Daily Kos

The Grieving Room: the gift of perspective

Mon Apr 07, 2008 at 05:53:09 PM PDT

In the middle of everyday life, it's easy to get lost in the mundane activities, the usual events, the flow of it all.  Most of us don't have much time or inclination to indulge in navel-gazing, and even if we do, it's hard to view the "big picture" when one is part of the canvas.

No one has a better perspective on what it means to be alive - to LIVE -  than someone who is in the process of dying. My mother and I discovered that in her one-year journey to death, which began with her pancreatic cancer diagnosis on March 30, 2006.   From the moment we all learned that she was terminally ill, we began to contemplate what it means to live.

This installment of the Grieving Room is in honor of my mom, Diana, who died one year and one day ago, on April 6, 2007.

A special welcome to anyone who is new to The Grieving Room.  We meet every Monday evening.  Whether your loss is recent or many years ago, whether you have lost a person or a pet, or even if the person you are "mourning" is still alive ("pre-grief" can be a very lonely and confusing time) you can come to this diary and process your grieving in whatever way works for you.  Share whatever you need to share.  We can't solve each other's problems, but we can be a sounding board and a place of connection.

 

Have you listened to Randy Pausch's "Last Lecture"?   Dr. Pausch is a 47 year old man who has been fighting pancreatic cancer for a couple years now, and likely has only a short time left.   As a father of young children, he wanted to leave his teaching career with one last, special lecture for them to watch when they're old enough.  If you haven't seen it, you may want to watch the short version of it that he gave on Oprah.   The full version is on his site (linked above), as are videos of his Congressional Testimony and his public service message on behalf of PanCAN (the Pancreatic Cancer Action Network).  [edited to add: I wrote this diary late Saturday night, and woke up to a Sunday paper featuring Dr. Pausch on the cover of Parade.   Glad to hear the word is getting out there.]

I won't go into the details of his lecture (which he gave when doctors told him he had 3 to 6 months left); you can watch it for yourself or read the book version.   I highly recommend that you watch at least the short version, if you can't sit through the full, 76 minute video.

In addition to being inspired by Dr. Pausch's message, I'm fascinated by his perspective.  He knows what life is for, and he's using some of the limited time he has left to share that knowledge with us.   We humans don't like to be reminded of our mortality, which is why most of us feel uncomfortable in the presence of a terminally ill person.  We worry we'll say something awkward, or we don't know what to say at all.   The entire time Dr. Pausch speaks, despite his healthy appearance, you know that he will be dying soon.  Yes, that colors the impact and effect his words, but not the way you might expect.  Instead of simply inspiring sympathy, his illness testifies to the truth and importance of his perspective.

I know a bit of this perspective, having accompanied my mother on her journey.   We agreed early on that we wouldn't be "brave" for each other, or try to "comfort" away tears when they came.  It was perfectly fine for either of us, in our daily phone calls, to weep... or not.  Nothing needed to be hidden; no one needed to be protected from grief, as if that were even possible.  Instead, what was most important is that we got said what needed to be said.  We did what we needed to do.  We lived so that we would have no regrets.

______

A year has passed.  My perspective has shallowed in some ways, and deepened in others.   I have mostly fallen back into the habit of scurrying through my days - busy, busy - and failing to honor that they are numbered, and therefore each is precious.  But some of the lessons have stuck: we have made decisions based on quality of life, trading the economic security of a decent job that made my husband unhappy daily for the freedom of freelance work that allows him to be with our boys after school every day.   We have reduced our time doing things like watching TV, and instead are playing games and gardening together.

I wonder what my mom would think, if she could see us now.   Would she be happy?  Proud?  Worried?  Probably all of the above.   My family no longer talks about her daily, but she remains a popular topic - she still inspires interesting discussions, such as one I had with my stepfather about whom she would be supporting, if she were around to witness this extraordinary primary.  (we both think it would be tough for her to decide, but that she'd have gone with Obama in the end)

_______

It may sound like hyperbole, but I feel that Johannes Brahms's Ein Deutsches Requiem, opus 45  may be one of the finest pieces of music ever written.  I can think of no better comfort to offer.

The texts are Biblical, but ecumenical - even transcending any particular faith or non-faith:

I. Blessed are they that mourn: for they shall be comforted. They that sow in tears shall reap in joy. Matthew 5:4
He that goeth forth and weepeth, bearing precious seed, shall doubtless come again with rejoicing, bringing his sheaves with him. Psalm 126:5,6

II. For all flesh is as grass, and all the glory of man as the flower of grass. The grass withereth, and the flower thereof falleth away. 1 Peter 1:24
Be patient therefore, brethren, unto the coming of the Lord. Behold, the husbandman waiteth for the precious fruit of the earth, and hath long patience for it, until he receive the early and latter rain. James 5:7  
But the word of the Lord endureth for ever. 1 Peter 1:25
And the ransomed of the Lord shall return, and come to Zion with songs and everlasting joy upon their heads: they shall obtain joy and gladness, and sorrow and sighing shall flee away. Isaiah 35:10

III. Lord, make me to know mine end, and the measure of my days, what it is: that I may know how frail I am. Behold, thou hast made my days as an handbreadth; and mine age is as nothing before thee. . . . Surely every man walketh in a vain shew: surely they are disquieted in vain: he heapeth up riches, and knoweth not who shall gather them. And now, Lord, what wait l for? my hope is in thee. Psalm 39:4-7  
But the souls of the righteous are in the hand of God, and there shall no torment touch them. Wisdom of Solomon 3:1

IV. How amiable are thy tabernacles, O Lord of hosts! My soul longeth, yea, even fainteth for the courts of the Lord: my heart and my flesh crieth out for the living God. Blessed are they that dwell in thy house: they will be still praising thee. Psalm 84:1,2,4

