Yes, it's a Seinfeld reference, because I feel I am caught in an episode of his show. That is, the more things ever-so-slightly change, the more stasis has a tight grip on me.
There are so many areas where this really applies. Still can't find work. Still can't move forward on IVIG as a therapy. Still can't begin any IV nutritional supplementation. In fact, I am presently on NO supplements at all, waiting for one last (I hope) blood test later this week.
The ever-so-slight changes involve theoretical, future change, really.
I saw a neurologist in NYC who ran tests like a brain EKG, an eye test and both legs for an EMG. Her diagnosis: Chronic Inflammatory Demylinating Polyneuropathy. Her suggested therapy: IVIG. Except there's still no way forward from her office on doing it, despite the fact I made a deposit on it, to show I was serious about it. I have called about this and even called the company who would likely administer it under her script. Zilch. The problem: insurance.
Yet I went back to the first neurologist I saw earlier this year, who had also recommended IVIG, but sent me to someone who found an excuse to not pursue it. (She said "I have no problem signing off on this BUT I wonder why you haven't had a spinal tap.) Neither my GP nor any other doctor I've recently seen is on board for the necessity of her desire to do a spinal tap. Frankly, to me it's a dodge to actually do the therapy recommended to me. Likely this is an insurance problem as well as guidelines set by them and various medical agents acting in THEIR interest, not patients.
The neurologist who sent me to her was under the impression that she had started the therapy. Nope. Showed him a copy of the letter I sent her and my note on it that I called his office and another office about a month later (where she personally knew one of my doctors). Both offices said she never called.
I was surprised and gladdened to learn that this neurologist (not the NYC one) may recover his hospital admitting privileges and do the therapy himself. That would just leave me with having to recover my deposit from the NYC office. But I have to wait and see if this is indeed what plays out. So I do nothing but wait.
I guess I am good at waiting. After a small hiccup was resolved, my registration and receipt of a medical marijuana card has come to me. I have everything I need to get started on its potentiality to make improvements in my health (the CBD component alone has many useful properties). But since I have yet to take my last blood test, the policy of no herbs, no vitamins, nothing non-Pharmaceutical, remains. If I am lucky this version of being "on the wagon" ends this week. The last blood test that involves measuring neurotransmitters in a more sophisticated way than done so far. So I need to have as little as possible interfere, though I am taking Nature-Thyroid, Low Dose Naltrexone and generic Librax, which I hope will not overly skew the results.
I sure know I am looking forward to resuming the progesterone cream I have. I have had back pain and, while Candida is part of the story, the discovery of two ovarian cysts of significant size is the other. I think a better balance of hormones (I am estrogen dominant) will have an impact on my reproductive system and thus the cysts. I know not being on it had other negative effects in recent weeks.
Wait, wait, hurry up waiting! At least I know some of my complications: estrogen dominance; Candida; adrenal insufficiency; non-functioning thyroid; insufficient epinephrine, noraepinphrine, and dopamine; MTHFR mutations; HHV-6 virus; EBV; possibly Ehrlichia or Bartonella along with Babesia duncani.
So I've kept what I'm doing to try to get better being the pharmaceuticals to be as simple or un-affecting of blood work as possible. I drink a wonderfully tasting Dandelion tea (with some natural/organic vanilla flavor). I had added some fermented garden vegetables into my daily salad. I also have done several sessions of colon hydrotherapy to try to rid my body of any remaining remnant of the things that caused my severe autoimmunity problems a few months ago. I suspect a very gas-laden digestive tract has made that challenging.
After the second hydrotherapy session, I felt acid reflux problems for the next 24 hrs or so. Didn't know if flaxseed or the hydrotherapy brought it on. Eliminated the flaxseed, though I may try it again.
The biggest pain is probably that I have to go to traffic court of a county road that I think was unfairly marked. Besides, I was driving it after 5 pm. No one braked at a 45 mph limit dropped to 25 mph and there were 2 lights that cut into speed. The 45 sign is inches from the end of paved road; the signs for 25 were somewhere between 5' and 5 yards from the edge of the road. And since it was the end of the month, quota and trap are two words crossing my mind. The cop starting referring to a day care center and reduced limit and I didn't see either. I'm looking at traffic and keeping with it. Since no one else noticed or cared, I smell a very stinky rat, esp. since I crawled through that second light. So I doubt the "clocked" speed, too. I even object to characterizing where this "speeding" took place as residential. How are a daycare center and garage "residential?" Someone wants to have it both ways.
If they really cared, why wasn't the sign inches from the pavement? I don't have to be too big a cynic to answer that. But the ticket made me have to get a lawyer when I found out what they would do to my license (4 pts) if I did not. Wish me luck. I have no idea how strabismus or hobbling me will fare as a defendant.
And for that, too, I wait -- though I hope to get pictures of the signs, meantime -- and just also have to hope they didn't move 'em just to stick me.
Thu Jun 25, 2015 at 3:21 PM PT: And the NOTHINGNESS continues. I have no idea why but my last test is predicated on day of monthly and by the time I was asked, it was several days too late. I have to WAIT another MONTH for. In the meantime, I am going to resume supplements till day one (at least). Because it has been pretty ridiculous.