Daily Kos

Epilepsy101- Justice Roberts- Prophet or Witch?

Wed Aug 01, 2007 at 12:26:00 PM PDT

My previous diary on epilepsy began with this paragraph.  

I'm lucky,  I have epilepsy.  Really, it's only technically epilepsy.  Well, okay it's actually diagnosed epilepsy, but I say technical because others live with a much more life changing form of epilepsy, and I don't want to put my problems in the same ballpark as theirs.  Epilepsy itself has gotten a new name. It's still referred to as epilepsy, but now it's also getting fit into a category called "seizure disorders." "Seizure Disorder" is just a way of avoiding saying a word that might seem like a sensitive issue to some. Some people just call it "The E word."

I wrote that diary, because I want to be part of the demystifying of epilepsy. With the recent events in the life of Chief Justice Roberts, I thought it would be worthwhile to cover the topic of epilepsy again.  

Let's get in the well of knowledge.  

So, Justice Roberts had a seizure.  Why did he have a seizure?

http://mediamatters.org/...

Michael Savagewiener wants to blame Democrats.  That's no suprise.  It's pretty normal for the less mentally flexible people, like Savagewiener, to believe that seizures are the result of something other than brain chemistry.

Am I to believe that there's no connection between Charles Schumer on Friday saying that he would never appoint, or never, excuse me, approve another Bush appointment to the court, to any court? And then the chief justice suffers a so-called seizure two days later? You're telling me there's no possibility of a conspiracy by the Democrats to have caused this seizure in some manner?

Note the complete absence of any mention of Bill Clinton.  He's completely slipping.  

Some people want to blame witches for planting eggs or something in people to cause them to have seizures.  

Here's the question?  How should we classify Justice Roberts's seizure?  Does it matter?  Is he entitled to his privacy?  Should we care?    

What is epilepsy?

Epilepsy is a neurological condition that makes people susceptible to seizures. A seizure is a change in sensation, awareness, or behavior brought about by a brief electrical disturbance in the brain.

In other places I've read that an individual with epilepsy is someone who has had more than one seizure.  Lots of people can have a single seizure as a result of a health episode, but it takes more than that to be part of the club. Some people may be sensitive to the word "epileptic."  I can't speak for everyone, but I wouldn't be surprised to find out that most of the people who are sensitive to that word are people who don't have epilepsy.  Personally, I use that word.  It does me no harm.  

What does that mean for Chief Justice Roberts?

This Forbes article actually has a great discussion of the definition of epilepsy.  

The basic argument for is that he has had two seizures without any discernible outside cause.  The basic argument against is that it's been 14 years in between his seizures.  I align myself with the former argument.  My reasoning is that, in hindsight, I was having seizures long before any diagnosis of epilepsy.  I wasn't aware that the seizures I was having were anything other than deja vu, or just some reaction to all the coffee I was drinking.  He may be having seizures that he doesn't even know about.

How did I catch epilepsy?

Well, I dated this girl in highschool.  It was an unfortunate circumstance, but apparently she had it, and I didn't use protection.  

Okay, I didn't catch it.  You just don't catch it.  However, it could come about as a result of a brain infection.  

Most often, the causes are undetermined.  The Epilepsy Foundation says that in 7 out of 10 cases the initial cause of the seizures is never determined.  However, the causes that are determined include head injuries or lack of oxygen during birth which may damage the delicate electrical system in the brain. Other causes include brain tumors, genetic conditions (such as tuberous sclerosis), lead poisoning, problems in development of the brain before birth, and infections like meningitis or encephalitis.

In my own situation, there has never been a cause determined.  It's probably because I'm too intelligent and handsome.  Or, it could be my humility. Really, it's anyone's guess.  

What kind of seizures are there?

Okay, so now you know that it is difficult to determine a root cause of the epilepsy itself.  But how does each individual seizure come about?  The seizure is not the affliction, it is a symptom of a problem.  It's kind of like diahrrea.  Diahrrea can happen for many reasons, it's just the outward sign.  Seizures can come in many forms.  They can be very benign, or very severe.  I didn't know I was having seizures for a couple years.  