V. For here have we no continuing city, but we seek one to come. Hebrews 13:14  
Behold, I shew you a mystery; We shall not all sleep, but we shall all be changed, In a moment, in the twinkling of an eye, at the last trump: for the trumpet shall sound, and the dead shall be raised incorruptible, and we shall be changed. . . . then shall be brought to pass the saying that is written, Death is swallowed up in victory. O death, where is thy sting? O grave, where is thy victory? 1 Corinthians 15:51,52,54,55  
Thou art worthy, O Lord, to receive glory and honour and power: for thou hast created all things, and for thy pleasure they are and were created. Revelation 4:11

VI. Blessed are the dead which die in the Lord from henceforth: Yea, saith the Spirit, that they may rest from their labours; and their works do follow them. Revelation 14:13

I like the Robert Shaw/Atlanta Symphony recording... but Solti/Chicago is good, as is Levine/Chicago - guess I'm prejudiced towards American performances.  Really, though, you can't go wrong.  Virtually any recording will do!

If you sing or play an orchestral instrument, I hope you have had or will have a chance to perform this piece.   If not, I hope you hear it live sometime.  It is life-altering.   It's amazing to think that this is what Brahms did with the grief he felt from his own mother's death.

I'm humbled - my grief did not inspire me to write a masterpiece.  It did not inspire me to give a lecture that has touched millions.  But it did change me, and will continue to do so.   I am acutely aware of my mother's continued presence in my heart, guiding me through the days I have left, however many or few they may be.  

Thank you, grief, for this perspective.

As always, here is a link to all the previous Grieving Room diaries.  

Tags: The Grieving Room, death, grief, series (all tags) :: Previous Tag Versions

Permalink | 95 comments

  •  Tips and thanks (27+ / 0-)

    for coming by tonight.    Please feel free to lurk, reply, or just tell us about your personal loss or grief journey.

    If you find this series valuable, and think you might be able to host a coming week, please volunteer by replying here.   I appreciate it.   The current calendar is:

    April 14
    April 21
    April 28 - filled by exmearden
    May 5
    May 12
    May 19 - filled by x
    May 26
    June 1

    Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

    by Dem in the heart of Texas on Mon Apr 07, 2008 at 05:50:58 PM PDT

    •  Dear Dem, this is one of the most beautiful (3+ / 0-)

      things I've ever read:

      Nothing needed to be hidden; no one needed to be protected from grief, as if that were even possible.  Instead, what was most important is that we got said what needed to be said.  We did what we needed to do.  We lived so that we would have no regrets.

      To live transparently; to love openly; to speak our truths without fear.  I am in awe and so very moved that you and your mother experienced this together.

      Please, if it is still available, I would like to volunteer to host the May 5th edition.

      Thank you for everything.

      Though a war may well be "too stupid," that doesn't prevent its lasting. Stupidity has a knack of getting its way. --Albert Camus

      by GreenMtnState on Mon Apr 07, 2008 at 07:49:07 PM PDT

      [ Parent ]

      •  it's all yours, GMS - (1+ / 0-)

        Recommended by:
        cfk

        thank you!

        Yes, all of those things are sort of the strange gift that a terminal diagnosis gives.  It makes the pain worth something, after all.  As hard as it is to watch a loved one die, the benefit is being able to be there with them.  

        I don't know if you saw "The Bucket List," but the Jack Nicholson character, after a particularly bad chemo experience, looks at himself in the mirror and says, "Somewhere, some lucky bastard is having a heart attack."    For my mom's sake, I wish she had gone that way - quick and mostly painless.  But for MY sake, I'm glad I had that year to say goodbye a thousand times.

        The new calendar is:

        April 14
        April 21
        April 28 - filled by exmearden
        May 5 - filled by GreenMtnState
        May 12
        May 19 - filled by x
        May 26
        June 1

        Thank you - and many {{HUGS}}.

        Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

        by Dem in the heart of Texas on Mon Apr 07, 2008 at 08:05:29 PM PDT

        [ Parent ]

        •  May 5 (1+ / 0-)

          Recommended by:
          Dem in the heart of Texas

          Dem,  

          I haven't seen "The Bucket List," but it sounds like I need to see it!  Thanks for the reference.  I very much relate to the emotions of wanting to say a proper "goodbye" and also wanting your mother not to suffer.

          I'm really looking forward to hosting the diary, and I feel competing emotions about it.  There is so much one could say.  Where to even begin??  And how to create the sort of welcoming, nurturing environment that will invite people to join a conversation -- or simply to stop and say "hi?"

          It will be a great honor.

          Though a war may well be "too stupid," that doesn't prevent its lasting. Stupidity has a knack of getting its way. --Albert Camus

          by GreenMtnState on Tue Apr 08, 2008 at 07:56:30 AM PDT

          [ Parent ]

          •  I probably wouldn't have (1+ / 0-)

            Recommended by:
            GreenMtnState

            gone to see that movie if I'd known what it was about... people dying of cancer.  Still, although it has some flaws, I think it has a really strong message and is incredibly well acted.

            Just pick one thing and riff on it.  You can host as much as you like, so there will always be another diary to explore a different aspect.

            Whatever you do will be wonderful - I have no doubt!

            Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

            by Dem in the heart of Texas on Tue Apr 08, 2008 at 12:24:01 PM PDT

            [ Parent ]

            •  May I host the April 14th Grieving room? (0+ / 0-)

              I got on the rec list with my announcement that my wife died, just a month ago.  In this comment thread, I caught a reference to pre-grief.  I have been going through pre-grief for six years.  Anyway I hope this comment reaches you, Dem, or whoever needs to see it.  And, I have a busy day planned, but I intend to take time to write a diary...I suppose I could write it now, and save it in limbo, until this evening.  I will look for a response to this comment to see if I am accepted.  Hey, how do I get my diary into the grieving room, instead of just in the normal flow of diaries?  I will look for your answer.

