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Listed dates are Sundays, 7pm eastkost time, 4pm leftkost, usually running 3-3½ hrs, sometimes longer, to fit some part of everyone's afternoon/evening. See logobox below for more about the discussions. We also publish & republish between Sundays. Midweek upcoming schedules usually post between Wednesday & Friday. See our archive for past diary examples & useful reading.

July 20 -  "Recent medical journal discussions, controversies, research & opinions on obesity, diabetes, high blood pressure, other cardiovascular & kidney issues, food&diet, what exercise is, drug/medication effects & adverse effects, etc., 155+ links" - by mettle fatigue

July 27 - Tentatively scheduled diary on "Dyslexia" by duhban

August 3 - OPEN THREAD NIGHT & POTLUCK: bring a favorite surprising medical/health thing you found out about, and/or one you wonder about!

August 10 - . . . . . . . . . . . . . . . .your diary and here!
August 17 -  . . . . . . . . . . . . . . . .and here, too!
August 24 -  . . . . . . . . . . . . . . . .and even here!
August 24 - working title "Living with Brittle Diabetes from the Caregiver Viewpoint" -
                                                  by michelewln

September 7 - OPEN THREAD NIGHT & POTLUCK: bring a favorite easy recipe!
October 5 - OPEN THREAD NIGHT & POTLUCK: bring a favorite pet peeve!
November 2 - OPEN THREAD NIGHT & POTLUCK: bring a favorite quote...other than yer sig line!
December 7 - OPEN THREAD NIGHT & POTLUCK: bring a favorite(?) household disaster!
January 4 - OPEN THREAD NIGHT & POTLUCK: bring a favorite bad joke!
February 1 - OPEN THREAD NIGHT & POTLUCK: bring a favorite bumpersticker!
February 8 - “Never Again: Coming to Grips with Life After Stroke” by Steven Park

KosAbility diaries can be one paragraph, two, twenty, or more. Unscheduled diaries in planning/drafting stage are: ■  fibromyalgia treatment ■ more on music & health ■ Irish Red Algae moss extract research effective nasally in fighting common cold virus ■ SLIDESHOWS of what happens with our bones in several kinds of arthritis, fingernail abnormalities as clues/signs of larger disorders, the knees are the first to go and how doctors evaluate where they're going, foods that may be good for the brain and foods that may be bad, the good and bad of alcohol ■  ...and whatever you our members have on your mind that you'd like to write & talk about! New to diary writing? New Diarists is a wonderful group to ask questions, get answers, learn, practice, and find coaches/mentors, all at your own pace.

Wikipedia says August is National Immunization Awareness Month, National Psoriasis Awareness Month, National Water Quality Month, Cataract Awareness Month, Children's Eye Health and Safety Month, Children's Vision and Learning Month, Get Ready for Kindergarten Month, Neurosurgery Outreach Month, Spinal Muscular Atrophy Awareness Month, What Will Be Your Legacy Month, Win with Civility Month, the first week is the first week of August is World Breastfeeding Week and the annual Pennsic War (chirurgeon! chirurgeon! fighter down! Och, ye boorgus fratch!), August 19 is World Humanitarians Day recognizing those who have lost their lives working for humanitarian causes and the efforts of all carrying on, August 30 is International Day of the Disappeared, drawing attention to the fate of individuals imprisoned at places and under poor conditions unknown to their relatives and/or legal representatives.

ShoshannaD, who's started a Get Out The Vote 2014 group and diary series of how-to and who's-doing-it, is looking for writers to compose or collaborate on a diary for the end of July about effectively getting differently abled, disabled, housebound and chronically ill people registered and voting —especially for states that obstruct absentee ballots. Contact her if you'd like to work on that diary.Click on the link to her page or group to "follow" those diaries (for newcomers, that means her diaries will be listed in your Stream in your WelcomeBack box, top right corner of every DK page).
KosAbility logoKosAbility is a Sunday 7pm eastkost/4pm leftkost volunteer diarist series, as a community for people living with disabilities, who love someone with a disability, or who want to know more about the issues. Our use of "disability" includes temporary as well as permanent conditions, from small, gnawing health/medicl problems to major, life-threatening ones. Our use of "love someone" extends to cherished members of other species.