There used to be two main categories- Grand Mal and Petit Mal.  Neither of those categories exists today.  

Without going very deep into the types, I'll mention the basics.  There are Generalized seizures, and there are partial seizures.

Partial seizures do not include a loss of consciousness.  They may be  recognized by a strange odor, or some auditory disturbance.  When having a partial seizure, the individual will likely remain aware, and be able to continue a conversation.  There are two types of partials.  The first is a Simple Partial Seizure(SPS) , that is what I have described above. The second type of partial is a Complex Partial Seizure (CPS).  The individual may become slightly "automated." She may begin tugging at her clothes, or turning her head, or mumbling.

Some Generalized Seizures are what were once called Grand Mal seizures.  There are two types of these seizures.  The first is an
Absence Seizure (formerly Petit Mal).  It is difficult to determine the difference between an absence seizure and a complex partial.  The absence seizures don't often last for more than 10 seconds, and the recovery time is reduced.  Finally, we have the Big Kahuna of seizures the Tonic Clonic.  I know that sounds like a drink or some invasive alternative health solution, but it's the real name.  It used to be called Grand Mal.  That's when you get full body involvement.  The individual falls and the body can become rigid, he loses consciousness, and a general hubbub ensues as everybody rushes to be the first to extract their wallets from their pockets.  

What Does it Feel Like to have a partial?

At first, it was a little strange.  I didn't know that I was having Simple Partial Seizures.  A SPS can feel different for different people.  Before I knew what was going on, I thought I was having some terribly intense Déjà vu.  I don't think it's because I actually thought I was experiencing something again, but more likely that when I'm going to have a SPS, I can feel it coming and I know there's nothing  I can do about it other than ride it out.  Sometimes, I try to talk about it with someone while it's happening.  I become a little chatty during the seizure.  My friends know that it's no big deal, but I like them to know that it's happening so that they aren't thinking I'm high or just being a prick.  Mostly, it's just a comfort.  Even having a small seizure like this can be unnerving and make one feel lonesome at the moment.  

Everyone with epilepsy has their own unique feelings associated with seizures.  It seems to me that each simple partial seizure has its own severity.  Some are over quickly and leave no lasting effect, but others last longer (how long, I don't really know) and leave a lasting fatigue that really drags one down for the next hour or so.  

I don't believe I have complex partial seizures, so I'm not really able to answer that question.

Intermission:  Or why would Justice Roberts be a witch?

http://news.bbc.co.uk/...

The Old Testament prophet Ezekiel could have had the oldest recorded case of a form of epilepsy, an American scientist has concluded.

Dr Eric Altschuler, a neuroscientist at the University of California, San Diego, told a meeting of the Society for Neuroscience in the city that the biblical figure had all the classic signs of temporal lobe epilepsy.

http://serendip.brynmawr.edu/...

Researchers interested in the connection of the brain and religion have examined the experiences of people suffering from Temporal Lobe Epilepsy. Apparently the increased electrical activity in the brain resulting from seizure activity (abnormal electrical activity within localized portions of the brain), makes sufferers more susceptible to having religious experiences including visions of supernatural beings and near death experiences

Not only is this article a great beginner's guide to epilepsy, but it also contains the following:

a 1494 handbook on witch-hunting, Malleus Maleficarum, written by two Dominican friars under papal authority, said that one of the ways of identifying a witch was by the presence of seizures.

How does it feel to have a generalized seizure?

That's a damn good question.  What was it like when my body has tensed up and I've fallen to the ground, or to the floor, or just lay in bed?  I don't know.  I don't notice anything about it.  I'll be sitting there, eating, or counting money, or just, well, sitting there, and then Boom! I'm being belligerent to the person who is attempting to contact me.  While I was blissfully kicking the chairs around, waxing the floor in the restaurant, causing a scene next to my wife in bed, or biting the crap out of my tongue, I was completely unconscious.  I had no awareness of the event.  