      •  I'm looking forward to your May 5 diary, GMS (2+ / 0-)

        Recommended by:
        cfk, Dem in the heart of Texas

        you have said so many touching and insightful things in your comments.

        Politics is like driving. To go backward, put it in R. To go forward, put it in D.

        by TrueBlueMajority on Mon Apr 07, 2008 at 08:18:26 PM PDT

        [ Parent ]

  •  my kid brother died (22+ / 0-)

    a little over two years ago. I still think of him every day.
    I am going to write a diary about his convoluted life someday, I'm just not ready yet. I miss you Tim.

    The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same." Carlos Castaneda

    by FireCrow on Mon Apr 07, 2008 at 06:03:05 PM PDT

  •  Condolensces to you (18+ / 0-)


    Dem-in-TX, for the first anniversary of the loss of your mother.  I've read your heartfelt commentary closely, to see what it might feel like.  I'm facing the loss of my mother, too, maybe this year.  Thank you for what you posted in memory of your mother.  It's helped me, too.

    Peace and comfort be with you.

    s.p.

    "A bad government is elected by good people who do not vote in elections." -- Unknown, pg 342, "The Shell Game" by Steve Alten

    by sockpuppet on Mon Apr 07, 2008 at 06:03:44 PM PDT

    •  it's hard (13+ / 0-)

      but it's the natural order of things.   I just wish my mom had had a longer life (68 just doesn't feel like a full-length life).  I also wish that she hadn't had to live in pain as long as she did.

      Sometime, I'm going to diary about my thoughts regarding assisted suicide.

      Thanks, sockpuppet.

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 06:06:25 PM PDT

      [ Parent ]

      •  Your mother was indeed young (9+ / 0-)


        when she passed.  That must've been really hard.  My mother is 83 this year.  She's lived a long, full life.  

        I've also thought a lot about assisted-suicide.  My mother isn't suffering in great pain (not now), but her quality of life is so miserable to her (massive right brain stroke causing left-side paralysis), she is tired now and she says she just wants to go.  

        I'm sure your mother's passing was a relief to you, if she was in great, prolonged pain.  I think I know how I'll feel when my mother goes, but sometimes I'm not sure how it's going to affect me.  Which is why I ask others who've already lost a parent what it's like in the aftermath.  Thank you for what you wrote in your mother's honor today.  I hope someday I can do as well.

        "A bad government is elected by good people who do not vote in elections." -- Unknown, pg 342, "The Shell Game" by Steve Alten

        by sockpuppet on Mon Apr 07, 2008 at 06:13:13 PM PDT

        [ Parent ]

        •  the relief (7+ / 0-)

          it is another thing to feel guilty about!

          I was relieved when she finally died.  She had her last sips of water late on a Saturday night, and she didn't die until the following Friday (I got there on Tuesday - she looked as though she was already gone).   She just kept breathing and staying barely alive (often without a discernable blood pressure, according to the hospice nurse).  It was like being with a newborn - lots of hours of nothing.

          The night before she died, I said to my step-dad, "human beings shouldn't have to go through this."  He actually agreed.

          I will keep you and your mom in my prayers.  May her passing come quickly and painlessly, and may she and you be delivered from this difficult time.

          Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

          by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:04:29 PM PDT

          [ Parent ]

        •  sockpuppet, I understand your question (7+ / 0-)

          about what it's like in the aftermath, yet I wouldn't dare say that my experience of grief will be yours, or anyone else's.  At the same time, it can be a comfort to see the "continuum" of grief, to see the range of experiences and emotions that many of us feel.

          Anticipatory grief is incredibly difficult, and I am sorry for your pain.

          Dem in the Heart of Texas and sockpuppet, I really don't think that any amount of years with our mothers would ever be enough.  My mom was 55.  Whatever we have, we want more.  It's simply never enough.

          Though a war may well be "too stupid," that doesn't prevent its lasting. Stupidity has a knack of getting its way. --Albert Camus

          by GreenMtnState on Mon Apr 07, 2008 at 07:27:00 PM PDT

          [ Parent ]

          •  I think you're mostly right... (2+ / 0-)

            Recommended by:
            sockpuppet, cfk

            ... though my stepdad lost his mother a few months before my mom's diagnosis... she had been 96, and had been ready to go for several years.  Her dementia caused her to be paranoid and difficult to assist.  Really, by the time she was gone, there was very little emotion left except for relief.

            That was a particularly poignant death.  Other that that dementia, she was abnormally robust.  Still, she had a fall and had to go in a care facility for a bit.  There, she contracted scabies, which became so severe, she had to be hospitalized.  The end result of that was a series of strokes that finally took her.  

            Regarding anticipatory grief - I will testify that the "real thing" is so much easier, since it tends to (over time) ebb.   "Pre-grief" only flows and intensifies.  I suspect it is the more difficult, stressful state.

            You're absolutely right - no journey is exactly alike.  If it were, we wouldn't need outlets like this to express our particular experience.  

            I'm very much looking forward to your diary on May 5th!  Thank you so much for stepping forward.

            Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

            by Dem in the heart of Texas on Mon Apr 07, 2008 at 08:10:57 PM PDT

            [ Parent ]

      •  Hi Dem (4+ / 0-)

        Beautiful diary, a great memorial tribute, I think your mom would be proud.

        Please don't think I'm going all righteous and offended here but I just wish somehow we (not just you specifically) could come up with a better term than assisted "suicide". Actually I don't like the word in regard to any kind of death because it's too "loaded" but I'm beginning to beleive that some suicides are not by "choice" as would be the case with the terminally ill.
        My thoughts on this are so confused that I even hate to say more but someday maybe I will try to diary about it.
        Sorry for just throwing that in there, my brakes don't work too good lately.

