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Destitute Trixie--quite how I feel
A small outcry has been made for new diaries from the disadvantaged.

I'm certainly one of that group. Im on SSI, its my only income save $18 a month from SNAP. I have no family to live with, no rent-controlled housing. My roommate and I split the rent in a 2-bedroom. That takes 48% of my income. We're responsible for the utilities, including heat.

Yes, I'm applying for help, what there is of it. There's not much. Such is life. And I do know about beans and rice.

Today I went to the Food Pantry. Not to get food (although I came away with some much appreciated bread!), but to tell them that on days when they're open I'm willing to be there to help, in addition to being a client. They were slightly gobsmacked, but I need to do more than sit around and craft. And while I desperately need food, at least this way I'll feel I'm earning it.

I still don't have a bed since Púka's health scare, but at least he's doing well now.  With SSI being what it is, the camp bed will be my permanent bed. There's nothing to be done, even if it shortens your life. It seems like that's what the GOP wants anyway. They know that $721 isn't enough to live on.

Hell, my new doctor thought SSI paid for my prescriptions. Oh, the look on his face when I gently set him straight. At least he doesn't believe that I'm faking. I just can't get what I need.

I'm sorry if this is all over the place. I'm having a breakthrough migraine, and I can only see straight forward.

What was pride again?

I'm tired--migraine and all without the correct meds--but I'll be back in the morning.

As a thought question while I'm AFK--those of you with fairly high salaries, how do you feel about the DKos members on SSDI and SSI? I'd really love to see some honest answers in the comments. It won't hurt my feelings, and this serves as a content warning.

Fri Jul 18, 2014 at 10:20 AM PT: Imagine if one of the well-heeled, or even Markos set up a fund for those of us on SSI, SSDI and UI. No paperwork that the gov't hasn't already seen. No more begging diaries. Scams eliminated, because they can be pointed to the proper place. It needant even all be for money.

Too many of us need help. The grand majority of this site closes it's eyes to all but a few good writers. Please, we're people too.

What say you?

Originally posted to Lorelei who now lives in Maine on Thu Jul 17, 2014 at 06:43 PM PDT.

Also republished by Income Inequality Kos and CareGiving Kos.

Poll

What's your income?

15%12 votes
21%17 votes
12%10 votes
14%11 votes
5%4 votes
5%4 votes
11%9 votes
8%7 votes
2%2 votes
2%2 votes

| 78 votes | Vote | Results

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Comment Preferences

  •  Tip Jar (18+ / 0-)

    “He said it was better to belong where you don't belong than not to belong where you used to belong, remembering when you used to belong there.” ― Terry Pratchett, The Wee Free Men

    by LoreleiHI on Thu Jul 17, 2014 at 06:43:02 PM PDT

  •  no medicaid? (6+ / 0-)

    Im on SSD and medicare now but back when I was on SSI it was Medicaid.
    When they moved me from SSI to SSD they moved me from medicaid to medicare, id rather have stayed on Medicaid as it at least provided some dental and paid for most meds with a 3$ copay.

    •  They've lost the paperwork multiple times in this (5+ / 0-)

      state. With 'apologies'.

      I have a social worker now who's getting it done, since the agency can't seem to find a simple form, no matter how many times I came to the office and asked for it by name.

      So I'm paying for all my meds over the counters. Well, all my meds that I can afford. ><

      “He said it was better to belong where you don't belong than not to belong where you used to belong, remembering when you used to belong there.” ― Terry Pratchett, The Wee Free Men

      by LoreleiHI on Thu Jul 17, 2014 at 07:23:53 PM PDT

      [ Parent ]

      •  Since you implied it, (3+ / 0-)
        Recommended by:
        LoreleiHI, Youffraita, kfunk937

        What GOP state might this be?

        •  It's in my profile so no secret-- NH (1+ / 0-)
          Recommended by:
          Youffraita

          “He said it was better to belong where you don't belong than not to belong where you used to belong, remembering when you used to belong there.” ― Terry Pratchett, The Wee Free Men

          by LoreleiHI on Thu Jul 17, 2014 at 09:24:53 PM PDT

          [ Parent ]

          •  I don't really like (3+ / 0-)
            Recommended by:
            FloridaSNMOM, GAladybug, LoreleiHI

            RiteAid all that much -- they are merely the closest drugstore to where I live. However. A few years ago, I needed a script and the druggist got me a card to save me money on future scripts.

            Fast forward to last week: new script, didn't know where money-saving card was. Girl behind the counter said, "I can look it up" and she DID.

            I would still prefer to go to a family-owned druggist: I loathe these behemoth chain stores.

            But Rite-Aid, being one of the few choices I have, has been OK. Not great, mind you, but OK. I do not wholeheartedly rec them. They are still corporate scum.

            But some of the people employed there are really great.