When the Tonic Clonic is over, it takes some time for me to be able to get to a point where I have a working memory again.  A conversation with me following a seizure would look something like this:

Them:  Are you okay?  You were just...
Me:  Of course I'm okay?  What's your problem? Get your hands off me.
Them:  But, you were just rolling around on the ground...
Me:  Bullshit.  Nothing happened to me.  Why are you waking me up?
Them:  We're not waking you up.  You just had a seizure.
Me:  Get the hell away from me.  I didn't have a seizure.  I'm just trying to get you to leave me alone.
Them:  We have to take you to the hospital.  
Me:  I'm not going to the hospital, nothing happened to me.  

And so it would continue until I could reach a point of consciousness where I have a working memory and am able to remember that, yes, I do have seizures.  

When do They Happen?

That's a good question.  This interviewer is keen.  He really knows how to ask the insightful questions.

I don't know.  For me, there is no particular trigger.  A trigger is an event that brings a seizure on.  For some people a fluorescent light is a trigger.  For others a certain odor may be a trigger. A partial list of triggers might include, animation on computer screens, energy level of the screens, alcohol (the dehydration aspect), dehydration, heavy exercise, food allergies, strobe lights, and inadequate sleep.  

Chief Justice Roberts' Future

In my opinion, if he doesn't act as if he does have epilepsy, then he is putting himself in danger.  He may injure himself in a fall.  He may eventually have a seizure while driving, which puts his family and friends at risk.  

If I were in Roberts's shoes, I would follow up on the process as if the seizures will likely continue.  As part of this, he needs to look back on the last 14 years, and try to determine if there were times when he was having seizures that he may not have known were seizures.  

I'd really like to hear from other Kos members who have epilepsy , or who have been touched in some way by epilepsy. Mostly, I want to demystify the problem.  We are among you.  Most of us go to work, though there is a 25% unemployment rate among those with epilepsy.  

So, tell your stories about where you've had seizures, or any weird things that have happened while you had a seizure.  For me, this is just part of life, and it doesn't really cause me that much grief.  As a result, it's a humorous event from time to time to talk about it.

Tags: epilepsy, john roberts (all tags) :: Previous Tag Versions

Permalink | 61 comments

  •  OK, one news source said Roberts played football (5+ / 0-)

    and wrestled when younger. Can injuries from high school and college affect sieizures 30 years later?

  •  Can you buy Dilantin with tips? (25+ / 0-)

    If so, please tip.  If not, please tip.  

    "A problem facing any American is a problem facing all Americans." Obama

    by otto on Wed Aug 01, 2007 at 12:42:14 PM PDT

  •  Posted right at 500 server error time! (7+ / 0-)

    Yes.  It's great to post a diary and then have to wait a half an hour before I can even access the site.

    "A problem facing any American is a problem facing all Americans." Obama

    by otto on Wed Aug 01, 2007 at 01:17:27 PM PDT

  •  Nice diary otto. Justice Roberts will be fine (3+ / 0-)

    Recommended by:
    otto, Ice Blue, KnowVox

    and I wish him well.  As to his legal opinions, my non-lawyer self wishes he would consider stare decisis with a little higher regard and that there are far reaching implications to drawing ones curves before plotting one's points as we say in the hard sciences.

    BushCo Policy... If you aren't outraged, you haven't been paying attention. -3.25 -2.26

    by Habanero on Wed Aug 01, 2007 at 01:22:19 PM PDT

  •  Otto, thanks for the excellent (5+ / 0-)

    Recommended by:
    otto, cfk, theark, KnowVox, protectedmode

    explanation of the different types of seizures.  There are many, many reasons why people have seizures.  

    "If you're in trouble, or hurt or need - go to the poor people. They're the only ones that'll help - the only ones." John Steinbeck

    by BluejayRN on Wed Aug 01, 2007 at 01:32:11 PM PDT

  •  This is an excellent diary (5+ / 0-)

    well written, personal, and I learned something new. As much as I disagree with Roberts, I also empathize with his condition. Here's hoping he, and everyone with epilepsy, live long healthy lives!

    Well? Shall we go? Yes, let's go. Defeat John McCain.

    by whenwego on Wed Aug 01, 2007 at 01:50:15 PM PDT

    •  I had some interest in a revision and repost (2+ / 0-)

      Recommended by:
      whenwego, protectedmode

      On the day that the news broke about Roberts, I discussed the issue with some people.  It seems like this is the kind of issue that can be revisited every couple of years, what with all the new kossacks signing up all the time.