Our discussions are open threads in the context of this community. Feel free to comment on the diary topic, ask questions of the diarist or generally to everyone, share something you've learned, tell bad jokes, post photos, or rage about your situation. Our only rule is to be kind; trolls will be spayed or neutered. If you are interested in contributing a diary, contact series coordinator postmodernista.

Poll

What diaries would you like to see soon at KosAbility?

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| 15 votes | Vote | Results

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Comment Preferences

  •  Daily Kos Health-Medical & Related Groups (12+ / 0-)
    HEALTH-MEDICAL & RELATED DailyKos GROUPS

    KosAbility maintains this DIRECTORY of these groups as a longterm DK reference service. Currently, it lists about 25 daily-living-with-it groups focused on specific health concerns, and about 20 more on political, professional, reform, volunteerism, morale-support and helping issues.

    The project aims for mutual-benefit interaction among the groups, and to help kosaks connect with groups they need, give a start to kosaks forming new health-med groups, and invite similar groups to be added.

    For more information, kosmail to project-runner mettle fatigue. Please share the directory link with any kog who would benefit from knowing of these groups.

  •  I'd like to see any and all of the above. (5+ / 0-)

    I chose the last option in the poll, however, because I know of a few diaries I'd like to write but haven't had the time to do so yet.

    Ideally, I'll have time this weekend to mull & flesh out the rather generic "diaries I'd like to write" into something a tetch more substantial.

  •  Not Fair! (4+ / 0-)

    We can only choose one!

    I like to see some "any of the above", per GreyHawk.

    We discover in ourselves what others hide from us, and we recognize in others what we hide from ourselves. --Anonymous

    by Steven Park on Thu Jul 17, 2014 at 04:06:58 AM PDT

  •  I would like to see people talk about their (2+ / 0-)
    Recommended by:
    Kit RMP, mettle fatigue

    experiences using alternative and integrative health care.

    "It were a thousand times better for the land if all Witches, but especially the blessing Witch, might suffer death." qtd by Ehrenreich & English. For Her Own Good, Two Centuries of Expert's Advice to Women pp 40

    by GreenMother on Thu Jul 17, 2014 at 04:35:15 AM PDT

    •  Yes, that's such a growing field of possibilities! (1+ / 0-)
      Recommended by:
      GreenMother

      And with more and more mainstream medical interest because of the recognition of costly it is to treat the side effects of conventional care (i.e., mostly drugs and surgery).  It's unfortunate that it took $-cost to drive a widening of spectrum of care, but at least we're getting more of those options now.

      I do hope diarists will volunteer to write about those experiences - we'd all benefit!

      •  I want to talk about it, but I feel a bit afraid (1+ / 0-)
        Recommended by:
        mettle fatigue

        of being dogpiled by people who are militantly against it.

        You can get to a point, where emotionally you are dealing with so much, that you just cannot take that sort of thing, like you would under normal circumstances.

        I am using several alternative treatments right now, in addition to having undergone 2 surgeries and have found the Mainstream Medical Community to be consistently and continuously maddening and unhelpful in terms of Misdiagnosis, gender bias, fat bias, and total, unmitigated ignorance with regards to nutrition and supplementation.

