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View Diary: Lyme: How I told the doctor what to do (226 comments)

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  •  Evidence based medicine (9+ / 0-)

    is certainly not based on 15 year old textbook medicine if it is being used correctly.  One of the smartest researchers I know pointed out in a lecture a couple of years ago that by the time things reach the textbooks they are often already out of date.

    Evidence based medicine does not mean we do everything based on old information, it means we look closely at the evidence we have for a particular standard of care.  If we do not have enough information to prove that one approach is the clear best we are supposed to be looking at alternatives and doing additional studies.

    Politics and profit motives often influence which studies are being done, but those 15 year old books should not be cited for taking a position that they do not back up with a higher quality of testing.  The problem is that many times consumers have to make enough noise to see that the right research is being done.

    •  That's part of the motive for this diary series (7+ / 0-)

      ...Lyme patients - and those who love them - makin' some noise so that this community comes to understand that we are a community within the Daily Kos community.

      We now understand that there were a lot of politics in how HIV patients were treated.  

      Our plight has a lot of similarities to that fight for medical justice.  We're here, we're green, get used to it!

      'Give away to the rich and punish the poor for the extravagance.....crazy' --LaFeminista

      by MsGrin on Thu May 19, 2011 at 09:37:13 AM PDT

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    •  Research: Many years ago I heard from a (4+ / 0-)

      very reputable academic based researcher back east who had applied for a gov. grant for a novel approach to diagnosing lyme disease.  I don't recall exactly what it was, but it was in the realm of diagnosis.    I had come across his labratory investigations on line and had written to him all excited to find out more.     In his response he told me that he was told by grant bestowers that they didn't need anything new ...that Lyme disease was easy to diagnose & treat.  

      Yes, the research world is fraught with good ol' boyisms and circular citings.    Money, power and position are often at stake.   Usually we manage to muddle through those obstacles...but in the case of Lyme disease we have not yet done so.

      I think I misspoke with the 15 year old text books and meant to say 15 year old evidence in the text books.  Either way probably using some slight exaggeration to make a point.

      "I think it is much more interesting to live not knowing than to have answers that might be wrong." Richard Feynman

      by leema on Thu May 19, 2011 at 11:04:43 AM PDT

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