      Thanks.

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Wed Aug 01, 2007 at 01:51:59 PM PDT

      [ Parent ]

  •  I have a very good friend whose epileptic (5+ / 0-)

    Recommended by:
    otto, rockhound, kfred, Heiuan, protectedmode

    And he asked me if Roberts would have to recuse himself on Fourth Amendment cases now...

    Did I mention he's a friend with a really bad punning problem?

    "When the President does it, it's not illegal" - Richard Nixon, 1974; US Congress, 2008

    by nightsweat on Wed Aug 01, 2007 at 01:51:09 PM PDT

  •  As it relates to Islam (0+ / 0-)

    It seems that a sort of whisper campaign was undertaken to attack the Prophet Mohammed.  It was a way to discredit his life.  He was accused of being epileptic.
     
    http://www.mindhacks.com/...

    As is to be expected, the positive bias of Islam was countered by an opposite bias in the Christian world. As to the origin of the diagnosis "epilepsy", everything points to Christian Byzantium, an empire that was no only hostile to Islam but at frequent war with the Arabs. Less than 200 years after Mohammed's death, the Byzantium historian Theophanes (died about 817) told a story which was bound to make Mohammed appear and fraud and to discredit the belief in his divine mission.

    "A problem facing any American is a problem facing all Americans." Obama

    by otto on Wed Aug 01, 2007 at 01:55:45 PM PDT

  •  I think we now have an explanation for all (3+ / 0-)

    Recommended by:
    otto, Heiuan, protectedmode

    the born-agains----they were having seizures!    
     Thanks Otto for sharing your personal experience and knowledge.  I like your attitude!
     And you were a very keen interviewer.

    •  Not too far from the truth (3+ / 0-)

      Recommended by:
      rockhound, Heiuan, protectedmode

      In some religions, epileptics were honored.  In others,  they were shunned.  

      The idea of religion and epilepsy is very interesting.  For some people, it seems as if a seizure may have made the person become religious.  It's almost as if it "switches God on."  

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Wed Aug 01, 2007 at 02:00:53 PM PDT

      [ Parent ]

      •  Temporal Lobe Seizures? (2+ / 0-)

        Recommended by:
        otto, cfk

        the kind that make you see angels and the bright light, right? I had a seizure in boot camp once like that. Really knocked me off my feet for hours. Never had anything like it since.

        Stop rewarding bad behavior.

        by FLDemJax on Wed Aug 01, 2007 at 04:15:18 PM PDT

        [ Parent ]

  •  Hi Otto (3+ / 0-)

    Recommended by:
    otto, cfk, protectedmode

    Thanks for an awesome article.  I began having partial seizures a few years ago--like yours, a lot of intense deja vu, but also I'd taste things, remember things, and the only way I could describe it would be that it was like someone had taken a probe and had stuck it in that part of my brain that had stored those tastes/smells/memories.  It was always followed by fatigue and memory loss of whatever I had experienced, so the only memories I have of any of these experiences are from narrating them out loud to someone else as they happened.  I lost consciousness once, and fortunately I was not driving at the time.  Once I was diagnosed, I had to give up my government job, but mine was in air traffic, unlike Judge Roberts' position, where he holds peoples' lives in his hands.  ;o)

    My take on the whole thing was the fact that they wanted to label his episode as "ideopathic" and leave it at that--I would think that the first thing that someone would want to do would be to find out what happened.  What was that?!!  I lost consciousness?!!  I had a seizure!  Get me to an EEG!!  

    ...don't blame me, I voted for Ned!

    by theark on Wed Aug 01, 2007 at 02:10:47 PM PDT

    •  That's really interesting (3+ / 0-)

      Recommended by:
      cfk, theark, protectedmode

      I don't have the problem of memory loss after the fact.  

      I think that for both of us it sounds like there must be something in the visual area of the brain which misfires- or is at least effected by the seizure.  

      I have a faint visual memory of the event, but I have a full verbal memory.  

      In that sense, it's the same as you describe it.  