        "It were a thousand times better for the land if all Witches, but especially the blessing Witch, might suffer death." qtd by Ehrenreich & English. For Her Own Good, Two Centuries of Expert's Advice to Women pp 40

        by GreenMother on Fri Jul 18, 2014 at 08:35:24 AM PDT

        [ Parent ]

        •  see if tomorrow's diary helps any? (1+ / 0-)
          Recommended by:
          GreenMother

          it's most a huge collection of links to plain-english medical journal articles including several of self-criticism within the medical community about body biases, prejudices, the critical necessity for nutritional counseling by well-qualified professionals (e.g., PhD) and related topics.  the article links are listed alphabetically by title, so readers need to scan/scroll down to find the ones they're most interested in.

          ironically, in the early years of social welfare reform in the u.s., the field of nutrition made major discoveries and achieved major accomplishments where the field of medicine could not because widespread health problems that were nutritional rather than medical in nature, and medical schools developed pretty good nutritional curricula their students had to learn.
                a double-PhD (public health nutrition and public health administration) i know (in her middle-80s these days) who lectured & taught at conferences etc a number of places in the world, for years ranted about ongoing decrease of nutrition education in medical training. my impression is that the development of antibiotics as "miracle drugs" initially shoved everything else "per oral" off the page, and as increasing discoveries of more and more illnesses and disorders existing than anyone had imagined put more and more pressure on medical education and continuing medical education, nutrition remained marginalized.
               The growing corporatization of farming and the methods involved appear to have decreased nutrients in the food supply in subsequent years, but unfortunately in the U.S. we have no tradition of home food gardens that the British & Japanese & some other cultures have.  There is a growing community-garden movement in the u.s., 'though.  ideally and theory, taking evolution into account, all needed nutrients ought to be obtainable from food, but of course the ideal is rarely a problem situation!

          oops, i went on a bit there. sorry. come to tomorrow's diary if you can, or look it over some other time at your convenience. I would think an objective diary on the topic[s] you're interested in, or a personal diary of your own unique experiences with those issues, would both fit with KosAbility's aims. Of course these can be controversial, so how readers would react/respond, 'tho, I'm less sure. With positivity and respect for the writer's circumstances, I hope!

  •  It would be nice if there were a way to pick (1+ / 0-)
    Recommended by:
    mettle fatigue

    a version of "some, though not all of the above" as a choice. I also like GreenMother's suggestion. My biggest concerns are with depression and the like issues, dementia issues, given family history, and coping with loved ones with physical issues. Close enough to "all of the above" if you get right down to it, I guess.

    What I want to know is, who's going to pay for these crimes against humanity that those b@st@rds are perpetrating against the rest of us?

    by Kit RMP on Thu Jul 17, 2014 at 01:14:25 PM PDT

  •  Howdy Folks! (1+ / 0-)
    Recommended by:
    mettle fatigue

    I'm stuck out in the orange sea... with "USS Outrage" chasin & all turrets fixed.. Need. a. faster. boat! Maybe one huge trampoline to bounce 'em crazies back?

    That new big hole in Siberia? Can we send the lyin 'n denyn' GOP on a "fact finding" climate mission?

    Up ahead, a hydrolic cheeto vortex?

    Lots of news on endo-disrupted. Fukushima had a story of up to or over 200k kids had lost their thyroids... it was over @ commondreams.org.

    Then the latest with "roundup." GMO's etc. I'm not idealogue but(?), frank (& beans) - all the "science" isn't in on this SHIT because we are the science? And bugs & we be gettin' sick? Huh.

    If I say I quit writin hopefully it means I will get a chance to write more coherent stuff with sources that are verifiably sorta reliable... truth.

    Been collecting alot of links on the "endo-hormone" front.

    I like anti-bacterial-milk w/ hyperbolic GMO-cide flakes!

    ((((kosability))))

  •  Personal Experiences Conflict (2+ / 0-)
    Recommended by:
    catilinus, mettle fatigue

    What benefits one person with chronic disabling whatever harms another. And often a person who found GF, Cymbalta, or LDN etc to be a big help promotes their experience as a general boon.

    Conversely, people might have a strong disapproval of options: homeopathy=are you crazy? Or, Big Pharma always lies and just wants your $$.

    There are countless forums and support groups online. Some focused on specific health issues, others on general ways to help yourself. What I've found over years of following different Lyme groups is that lack of Moderators/Admins allows newly diagnosed people to be inundated with conflicting, often dangerous, advice. And people who are healthy and those wedded to Standard Western Med can be dismissive of what truly helps us, such as anti-inflammatory diet, nutri genomics, body/mind practices.