        Our collective heart can carry this pain and help unburden us as we share.

        by NewDirectionsMom on Mon Apr 07, 2008 at 07:51:07 PM PDT

        [ Parent ]

        •  I agree - and I wish (3+ / 0-)

          Recommended by:
          sockpuppet, texasmom, cfk

          there were a better term... the word is too loaded (although the fact that you and others here have been able to share your experiences with us has really helped lessen that ancient stigma for me).  

          I don't like "euthanasia" either - that sounds too much like what we do for our pets (in that it is something that they have no say over).  

          Medically ending a life for someone in pain needs to be patient directed, and that's what makes it such a loaded issue.   I would have done it for my mom - and viewed it as the best gift I ever gave her... and she knew that, yet didn't ask at a time that I could have done it (though about three weeks before she died, she was torn between her pain and her fear of dying - and actually begged me to do her in with a baseball bat.  I had to tell her no - that was a bad day).

          I'm glad you dropped by tonight.  How are you doing?  And the rest of your family and your son's family?   You're all in my thoughts a lot.

          Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

          by Dem in the heart of Texas on Mon Apr 07, 2008 at 08:01:05 PM PDT

          [ Parent ]

          •  I would have (3+ / 0-)

            "helped" my mom along too, if she had asked and if I could find good means. I'm halfway convinced that my sister did, but that's another story. And even if it is true, I'm grateful to her. I know I would want the same for myself, although neither of my sons could do it. I made a living will and named my friend as proxy, she could do it. She lost her husband to pancreatic cancer about 4 years ago by the way. He went down to Brazil? to try that "John of God" guy. I think the trip is what did it for him but that was his choice.

            I'm doing ok, for the moment, it comes and goes. It's good to be here, I always lurk. Just usually can't get into posting.

            Our collective heart can carry this pain and help unburden us as we share.

            by NewDirectionsMom on Mon Apr 07, 2008 at 08:12:57 PM PDT

            [ Parent ]

  •  A rich diary, (11+ / 0-)

    and very intune with what I've experienced with death throughout my humble time on this rock.

    Your mother held out for quite a while!  The pain she must have felt would have been agonizing, but the time you get with loved ones is always precious, and always rare.

    As for music, Brahms is ridiculously underrated.  His inclusion in the There Will Be Blood Soundtrack (with Arvo Party and Radiohead's Jonny Greenwood, who wrote the score) had me giddy.

    Plus, he knows what crapped out means, which will help him explain his condition on the morning of November 5 - PBCliberal

    by Nulwee on Mon Apr 07, 2008 at 06:11:27 PM PDT

  •  My condolences to you, DinHoT (9+ / 0-)

    My mother passed away at 68 as well, and so did my father a few years later. I just passed the 11th anniversary of my mom's death on March 27.

    I was haunted for a long time that I hadn't done everything that I could. I was 27, newly married, and I lived 2 hours away. My husband and I were both working low-paying jobs and could not afford to take more time off. I saw her almost every weekend during the year that she was sick. (she had congestive heart failure and diabetes complications) The end came fairly suddenly - my father had to place her in a nursing home for rehab (another source of guilt for me), and she contracted pneumonia 3 days later. The last words that anyone heard her say was when she told the ER nurses "No CPR." She lived for 3 days after that - I fought to honor her wish of no extreme measures - and she passed away about 30 seconds after I left her hospital room to walk outside. (I have since heard that it is somewhat common for the dying to wait to pass on in this way)

    It sounds like you and your mom lived to the fullest once you got her diagnosis. You are so lucky and I'm sure that you cherish the time that you had.

    I hope that you can find peace. I think of my mom at some point every day, but now I am able to think of the good times. It wasn't always that way.

    My very best to you.

    January 20, 2009: I'd like President Obama for my birthday, please!

    by cerulean on Mon Apr 07, 2008 at 06:23:00 PM PDT

    •  have you given yourself some (7+ / 0-)

      forgiveness for your perceived shortcomings during the time your mom was dying?   I hope so.  It sounds like you were with her as much as I wish I had been with my mom.

      I had all sorts of wishe & regrets.  One was:  "If I had known she'd die only three years later, I would never have moved across the country away from her - I would have had her and my kids together every day."
      It's a nice thought, huh?   But completely ridiculous.  My mom was the one who suggested the move!  

      Yes, we did make our relationship and our connection a priority.  But it's never enough.  I had work and a family to care for, two thousand miles away from where she was dying.  I tried to get her and her husband to come live with us (I live 15 minutes from MD Anderson Cancer Hospital) - but nothing doing.  She was determined to die at home.   Thankfully, that's how it turned out... and I visited three weeks before and managed to come back again three days before, and I held her hand as she breathed her last.  I have no regrets, other than not being with her 24/7 from day one of her diagnosis.  It's not reasonable, but it's still what "should have been."

      Your mom was probably waiting for you to leave her so she could go on her own.  My mom was resisting till the last.  They surprise us, those moms!

      I do have peace, mostly.  Thank you.  I hope you

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:00:35 PM PDT

      [ Parent ]

  •  this is such odd timing (17+ / 0-)

    I found out just yesterday that my father has been diagnosed with pancreatic cancer.

    I can't believe I am reading this diary on Daily Kos ... where I am obsessively following politics to try to keep from thinking about the horrible things that are in front of me and my family.

    We don't know what the staging in or what his treatment will be. But he is alternately resigned and angry as hell, and feels he will be dead in 6 months. My mother, who herself has — incredibly — survived three cancers, is scared to death. All of us kids are trying to organize how to respond.

    I am a fairly stoic and practical person, so maybe I am still in the shock stage.

    Anyway, thanks for posting this and I will try to make use of the resources you suggested.

    Whoever considers one person's life more valuable than another's will soon find himself unworthy of his own.

    by rilkas on Mon Apr 07, 2008 at 06:23:27 PM PDT

    •  you will be in shock (8+ / 0-)

      for a bit.  It comes and goes.  