      I hope you were able to find work that was equally as challenging and  interesting as what you were doing before.  

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Wed Aug 01, 2007 at 02:16:10 PM PDT

      [ Parent ]

  •  My impression is there's not a sharp dividing (4+ / 0-)

    Recommended by:
    otto, cfk, theark, protectedmode

    line between migraines and seizure illness, in current medical thinking.  I get migraines.  Sometimes a bad throbbing headache, but every couple of years, I get migraine "aura", including visual disturbances, numbness, and "word salad" (where you know what words someone is saying but you're not tracking the meaning of what they're saying).  

    •  You know, that's weird that you brought that up (3+ / 0-)

      Recommended by:
      cfk, protectedmode, Dimetrodon

      I get the seizures, and I also get the migraines that hurt.  Then I have this: If I haven't gotten enough sleep, and then happen to drive down a road with a lot of trees on a sunny day, I will usually get a weird sensation where the inside of my mouth feels like it's stuffed with that plaster the dentist uses, in combination with having both of my hands feel like they're really heavy and really large.  This will last for about fifteen minutes.  Then it'll go away.  I mention the part about driving down the road with a lot of trees, because it can act like a sort of strobe light.  I'd thought I was having a new sort of seizure, but when I brought it up to my neurologist, he thought it was some sort of migraine.  It doesn't hurt, so whatever.  It is weird.  I shall call it theark syndrome.  

      ...don't blame me, I voted for Ned!

      by theark on Wed Aug 01, 2007 at 02:22:47 PM PDT

      [ Parent ]

      •  Seems strobe related (2+ / 0-)

        Recommended by:
        cfk, theark

        I'm fortunate that I have no known triggers.  Or, I'm unfortunate that I have no known triggers.  

        I still drink a ton of coffee, but I really shouldn't.  

        One should also never rule out that possibility that an odd event has nothing whatsoever to do with one's epilepsy.

        "A problem facing any American is a problem facing all Americans." Obama

        by otto on Wed Aug 01, 2007 at 02:25:19 PM PDT

        [ Parent ]

        •  Dehydration and low blood sugar (2+ / 0-)

          Recommended by:
          otto, cfk

          are potential triggers.  That's what I'm trying to identify with kidlet now.

        •  I do have triggers. (3+ / 0-)

          Recommended by:
          kfred, cfk, theark

          They include: being physically depleted and under stress; eating too many migraine trigger foods (chocolate, nuts, aged cheese); dark red wine.  I get migraines around Christmas time because everyone serves these things at parties.

          It seems like all my favorite foods are on the migraine trigger list; other than the ones I've already listed, these include bananas, avocado and peanuts.  I've always thought this was terribly unfair.  I've wanted to promulgate my own migraine trigger list (the foods that should be triggers, instead of the foods that are triggers, if some foods have to cause migraines).  It would contain things like broccoli and lima beans.

      •  How About This (2+ / 0-)

        Recommended by:
        otto, cfk

        seeing anything repeating, such as stair steps, patterns in traffic lights, rows of chairs, etc. cause me to be slightly nauseated and disoriented, but only if I have to navigate them, like stairs, or count them. Now, I'm starting to worry a little.

        Stop rewarding bad behavior.

        by FLDemJax on Wed Aug 01, 2007 at 04:19:59 PM PDT

        [ Parent ]

  •  An exceptional diary, Otto (4+ / 0-)

    Recommended by:
    otto, cfk, theark, wayoutinthestix

    You mentioned that you thought at first you were having a moment of deja vu. Can you elaborate on that?

    I have had panic disorder for thirty years with (now) very few episodes, perhaps once a year, often two, which I control with Xanax. But fifteen years back, while working long hours getting the garden ready for a wedding, I had two different, very frightening episodes of something like deja vu inside of two weeks. They were signaled by a kind of buzzing in my head, a brightening of everything around me, and both seemed to last a long time though it might have been only minutes. None of my doctors has given me a satisfactory explanation of this.

    Your description of seizures, then, was an eye opener. My deja vu episode has puzzled me for years.

    •  Well (2+ / 0-)

      Recommended by:
      cfk, wayoutinthestix

      Deja Vu is simply the only common descriptor that seems appropriate.  