    Thus, Diaries on how to treat, what is health condition X, my personal experience with Lyme, etc are abundant online. And, in many cases, are great resources when members don't pontificate their individual experience as a generality.

    What I'd like to read on DK is info and opinion about broader sociopolitical aspects of disabilities. Some examples: how can society adapt to and include a population with 1:50 babies having ASD? What can we citizens of the US (UK, AU etc) do to help the epidemic of tick-borne diseases that our CDC's and official medical groups fail to accurately recognize? What are strategies for addressing the role of untested consumer products (e.g., BPA, phthalates) that contribute to poor health.

    These topics are intrinsic to our health/disabilities issues and deserve intelligent discussions.

    I never thought much about any of this until Lyme sabotaged my life 15 years ago. Such a shock to discover how messy it is to find meaningful information and truly helpful medical care. And the overarching sociopolitical aspects are intrinsic to the messiness.

    •  Welcome to DKOS Besame. (1+ / 0-)
      Recommended by:
      mettle fatigue

      Check the diary date you commented in. It is From Wednesday. Most diaries are read only for a day or two. Hence, to have the wider community actually see your comments you should try to post around the time they are published (within a few hours is best). For example, this diary talks about publishing -

      All listed dates are Sundays, 7pm eastkost time, 4pm leftkost
      give it a shot, and good luck.
      Welcome to Daily Kos. If you have any questions about how to participate here, you can learn more at the Community Guidelines, the Knowledge Base, and the Site Resource Diaries. Diaries labeled "Open Thread" are also great places to ask. We look forward to your contributions.
       ~~ from the DK Partners & Mentors Team.

      It will never happen for the first time until it does.

      by catilinus on Sun Jul 20, 2014 at 01:19:29 PM PDT

      [ Parent ]

      •  Hello catilinus (0+ / 0-)

        thanks for bringing those valuable resources to the conversation and explaining about the usual time-frame in which comments and responses ordinarily mesh in most groups and diaries.

        KosAbility is a little more flexible where timing of comments and responses is concerned. KosAbility is a community of kogs who are living with disabilities, who love someone with a disability, or who want to know more about the issues —our use of "disability" includes temporary as well as permanent conditions, from small, gnawing health/medical problems to major, life-threatening ones— and all our active admins are people in this situation ourselves, so we understand that not everyone can participate in a discussion they'd really like to right at the time it's happening "live" on schedule. Many of us are also caregivers and must prioritize the needs of the person or family we've taken responsibility for.  Because of these factors, our active admins routinely check back for late-arriving comments in order to respond at least 24 to 36 hours after the scheduled time, and sometimes we keep checking back if we see there's a steady trickle of comments continuing. Naturally, we encourage all our diarists to do the same as consistently as their health issues allow.

        I believe others among the health-medical & related groups have a similar policy or informal practice, because their members' life situations are subject to the same constraints.

        And, of course, we encourage readers to take all the time they need to absorb and consider the information and experiences in our diaries, because we're here to help each other and ourselves. And, after all, people struggling with health or medical difficulties may be pretty depleted of physical and mental energies, so we feel that a more flexible, welcoming and collegial timeframe will optimize our learning curves!

        I guess this is one more way that people with disabilities may be different from the rest: we have more patience as well as more patients!
        ;-)

        Thanks again,
        --mettle fatigue

    •  There is a Lyme Disease Group in DK (0+ / 0-)

      which you can reach by clicking on the directory link of the Health-Medical& Related Groups big blue graphic at the bottom of the diary that posts Sunday Jul 20. It's in the very first comment ("tipjar").

      The directory link takes you to 2 lists of all the groups we at KosAbility know about so far.  The big blue graphic explains what's different about the 2 lists. Have a look, I hope you'll find the directory useful.

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