      I knew nothing of pancreatic cancer.  I had never heard of anyone having it.  My mom had been visiting, and was clearly having a really hard time eating/digesting - lots of discomfort and food coming back up.  I asked her to make an appointment to get checked out, and she went, about four days after she got home.

      She called that night, and her words were (I'll never forget this):  "Oh, honey. It's really not good.  It's really, really bad, actually."

      She told me she had a gumball sized tumor (the big gumballs that cost a quarter) on her pancreas.  I went to google and typed in pancreas tumor, and it was like my entire life had crashed around me.  I had perfect clarity: my mother is going to die, and it's going to be soon.

      She always said she wouldn't opt for drastic measures, and asked if I would help her die if she needed me to.  I said yes.  However, in the end, she put her husband in charge of her care, knowing that he was going to make her fight.   He didn't agree to hospice until she was essentially comatose.  Still, his support and his refusal to quit probably gave her six more months of life than she would have had if I'd been calling the shots.  Of those six months, perhaps three were decent, including one last Christmas that none of us will ever forget.

      Make your memories now.  Your dad could have a week or a year... or maybe even be cured (wouldn't that be amazing?).  It does happen (Marilyn Horne and Pavarotti were diagnosed at the same time - he's dead and she's now cancer-free).

      I'm sorry that you'll be riding this roller coaster from hell.  I wish I could tell you it will be OK.

      You may want to read back - I especially suggest this diary on the beginning of healing, and the   first TGR diary, wherein I wrote:

      She lived a year - a relatively rare feat with Stage IV pancreatic cancer.   There was one crisis six months ago that she survived (more details in my diary), and a whole lot of "closure" - a whole damn YEAR of closure - of saying "I love you" because it might be the last time, of wondering whether each event was the last one of its kind for her.

      The pre-grief sucked.  It just plain sucked.

      I decided to stop grieving her while she was alive, and I even let myself slip into taking her for granted again... stopped calling daily, etc.  Sometimes it seemed like she might be able to just continue her chemo (which wasn't bad when it didn't give her an infection of some sort) and go on for years.

      But, it didn't work out that way.   One day, she got a pain in her back, and went to the hospital, and the final, slow decline began.  It took two months to kill her.

      SO:  Grief.   This kind, the "normal" post-death kind, is hard.  It's easier in some ways than the "feeling doomed" one gets in a terminal illness... but it's still no picnic.

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 06:45:57 PM PDT

      [ Parent ]

      •  thanks (9+ / 0-)

        for your support. You are very kind.

        I am still just trying to take it all in.

        I was always the most optimistic of the kids and I always felt that that helped my parents with their health battles in the past. It's strange when you think somehow if you will it strongly enough, you can change something just by thinking it.

        I thought that about my mother's stage 3 lymphoma. I told her she could be cured by chemo even when she was ready to give up, and the rest of the family was consumed with gloom. And it worked, she didn't give up and she is now cancer-free. It was a miracle, honestly. But somehow I don't think that will work this time.

        Thanks again for your kind words. It is helpful that other people are there.

        Whoever considers one person's life more valuable than another's will soon find himself unworthy of his own.

        by rilkas on Mon Apr 07, 2008 at 07:17:02 PM PDT

        [ Parent ]

        •  I'm so sorry for the shock of this diagnosis (5+ / 0-)

          after your family has suffered so much.  I'm glad that you will have resources here -- and you do; lean on us for moral support.

          Blessings to you, your family and father.

          Though a war may well be "too stupid," that doesn't prevent its lasting. Stupidity has a knack of getting its way. --Albert Camus

          by GreenMtnState on Mon Apr 07, 2008 at 07:38:07 PM PDT

          [ Parent ]

        •  hope and pray for that miracle (3+ / 0-)

          (don't let us shoot that down)... and prepare for the worst.  That's what I did.  Honestly, my mom should have been dead six months before she was, and the reversal of that still amazes me.  She had gotten down to 83 pounds I think it was - she simply couldn't eat.

          Finally, we got them to put her on liquid nutrition through her IV port.  It's like "ensure" straight into the veins.  The problem is, it tends to feed tumors and infection as it feeds the patient.  Still, it was enough for her to gain back thirty pounds and make a trip to Texas for the best Christmas of our lives.   So, there can be little miracles there.

          Go read about Marilyn Horne's recovery - people DO survive this.  Go to the PanCAN site and order up the patient/family packet.  Put on your purple ribbon.  Fight!  Win!  Nothing would make me happier.   Go read Randy Pausch's health update page, scroll back to the beginning, and see how much life can be prolonged with enough will and luck.

          Please - keep the optimism, but always keep a plan for the inevitable (after all, we're all mortal).  

          Please come back and keep me updated, OK?  I'll be pulling for your dad and you!

          Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

          by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:54:09 PM PDT

          [ Parent ]

    •  Rilkas... (2+ / 0-)

      I am so sorry.  You are just where I was a little over a year ago, when I, too, hoped to let my brain escape this diagnosis for a moment by reading a little Dailykos.  The surprising thing was that I found some of my most helpful support and solace here.  DemInTheHeartofTX was almost exactly a year ahead of me and I found her to be a valuable voice.  

      As for info:  PanCAN was very helpful.  Also, check out the board at Johns-Hopkins.  There is lots of good info out there as you learn more about staging, etc. It's a tough diagnosis, but my Mum lived 14 months with the most aggressive type of pancreatic cancer (representing less than 1% of pancreatic cancers).    

      The pre-grief stage is rough, but use the time you have been given.  My Mum lived far away - and even though it was difficult for me and my family - I traveled to see her almost every month of 2007.  And much of this time was truly wonderful.  She really knew how much I loved her.  We made the most of it.  My heart goes out to you, Rilkas.  Make the most of this time and please check back in with us.  My thoughts are with you...