      I read a child's description which was this: "Bad feeling."  For me, that is a more accurate description.  

      The aurae that people have are generally unique to the individual.  So, while I'm no doctor, if I were to have an episode like you describe, I would assume that it was seizure related.  

      The time aspect that you mention is also common.  It seems to me like I'm have a seizure for 30 minutes, when really it's only 30 seconds.  Additionally, I may lose time during a seizure.  Often, I completely lose the ability to determine or remember what time of the day it is- like I can't figure out if it's morning or evening.  

      Finally, I sometimes start to think that it's all imaginary, and that I'm having panic attacks.  Then, a real seizure happens, and I realize that there is no way I could imagine such a situation.

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Wed Aug 01, 2007 at 02:21:09 PM PDT

      [ Parent ]

    •  Wow-- (2+ / 0-)

      Recommended by:
      otto, cfk

      Do you have access to a good neurologist?  I'm sorry none of your doctors have been able to help you on this.  It definitely sounds like this could be what was happening--especially if you were losing sleep working on this wedding.  Loss of sleep really does a number on me and even now that I'm on meds, if I haven't gotten enough sleep, I can sometimes get that same feeling (like stormclouds on the horizon, but not the full storm!)

      ...don't blame me, I voted for Ned!

      by theark on Wed Aug 01, 2007 at 02:28:29 PM PDT

      [ Parent ]

      •  Do you know that braintalk website? (3+ / 0-)

        Recommended by:
        cfk, theark, protectedmode

        http://brain.hastypastry.net/...

        It's a great resource.

        It's a little hard for me to go there.  It makes me feel very lucky and fortunate.  So many people with worse problems than mine.  I get the saddest when I read about their children.

        "A problem facing any American is a problem facing all Americans." Obama

        by otto on Wed Aug 01, 2007 at 02:31:03 PM PDT

        [ Parent ]

      •  Thank you Otto and Ark (1+ / 0-)

        Recommended by:
        theark

        It's so comforting to hear from people who know what I'm talking about!

      •  Ark and Otto, to clarify (2+ / 0-)

        Recommended by:
        cfk, theark

        I don't think I made this clear in my original post, but what I had was an actual deja vu in the conventional meaning of the term. I thought, I've done this before, or I've asked this question before. In the first instance, the one that really frightened me, I finally asked my older daughter -- we were laying bricks at the time -- if I'd asked her this question before, I forget what the question was, and she laughed and said No. I seemed, in my mind, to have entered a fugue state, if that's the term. I could see myself laying the same brick over and over again. In the second instance I was weeding a long bed with my younger daughter and looked down the row at her and was certain I'd done this with her, exactly this, many times over.

        Of course, we'd weeded together many times, but this was different. It was exactly the same.

        Has anyone here experienced this type of seizure? I don't think I actually lost consciousness.

        Sorry to take up so much space with my own problem, but you're all a true comfort, and I don't know it won't happen again.

        •  Okay, I really am having deja vu right now (1+ / 0-)

          Recommended by:
          cfk

          but only because my stupid computer erased this once already!  :oP  (Maybe it's not us--maybe everything around us is skipping a groove!!)  Seriously, though, you're not crazy--my neurologist told me that the really strong feelings of deja vu are seizures.  The one time I actually lost consciousness from my seizure disorder, my husband and I had been looking at a house that would soon be going on the market.  The whole time we were looking at this house, I kept saying, "I know we're meant to buy this house because I swear I had a dream about this room last night."  Every part of the house seemed so familiar. Nobody could have convinced my brain it hadn't been in that house before.  It kept coming in dizzy little waves, and I figured I felt a little off because I hadn't gotten much sleep the night before.  When we finished looking at the house, we went to a restaurant and sat in a booth where, my husband tells me, my eyes rolled back in my head and I keeled over sideways.  The next thing I remember is paramedics and the restaurant manager wanting to make sure it wasn't the food!

          Otto has given you a lot of resources, and I'd just emphasize getting a good neurologist.  You'll probably have to get an EEG.  My initial EEG didn't show anything, but when they had me do a sleep-deprived EEG (they make you stay awake for 24 hours and administer it again) they found the little short in my brain.  I think you'll feel better to know you're not making this up, and I don't think you are!  Good luck!