            English usage is sometimes more than mere taste, judgment and education - sometimes it's sheer luck, like getting across the street. E. B. White

            by Youffraita on Fri Jul 18, 2014 at 01:19:23 AM PDT

            [ Parent ]

            •  Rite Aid is walking distance (1+ / 0-)
              Recommended by:
              Youffraita

              But their prices are sky-high. Their staff encourages me to go elsewhere.

              Hannaford does it's best to give me  good value. I can afford most' as long as the manufacturer isn't putting a limit on it (my migraine meds and my Skelaxin). But it's tough to go out there.

              Other hand, I can get what meager shopping I can afford done.

              My roommate gets more SNAP that I do. She gets more for her SSDI. She's on Medicare. She's mad. She hates that I sleep on a camp bed, but really, what can I do?

              “Nobody made a bigger mistake than he who did nothing because he could do only a little.” – Edmund Burke
              I do fiberwork commissions now that I'm settled. Email or DM if you are interested!

              by LoreleiHI on Fri Jul 18, 2014 at 11:02:05 AM PDT

              [ Parent ]

              •  Chain pharmacies are all that's left here. (0+ / 0-)

                We do go to Rite-Aid for most things; their hours are good for us, they know us on sight and by name (I am on a lot of scrips and Charles is on several) and have given us terrific service for years, and I have to only use one pharmacy. It's in my fucking pain contract. (And what a piece of work pain contracts are, but I won't vent in your diary.) I haven't comparison shopped at the other chain pharmacies in town, most of which are in grocery stores. The only one that isn't is Walgreen's and their service is terrible. We had transferred all our scrips there several years ago and were back at Rite-Aid within two months. Nothing we can do about how much scrips cost for the most part because we have prescription coverage through Charles' work insurance. Some of Charles' scrips can be had cheaper at Fred Meyer and he gets those there but I am stuck. With 28 scrips, I need to keep everything all in one place for my safety, and the Rite-Aid pharmacists have caught dangerous drug interactions in a couple of cases, making sure the scrip got changed before it got to me.

                Lorelei, I missed what happened with Puka (will go back and look at your diaries that I missed) and why you sleep on a camp bed, but is there someplace  close by where you can pick out a bedframe and the type of mattress you need and then let me run a fundraiser to get it bought, delivered, and set up for you, along with some pillows, sheets and blankets for whatever size bed it is? I can't afford to contribute much most of the time (I'm on SSDI; thank the Gods for Charles' job! The greater Seattle area is an expensive place to live [though Kitsap County's a little bit less so] but I had a good job and was pre-disabled when I moved here from the much more expensive Bay Area), so my contribution needs to be in the form of making a fundraising effort happen. I'll be happy to once we get Chacounne's power bill squared away (I have a fundraiser diary for her coming later today; she's about to get power and water cut off unless she has the money to them by Friday, and there's a bit of a saga there). I think we need to get you off the camp bed, especially since it's shortening your life!

                Yeah, I know a lot of people hate fundraising diaries. Too bad. They aren't forced to read or particularly in them. If I see a Kossack I know and trust in need, I am going to do what I can about it. Sometimes that's giving up a lot or going in the hole or waiting a while to pick up and pay for scrips (using up some or all of the emergency supply I slowly, carefully build for each scrip I can, everything except pain stuff) in order to buy something from a crafter or artist in need, sometimes it's participating in and/or organizing a fundraiser.

                It took me five years to qualify for SSDI (that's Social Security Disability for those who get SSI and SSDI confused - I know YOU know the difference but other Kossacks get them confused a lot) and for nearly two of those years I was already on dialysis, which is supposed to be an automatic qualifier. I had to get a lawyer and wait years to go through a hearing before an administrative judge and she wanted to deny me anyway, even though I'd already been on dialysis for over a year and a half; it was SSA's own medical expert (who literally phoned in; he never once examined me) who told her she had to approve me. They had to award me the maximum (two years) back SSDI; even though the medical expert said I had been disabled for much longer, two years is it. That was also the waiting period to get Medicare, so I was awarded that, too, which was ironic. I had been on Medicare since starting dialysis. It's an automatic qualifier if you have the work credits, like SSDI is supposed to be and so rarely is.

                I earned my SSDI by working for 30 years, including quitting university to work full-time. For fifteen of those thirty years, I had two jobs, one fulltime or over fulltime (usually at least 60 hours a week) and one that often approached fulltime. Then my hands stopped working; I lost the ability to grip and my hands became flippers. At that time the pain started, never ending pain every second of 24/7, bad enough for tears to fall unbidden from my eyes.

                I don't know if you will see this so long after you posted your diary so I nwill Kosmail you too.