      "Loving deeply gives you courage." Peter Jennings

      by Needa Bigger Pretzel on Mon Apr 07, 2008 at 10:19:57 PM PDT

      [ Parent ]

  •  The loss of your parents (9+ / 0-)

    is so hard no matter what age they are...
    My mother died  after a 5 week illness.  She went into renal failure.  My Dad died the next year in accident. It has been 5 years but I grieve for them sill every day.

  •  March 30, 2006 was the day of (7+ / 0-)

    my grandmother's funeral.

  •  DithoT..... (12+ / 0-)

    That first year is brutal and I'm glad you have had the ability to post about your experiences and feeling along the way.  My condolences for your loss.  Your mother would be very proud of you for what you have done with this series to help yourself and others.

    This coming Saturday will be the 15th anniversary of my son's death by suicide.  So much has happened in this family and the world since he left it.  He served in the first Gulf War and I'm glad he didn't see the second one with its aftermath come around.  But I'm so sorry he has missed the lives of his brother and sister and the births of a nephew and two nieces.

    I still missed him dearly but the waves grief don't beat on me anymore - just a haunting sadness at times.  He was a fine and loving man.

    Be kinder than necessary, for everyone you meet is fighting some kind of battle.

    by Cronesense on Mon Apr 07, 2008 at 06:45:25 PM PDT

    •  with your son (9+ / 0-)

      it's not just the personal loss of a loved one, but also the mystery of suicide.  And even more than that (to my mind - I'm guessing here), I expect that the loss of a child brings the perpetually unanswered questions: what would he have been like now?  And now?   And now?   Do those questions ever go away?

      You're right - it's been hard, and having this series has helped me a lot.  But honestly (and not to play "one-up" with grief), you have been through something that I can only imagine the horror of.  I suppose I would eventually work through it as you have, but it's just so monumental to contemplate.

      "Brutal" is a good word - and my last two years have certainly had brutal periods.  Thankfully, I can report that it is getting better all the time.  

      Thanks for being here.

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 06:50:58 PM PDT

      [ Parent ]

      •  No, those questions never go away, dear..... (11+ / 0-)

        I often wonder what he would be like, look like and the direction his life would have taken.  And how our family would be without that hole in it that is always there when we get together.  Happy occasions are tinted a bit with sorrow that he is not here to share, but at least we got to the point that we could enjoy them again - differently.

        We go through life expecting that our parents won't live forever but hoping we will never lose our children.  It is different but your pain is just as important and qualified as mine.

        Be kinder than necessary, for everyone you meet is fighting some kind of battle.

        by Cronesense on Mon Apr 07, 2008 at 07:03:37 PM PDT

        [ Parent ]

        •  Yes (6+ / 0-)

          Indeed, pain can not be qualified, no question....it all stinks.
          What saddens me mostly about grieving Joey is that there is not now and, I think, never can be any more room for anything added.
          My mom died not to long ago and my father too, before that but I have a hard time feeling anything about their loss now. And I loved and needed them both dearly.

          Our collective heart can carry this pain and help unburden us as we share.

          by NewDirectionsMom on Mon Apr 07, 2008 at 08:02:31 PM PDT

          [ Parent ]

          •  amazing how one (2+ / 0-)

            Recommended by:
            cfk, Ellicatt

            death can eclipse the others.  Of course, we're supposed to survive our parents... and our children are supposed to survive us - that's the way we expect life to go.

            Ask any parent - what you've gone through is probably one of our biggest fears - unthinkable... yet you've got to think of it every day.

            I sense that you're like me - you're going to let it out and express it and process it, perhaps for the duration of your days.  I believe (and hope) that your pain will ebb over time.

            Can you elaborate on this?

            What saddens me mostly about grieving Joey is that there is not now and, I think, never can be any more room for anything added.

            I think I get your meaning, but I'm not sure.

            Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

            by Dem in the heart of Texas on Mon Apr 07, 2008 at 08:17:02 PM PDT

            [ Parent ]

            •  I just feel (3+ / 0-)

              as if mom got "put on the shelf" so to speak. I feel as if I would like to be "closer" to her memory or spirit, commune with her but my heart is just so full of Joey.
              During her last days I had a wonderful dream about mom. In it she had wandered out of her hospital bed and was walking around outside on the wet grass. I was very concerned that her socks were getting wet so I picked her up and carried her like my child. It was a comfort to me to comfort her.
              Now I can't carry them both. I know she would understand and want me to hold my son but....I miss her.
              Strange that I just remembered this. I asked her what I could do "with my life" FOR her. She said "Just take care of the boy". She had been hallucinating about a mysterious "boy".

              Our collective heart can carry this pain and help unburden us as we share.

              by NewDirectionsMom on Mon Apr 07, 2008 at 08:37:45 PM PDT

              [ Parent ]

              •  I meant (2+ / 0-)

                to add that mom was as close, if not closer, to Joey than I was.

                Our collective heart can carry this pain and help unburden us as we share.

                by NewDirectionsMom on Mon Apr 07, 2008 at 08:39:48 PM PDT

                [ Parent ]

              •  I suspect that (1+ / 0-)

                Recommended by:
                Cronesense

                you will continue to process both losses - it's hard to do simultaneously (like learning two foreign languages at the same time) - so your brain will probably dwell on one for a bit, then switch over.

                The grieving WILL happen.  Your dream is proof of that (and it sounds like it was a lovely one).

                Do you think Joey's suicide might have been (even a teeny little bit) driven by grief about your mom (or the attempt to stave off that grief)?   I know that's probably a pointless question, as are most "what if" questions when the primary source of information is not around to ask... and I hope you don't mind me asking it.   It's just that I know how hard it can be for people to experience their grief... and how insidious it is in our unconscious if we deny it.

                No need to answer - it's just a thought that popped into my mind.

                Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

                by Dem in the heart of Texas on Mon Apr 07, 2008 at 08:44:51 PM PDT

                [ Parent ]

                •  it's (2+ / 0-)

                  not a pointless question at all. I have thought a lot about that. They had a special bond and Joey didn't show it but I know losing her must have been a turning point for him. I have never known anyone who was as family oriented and when mom died a whole era did, for all of us really but I think especially Joey.
                  There is, of course, some comfort in thinking that he was reunited with her, as I've been wonderously able to do. I'd lost all belief in any "hereafter" since moms death and before Joeys. But I knew I wouldn't survive if I didn't recreate it somehow. It's a grand delusion, but I'm sticking to it :)

                  Our collective heart can carry this pain and help unburden us as we share.

                  by NewDirectionsMom on Mon Apr 07, 2008 at 09:09:21 PM PDT

                  [ Parent ]

                  •  I'm glad that (1+ / 0-)

                    Recommended by:
                    Cronesense

                    I didn't overstep my bounds.  You're a remarkably open person, NDM.

                    I would love for you to read the Afterlife edition of this series.  Not the diary, so much... but the COMMENTS.  I was floored by the diversity of afterlife beliefs here.  Truly - it is beautiful to read, and it gave me so much comfort.

                    Perhaps it's all a grand delusion... but no one can prove that it's NOT, any more than they can prove that it IS.

                    Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

                    by Dem in the heart of Texas on Mon Apr 07, 2008 at 09:20:43 PM PDT

                    [ Parent ]

    •  evocative (4+ / 0-)

      the waves grief don't beat on me anymore - just a haunting sadness at times.

      what an evocative way of describing it.

      my heart will be with you as your sad anniversary approaches, Cronesense.

      Politics is like driving. To go backward, put it in R. To go forward, put it in D.

      by TrueBlueMajority on Mon Apr 07, 2008 at 08:04:08 PM PDT

      [ Parent ]

      •  Thank you, TBM...... (1+ / 0-)

        Recommended by:
        Dem in the heart of Texas

        that comforts me to know.

        Be kinder than necessary, for everyone you meet is fighting some kind of battle.

        by Cronesense on Tue Apr 08, 2008 at 07:19:59 AM PDT

        [ Parent ]

        •  My heart also Cronesense (2+ / 0-)

          As I'm sure you know there's really nothing to say that will help much know that you're not alone. I will be thinking of you and your son. Do you mind telling me his name?

          Our collective heart can carry this pain and help unburden us as we share.

          by NewDirectionsMom on Tue Apr 08, 2008 at 10:46:40 AM PDT

          [ Parent ]

          •  His name...... (2+ / 0-)

            was Eric, ND.  Blond hair, green eyes and a mega watt smile.

            I don't know if you ever read this comment from a diary I posted long ago in his death, but here goes....

            He died on a cold, rainy day the day after Easter in 1993 and I wrote this on that first awful Mother's Day the next month.  

            THE RED TENNIS SHOES

            The last thing I remember was walking out of the funeral home with a box of my son, ashes in my arms.  The next thing I knew was that I was sprawled on hands and knees in a greasy parking spot with the box tumbling in front of me.

            Many strange thoughts can rush through your mind in split seconds like that.  Stunned from the fall with my hands and knees buring, I just wanted to stay there for a few moments lost in a flashback that the fall caused that happened so many years ago.  I suddenly saw him as his two-year old self.

            When he was just two-years old and I was very pregnant with his sister, I went to the local Woolworth's to buy fixings for his Easter basket.  It was there that I saw the little red tennis shoes. This was back in the days when children were only suppose to wear leather, hard-soled shoes, but I fell in love with those little red tennis shoes and he was going to have them no matter what.

            I paid for my purchases and rushed my bloated body out the door only to trip off the edge of the curb.  Over I tumbled and sprawled with my packages rolling in front of me.  A woman rushed up to me to inquire about my condition and was so hysterical that she wanted to call an ambulance. I assured her that I would call the doctor when I got home and she finally let me go.

            When I walked in the door I burst into tears.  My husband was alarmed assuming that I had been in an accident.  I finally managed to stammer through my tears that I had just fallen down.  He soothed me for a while and then we both started to laugh.

            I showed him my treasures - especially the red tennis shoes.  When my son woke up from his nap it was love at first sight.  He had to put them on right away.  He wanted to sleep with them that night.

            So there I was, reliving a moment of sheer joy wrapped inside a moment of profound agony.  I slowly got to my feet, and picked up the box of his ashes.  I opened the car door and sat there for awhile remembering the little tow-headed boy in love with his first pair of red tennis shoes whose ashes sat beside me on the seat.
            ~~~~~~~~~~
            Falling off the curb that day was a gift to get me through that awful experience of taking his ashes home.  As painful as it was to see that happy little boy in my mind, it got me home in one piece.

            Be kinder than necessary, for everyone you meet is fighting some kind of battle.

            by Cronesense on Tue Apr 08, 2008 at 11:56:40 AM PDT

            [ Parent ]

  •  Well (8+ / 0-)

    Grief is something that I need to work through. I don't feel comfortable listing the losses that I've endured on a public board, but I have to work various losses.

  •  spectacular diary, DemintheheartofTexas (6+ / 0-)

    such richness of memory, such a thorough tribute.

    true, your grief may not have inspired you to do what Brahms did or what Pausch did, but your grief did inspired you to ease the loneliness of the grief journey for so lots of other people.  to give of yourself when you are also in need is a true act of character.

    i cannot tell you how much help you were to me in tremendously dark days when I did not even realize your own grief was just as fresh.  i know that others here owe you the same debt of gratitude.

    your description yesterday was so encouraging.  "lots of memories, mostly happy, some bittersweet."  that's a pretty good day anytime, grief anniversary or no.

    peace be with you.

    Politics is like driving. To go backward, put it in R. To go forward, put it in D.

    by TrueBlueMajority on Mon Apr 07, 2008 at 07:09:05 PM PDT

    •  {{{Hugs}}}, sweetie. (6+ / 0-)

      I'm glad you're here.  I hope our moms are having a wicked game of hearts with my grandma right now!