          ...don't blame me, I voted for Ned!

          by theark on Wed Aug 01, 2007 at 08:05:53 PM PDT

          [ Parent ]

  •  Excellent diary, Otto (2+ / 0-)

    Recommended by:
    otto, wayoutinthestix

    Very informative, from a "first person" perspective.

    "Learn from yesterday, live for today, hope for tomorrow." -- Albert Einstein

    by KnowVox on Wed Aug 01, 2007 at 02:25:55 PM PDT

  •  Hi Otto (3+ / 0-)

    Recommended by:
    otto, cfk, wayoutinthestix

    Robert's condition got me thinking of the diary you did last year.

    At the time I had just had a seizure at work-the first time in 8 years or so. The big kahuna type, or as I like to call them, The Full Body Workout.

    I had been slacking off on taking my Lamictal, and when the aura started in my left eye I knew what was happening and was able to get to the relative privacy of the ladies room.
    I've been damn diligent about taking my prescription since, and I've been seizure free.

    I started having seizures 16 years ago, and I've never had one during periods when I was taking Phenobarbital, or the Lamictal I'm currently taking. So I've given up on trying to discontinue the meds. Luckily I have good insurance because Lamictal is $350 a month otherwise. Dilantin and Pheno are available generic and are much less expensive-I just don't like the side effects.

    My personal advice for Roberts:
    Take some meds-most have very little side effects and you have good insurance.  
    It doesn't matter how many years are between seizures, they can happen anytime, anywhere. So take the meds, minimize or eliminate the possibility of hurting yourself or someone else.

  •  2 years ago, while on vacation (1+ / 0-)

    Recommended by:
    cfk

    in Manhattan, I had 2 seizures. The 1st one was while we were waiting for the ferry to Statue of Liberty. I passed out. When I came to, we thought it was from the heat and standing in line. I found myself sitting on a chair security had brought to me, and a water bottle in my hand. Didn't remember anything.

    We did the tour incl Ellis Island,and while I was feeling a little odd, I was ok. When we got back to the city, near ground zero, I had the 2nd seizure, passing out again. This time, an ambulance was called. I came to in the ambulance.

    The ER ran tests, did a CT scan, and no reason is known why I suddenly should have the seizures. To this day, I don't why they occurred. They scared the crap out of me.

    I haven't had any other occurences since, but always worry about the possibilities. Had a complete checkup last year, and the doctor didn't seem too concerned since it was an isolated incident.

    "I don't think the heavy stuff is coming down yet"

    by MadMs on Wed Aug 01, 2007 at 02:48:46 PM PDT

    •  Closely bunched (0+ / 0-)

      They seem to be very closely bunched for someone who has never had a seizure.  

      Have you had EEG's done?  An EEG is a very good tool for diagnosing seizure issues.  

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Wed Aug 01, 2007 at 03:08:22 PM PDT

      [ Parent ]

      •  No EEG done (2+ / 0-)

        Recommended by:
        otto, cfk

        It seems the report from NY hospital never got to our doc here in WI. I mentioned all this at last years checkup, thinking an EEG would be a good idea. Doc didn't seem interested in any kind of follow-up. So much for healthcare.

        Since dehydration was mentioned here, maybe that was a problem.

        "I don't think the heavy stuff is coming down yet"

        by MadMs on Wed Aug 01, 2007 at 03:16:18 PM PDT

        [ Parent ]

        •  The CT (1+ / 0-)

          Recommended by:
          cfk

          They were checking to make sure you didn't have any tumors.  The EEG checks the electrical patterns of the brain.  When you're diagnosing seizures, and you've ruled out tumors, I think the next step is to see what the electrical part of your brain is doing.

          "A problem facing any American is a problem facing all Americans." Obama

          by otto on Wed Aug 01, 2007 at 03:18:28 PM PDT

          [ Parent ]

      •  Waiver!!!!!! (2+ / 0-)

        Recommended by:
        otto, cfk

        EEG's cannot detect reasons for about 40% of the subjects.

