ms and was hoping that would show I didn't have ms. Although the MRI's blood test and neuro exams all came back ms. I don't think I tested negative in anything related to ms. Believe me, if it wasn't ms I would know it. My uncle had lyme but luckily got treated immediately. I realize he was really lucky many people have hard time with doctors acknowledging their sick and looking for cause.

      "IJDH provides the tools for people who care about Haiti to make a real difference on the ground."-- Bishop Thomas Gumbleton

      by allie123 on Sun May 08, 2011 at 01:47:09 PM PDT

      [ Parent ]

    •  I've had 2 (3?) LPs - not useful for Lyme unless.. (3+ / 0-)

      ... they're done within the first 2-3 weeks after first onset of symptoms, and only catches up to 30% of cases at best, from what I can see in research so far.

      In Europe they are looking at a combination of LP CSF, blood tests for ab, and neuro-cognitive symptoms for neuroborreliosis - we aren't doing this in the US - at least not very often.

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