      I think the old gals would be proud of their girls, don't you?  (Well, my mom would gently suggest that I put down the chocolate and get back on my diet... but, hey, she's my mom).

      Lots of love.  Thanks for doing this series with me.  I wonder if we'll pass it down... and if anyone will want to take it...  not now, of course!

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:14:18 PM PDT

      [ Parent ]

  •  A wonderful diary...just beautiful (7+ / 0-)

    thank you!!  I think your testament to living differently is important, too.  Kudos to you and your hubby.  Making memories is so important for the children.  

    {{{{{{HUGS}}}}}} to all wherever you are in this journey.

    Join us at Bookflurries: Bookchat on Wednesday nights 8:00 PM EST

    by cfk on Mon Apr 07, 2008 at 07:13:34 PM PDT

    •  thanks, cfk - (4+ / 0-)

      Recommended by:
      TrueBlueMajority, cfk, Cronesense, willb48

      it's funny - it's like my husband was gone for two years... well, not quite that long.  Things started getting out of hand for him in his job around the time my mom got sick.  Hmmm... coincidence?

      He turned 50, and he felt like he was completely missing out on his "real" life.  I wanted my husband back.  Those things are more important than any amount of money - if the last two years taught me nothing else, it is that!

      Thanks for coming by tonight, as always.  {{HUGS}} back at ya!

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:24:44 PM PDT

      [ Parent ]

  •  wonderful tribute (8+ / 0-)

    as you know dem i just had the first year anniversary of my son's passing this past saturday(this is Dante's Mom)

    your diary is a very eloquent tribute even if for me it was a bit of a challenge to read.

    The year for me has been excruciating as I have no support to speak of and am having to travel this journey on my  own.

    Blessings to you and thank you for inviting me over to read the diary.

    We will have to repent in this generation not merely for the vitrolic words and actions of the bad people but for the appalling silence of the good people-MLK

    by digitalmuse on Mon Apr 07, 2008 at 07:17:10 PM PDT

    •  thank you for coming by. (4+ / 0-)

      Recommended by:
      TrueBlueMajority, cfk, Cronesense, willb48

      If you read back to some of the older diaries - be sure to read the comments - that's where the beauty and true sadness is.  Don't miss the ones that exmearden wrote.  

      Yes, these can cause tears... but I maintain that tears that are not cried out can turn poisonous to us.  They WILL get out, one way or another.  Let them flow when you can.

      I'm so, SO sorry for the loss of Dante.  What a beautiful, brilliant young man.  Cancer SUCKS.

      One more thought for you.  Just after my mom's death, my young niece was crying.  I asked her what she was feeling, and she said, "Hate. I HATE cancer."

      I don't know how this popped into my head (I suspect it was my mom's doing), but I said to her, "remember that the cancer that killed Grammy also killed itself.  It is no longer living, and you don't need to fear it.  That tumor is ashes now."

      She really held onto that idea, and it helped her through those weeks.

      Many {{HUGS}} to you, digitalmuse.

      Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

      by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:29:21 PM PDT

      [ Parent ]

      •  What a Thought (4+ / 0-)

        I had never thought of this.  I still have my brother's ashes.  My relatives wanted to scatter them on the family plot in Uvalde, TX - but I couldn't bear to let go of them.  I think I am ready now - but it seems so final.  Perhaps next year.

        •  I kept a little bit of them (4+ / 0-)

          Recommended by:
          TrueBlueMajority, texasmom, cfk, willb48

          I got some ziplock baggies, and put about a half teaspoonful of my mom's ashes in nine of them.  Each grandkid and kid got a baggie.  There are lovely, tiny pendants you can buy to hold a tiny bit of them.

          [one practical and grisly note of caution - the ashes can contain some bigger bits of bone/teeth - be sure to put those back to be scattered with the rest - and sorry to be gross, but it's something you need to prepare for.]

          Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

          by Dem in the heart of Texas on Mon Apr 07, 2008 at 07:46:04 PM PDT

          [ Parent ]

      •  I can relate to the feeling of "hate" (1+ / 0-)

        Recommended by:
        Dem in the heart of Texas

        but i wish mine was so "specific" my son was my only child and the only family i have here in NYC his father and i divorced years ago so his passing meant literally that i am completely on my own which makes things all that more difficult and as to outside support - it felt like people were just too overwhelmed to deal with me - not because i was hysterically distraught - but because the sadness of the situation was too much for them to deal with so for the most part people just backed off....which only reinforces the situation more. Like this weekend no one called...and actually i heard from his transit friends that had started a thread on the message boards that he used to hang around on aside from that nothing else was said or done - and the kicker to all this is I don't get "time" to digest these things - I have to go to work or as sad as things may seem right now they would be much worse...

        We will have to repent in this generation not merely for the vitrolic words and actions of the bad people but for the appalling silence of the good people-MLK

        by digitalmuse on Tue Apr 08, 2008 at 05:28:22 AM PDT

        [ Parent ]

        •  Please, please, please (0+ / 0-)

          I know your time is limited.  Please reach out - and I'm happy for you to reach to me.   I am a sympathtic ear, if nothing else.  

          You need a place to let it all out.  This can be that place, or you can write me privately.  smnytx at yahoo dot com.

          I just sense that you're full of pent-up emotions that need to be released.  Most people don't want to be reminded of your loss (mortality really scares them, or they just don't know how to relate).  

          I'm sorry that Dante's anniversary went mostly unnoticed.  But it wasn't totally - many, many people read your diary and went to read about that wonderful young man that lit up the world while he was here.  

          I worry about you - without emotional support or release - and without time and energy to devote to anything but getting by.  I hope I can help in some tiny way.  Please reach out and let me know if I can be a shoulder for you.

          Join us in the Grieving Room on Monday evenings to discuss mourning and loss.

          by