                An organ donor saved my life! Shop Kos Katalogue

                UID#39520 01/06/2005

                by Kitsap River on Tue Jul 22, 2014 at 06:51:18 AM PDT

                [ Parent ]

  •  I collect SS Disability (7+ / 0-)

    I am fortunate enough to have other sources of income so at least food and rent are not daily concerns for me (though I am far from going out and buying a Porsche or some of those mansions on Million Dollar Listing).  My defense of my receiving disability is that I earned my disability by working for almost 50 years and now, with the toll taken on my body, I am no longer able to work.

    It also took me 4 years to qualify for disability.  From reading comments on other sites, this seems to be the average wait and having to hire an attorney is common. What is almost unheard of is being approved when you apply yourself the first time.  I lived those 4 years on savings and selling things and going without medical care (so the gout went from mild to severe but hey, it helped with my SS app in the end)

    How could someone help you?  You are in NH which is a fair distance from me

  •  Ah, ent (4+ / 0-)
    Recommended by:
    Youffraita, WakeUpNeo, eyo, FloridaSNMOM

    People in out situation always want to help each other out. I think that in our case, with similar belief systems and medical issues, a commune-type community could work.

    How to get the initial funding... that's a stumbling block.

    No, look at the poll. That's a very small portion of DK, right? And even so, look at the first quartile that posted. To get me the bare basics of a bed, it's $301. To throw in some pillows and a goose-down (I don't regulate temperature), the total goes to $447. To give me some freedom for a few months, double that. Would a millionaire miss it? A thousand dollars? Or a car to someone who's unable to walk without pain?

    Of course, to me, that's more than I get in a month. It's everything. And I have to find a way to pay for everything with it.

    Hmmm. Idea for a diary.

    “Nobody made a bigger mistake than he who did nothing because he could do only a little.” – Edmund Burke
    I do fiberwork commissions now that I'm settled. Email or DM if you are interested!

    by LoreleiHI on Thu Jul 17, 2014 at 10:47:25 PM PDT

  •  I've got medical (2+ / 0-)
    Recommended by:
    PinHole, LoreleiHI

    but they assigned me to a doctor I can't use. They assigned me to the local clinic. I've been there once before and I like it. However, they use same day appointments. You call, you get an appointment that day. They are a 2.5 hour walk from my house, and we have no car. Medicaid transport would take me, but you have to call them 3 days ahead. Can't do that with same day appointments. Thus, if you use medicaid transport and live too far from the clinic you can't go to the doctor.
    Now the first book I got from the medicaid provider with the doctor list (I wasn't on medicaid yet, but the kids were), there were about 10 doctors in the area that took the medicaid plan, which would have been ok. The new  book they just sent out, there's only 4 listed for adults, and 2 of those are at the clinic. So I have to call and see if one of the other 2 are ACTUALLY accepting new patients (because often they're not) and then try to get the doctor transferred to one of them. I'm considering just going to the one at the health department if he has slots open, that's only about a 10 minute walk. The other doctor is on the other side of town and I'd have to rely on medicaid transport.

    The last time I tried to call them for a pulmonology appointment, they had no funds for the rest of the month and we ended up shelling out for a cab both ways. I was able to plan for that and we managed it, but it took food out of the grocery budget to do it. I can't always do that in a more urgent situation.

    "Madness! Total and complete madness! This never would've happened if the humans hadn't started fighting one another!" Londo Mollari

    by FloridaSNMOM on Fri Jul 18, 2014 at 07:56:11 AM PDT

  •  Hi all! (1+ / 0-)
    Recommended by:
    FloridaSNMOM

    It's great to see your 'faces'.

    We can tell from the poll that others are reading (and can barely understand our almost Third World lives), but even when I asked for discussion (although I can see now it may have been poorly worded--untreated migraine), it's mostly just the poverty gang here.

    Sometimes it's just hard. People make the strangest assumptions. And then among some of the worst heat you'll get moments of astounding generosity.

    There are OTC medications that I would not have if a Kossack had not sent me a year's supply. But allergy meds are cheap! you say. Well, at that point I was homeless and had no income, and my allergies are very severe. The box itself with all it's beautiful stamps brightened my month.

    And the other Kossack who, last year, paid for Pùka's annual and all that came with it. I straight-up cried. I'm upset that his heartworm meds are hostage (homeless means trapped and vulnerable), but I was able to get more. :) Now I just think it's a sad commentary.

    “Nobody made a bigger mistake than he who did nothing because he could do only a little.” – Edmund Burke
    I do fiberwork commissions now that I'm settled. Email or DM if you are interested!

    by LoreleiHI on Fri Jul 18, 2014 at 10:05:53 AM PDT

  •  Sorry I lost my glasses (2+ / 0-)
    Recommended by:
    LoreleiHI, ladybug53

    I can't republish your post to the KC group because I can't see the list well enough. I republished to income inequality Kos  in hopes it will get more eyes and then someone will repost it to the disability groups too. Income inequality is at the bottom of my group list so I didn't need to see it to pick it.

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