        Having said that - it's painless and simple.  If you can have it done at a doctor's office instead of as an outpatient it's probably cheaper for co-pay.  It worked that way for us, anyway.

        Same folks, same machines, just a different and more convenient office instead of a hospital.

        •  Reasons are difficult (2+ / 0-)

          Recommended by:
          kfred, cfk

          I think an EEG is at least effective in determining what kind of non-standard electrical waves the brain is putting out.

          Yeah, it is easy.  

          I'd mention it to the doctor.  

          "A problem facing any American is a problem facing all Americans." Obama

          by otto on Wed Aug 01, 2007 at 03:19:46 PM PDT

          [ Parent ]

  •  Impact on Future ADA decisions? (2+ / 0-)

    Recommended by:
    otto, kfred

    Very insightful.  And, of course, I too wish the Chief Justice a speedy recovery and good health.

    My original thought upon hearing of the news (and learning for the first time of the past history) is exactly what impact will such a personal event have on his future jurisprudence? Especially the ADA, which has been twisted and distorted into something nearly unrecognizable by "activist" neo-con judges (persons obviously intended to be protected as "disabled" found not entitled to coverage).  To be fair-- it goes both ways; I have also seen cases where persons whom I would respectfully submit weren't intended to be protected being found as "disabled" (for example: a judge once found a "disabling impairment" to be a self-diagnosed personality disorder that would not allow a charging party to "get along with others" -- give me a break).  

    Mind you-- most of the Supreme Court's ADA decisions have predated Roberts' Chief Justice tenure (and I'm not familiar off hand with any DC Circuit decisions he may have written/joined), but let's look at some of the ADA obstacle course that he would now have to weave his way through just to determine if he would be "covered" by the ADA......

    Is the Chief Justice "disabled" for purposes of the ADA (does he have an "impairment" which "substantially limits" a "major life activity")? Does he now have a "record" as being "disabled"? Is he now "regarded" by his employer as "disabled"?  What are the "substantial limitations" on his "major life activities?  Is his ability to drive a car a "major life function" for determining whether or not he is "disabled"?  Are such "substantial limitations" transient or of a more permanent nature? Can such "disability" be "mitigated" through devices/drugs/treatment and magically disappear (for purposes of ADA coverage at least)?

    And of course, does he now represent a potential "undue danger" to his employer/co-workers/self?  (Some in this community, I suspect, would suggest his mere presence on the court would pose an "undue danger")

    Certainly, the ideology would suggest that Roberts, following the playbook issued to all card carrying Federalist Society members, would limit the coverage of the ADA to the mamimum extent possible. But when things like this hit home, its funny how quickly and convienently ideology goes out the window. Just ask Nancy Reagan.  Maybe he can have an epiphany of some sort and his judical thinking can evolve into something more Souter-like, or at least recall what stare decisis means.

    •  I'm curious, as well (0+ / 0-)

      My first reaction was, "Well, he has epilepsy."  My second reaction was, "How will this change his legal opinion on things like the ADA?"  

      One specific issue that is relative to epilepsy is the use of fluorescent lights, or other seizure triggers in the workplace.  

      Would he vote in favor of supporting someone who sued an employer for not removing seizure causing lighting?  

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Wed Aug 01, 2007 at 03:29:37 PM PDT

      [ Parent ]

  •  Aye (1+ / 0-)

    Recommended by:
    cfk

    I've been diagnosed previously with having Absence Seizure when I was younger. Been years since either I or anyone else has noticed me having any though. But that doesn't mean they might not be occuring or could occur, as they used to be much more common for me. They put me on meds for a couple years but took me off to see if my epilesptic tendancies were to return, which as I mentioned, no one's observed me not being there for a while so I've not been medicated for quite a number of years now.

    I'm kind of glad someone made a diary about epilepsy. Thank you.

    •  That's pretty standard (0+ / 0-)

      Kids dx'd with absence seizures often grow out of them.  I'm glad it's something you don't have to worry about now.

      "A problem facing any American is a problem facing all Americans." Obama

      by otto on Thu Aug 02, 2007 at 08:17:01 AM PDT

      [ Parent ]

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