Skip to main content


Sat Dec 14, 2013 at 02:00 PM PST

MS: Three Treatment Options for CCSVI

by verokos

Recent research into Professor Zamboni’s « Liberation Procedure » has focused on his idea that blood « refluxes » (backs up) into the brain/central nervous system because of stenosed or damaged veins, thereby triggering an inflammatory response which damages the myelin sheath and other tissue.  He proposes opening blood flow through the stenosed veins with “balloon” venoplasty.

While results have been promising, questions persist. Not all people exhibiting stenosis of the veins have MS, not all MS patients have stenosis (or CCSVI).   Some patients enjoy spectacular recoveries after venoplasty, others see little or no improvement. Through experience and the use of the Intravenous Ultrasound, Interventional Radiologists have dramatically reduced an early high rate of Jugular vein problems. Because of opposition to the procedure by those attached to the auto-immune theory of MS, CCSVI has been marginalized.  The FDA’s opposition to MS Venoplasty (or PTA) outside of authorized clinical trials means that insurance companies in the US  no longer will pay for the procedure (which even current researchers have declared without danger.) It is estimated that up to 30,000 MS venoplasties have been performed worldwide but reports on the outcomes are sketchy at best. These varied results seem to cast  doubt on his theory. However, I believe his idea is substantially correct.  

While the stenosed- vein- in -need -of -venoplasty theory is being questioned, the blood reflux theory is gaining ground.  Dr. Zamboni’s insight has provoked a general theory of MS as an obstruction of free flow of  Central Nervous System fluids (blood- arteries and veins-, cerebrospinal fluid, water).  Indeed, veinous blood DOES reflux into the brain to damage it, but not necessarily because the vein is defective or blocked. For example, the problem may not be a problem IN the vein but rather pressure ON the vein by cerebrospinal fluid (or misplaced vertebrae) which obstructs the free flow of the blood.

In my opinion this gives rise to potentially THREE SOLUTIONS to the venous blood reflux phenomena associated with MS.

1) Relieve body tension or 2) Correct skeletal pathology or 3) Open blocked veins with venoplasty.

OPTION 1)  RELIEVE BODY TENSION

This treatment option is the easiest and most accessible for most MSers. My site MS Cure Enigmas.net is meant to address principally the body tension factor which I believe in itself can trigger the veinous blood reflux leading to neurological damage. My approach is more practical than theoretical. I have a problem, I needed to find ways to deal with it. I trust my own experience, research and yes “radical” thinking can serve as the starting point to help others think through their own issues and find appropriate solutions.

 DIET: My first healing beginning 1984 came through the treatment of a Kinesiologist/Nutritionist who determined food intolerances (to glutens, lactose, chemicals etc) and prescribed DETOXIFICATION, OPTIMAL DIET AND NUTRITIONAL SUPPLEMENTS. There have been many testimonies about impressive healing through diet alone. See Roger MacDougall, Dr. Roy Swank, Dr. Terry Wahls (You Tube: TEDx Iowa City “Minding Your Mitochondria”), or on the site This is Ms.com  jimmylegs and for diabetics lyndacarol (leaky gut syndrome aka intestinal permeability) and Leonard ( A new concept for MS).

Some vein experts have said they can’t understand how diet change could possibly stop CCSVI blood refluxes. STRESS is the key word.  Some foods can act as toxins against which the body mounts a tension-inducing defence. Tension alone can cause the blood reflux. Once removed, the body can relax to allow the blood flow unhindered through the CNS. And too optimal nutrition will heal any damaged tissue.

 Unfortunately diet alone is not enough for me. I need other therapies to relax tension and enhance fluid circulation such as acupuncture, acupressure, kinesiology, French osteopathy or massage. (Dr. Wahl does more than diet as well since she electrically stimulates  the meridian on her back which enhances blood/fluid circulation through the CNS). Swimming the crawl is by far the best therapy for me. A severe emotional trauma in 1987 triggered an attack even though I was scrupulously following my diet and now I realize I could have stopped it with blood circulation enhancement. In some circumstances optimal diet alone is insufficient.

 When I read about “Liberation Therapy” summer 2010 (on Daily Kos!) I immediately requested an upper back/neck massage to send blood flow from the head towards the heart and it worked, I could stop an attack. Subsequently I treated myself with TENS Acupressure to open the blood flow, again with success. I’m convinced had I known this 20 years ago I wouldn’t need a cane to walk today.

Emotional stress, ANY stress, can force the blood into the CNS leading to an attack, at least in my case.

 It is strange to me that vein specialists should doubt the power of emotion to impact veinous blood flow when one considers how blood rushes to the sexual organs given the slightest provocation.

 OPTION TWO: CORRECT SKELETAL PATHOLOGY

 The Chiropractor Dr. Michael Flanagan (upright doc) of This is ms.com gives a good basic description of what he believes is happening in MS.

From Thisisms.com Oct 25 2013 CCSVI and CCVBP upright doc
“ Sluggish blood, lymph and CSF circulation, however, leads to the accumulation of metabolic wastes and pathogens that can cause inflammation and immunological reactions. By the time MS signs and symptoms show up it's typically a combination of problems, including orthopedic problems that tend to get overlooked”
“I do agree that venous blood reflux is a probable cause of the supratentorial, periventricular and perivascular location of the classic MS lesions. (Violent venous reflux most likely occurs in whiplash type injuries. The course the venous blood follows from the vertebral veins into the brain is determined by the layout of the cranial vault and dural sinuses)...In my opinion, venoplasty causes a siphon effect that increases drainage of the the brain, which improves blood and CSF flow. It should be a consideration regardless of whether or not the patient has stenosis or faulty valves. (In some cases it may eliminate the need for CSF shunts.”” ) "End quote

Upright Doc believes that up to two thirds of MS patients suffer in fact skeletal problems that impede free flow of CNS fluids. If an accident triggers off MS symptoms, the first thing to consider is damage to the spine, neck and head.   Dr. Damadian estimates it takes up to 11 years for MS to develop after an accident as the body structure deteriorates over time. When I hear that a man who does physically demanding work (or sport) develops “aggressive” MS, the first thing that comes to my mind is trauma to the spine/neck/head.

One will need to undergo diagnostic exams such as x rays and upright MRI’s, and will require Chiropractic adjustments and/or surgery. Therapists can be found under NUCCA (National Upper Cervical Chiropractic Association) or Atlas Orthogonal Chiropractors. Resources: Dr. Michael Flanagan, Dr. Scott Rosa – FONAR upright MRI. Dr. Schelling, Dr. Raymond Damadian

The Downside of Upright Posture by Dr. Michael Flanagan “.Dr. Flanagan's research into the fluid mechanics of the brain - including the unique design of the sutures and base of the human skull - led to the discovery of a clear and unmistakable link between upright posture of Homo sapiens and neurodegenerative diseases seen in aging adults. This "link" is the cervical spine - especially the upper cervical spine and base of the skull - which contains key circulatory routes for blood and cerebrospinal fluid flow entering and exiting the brain. “ (Quote taken from book’s blog)

 OPTION THREE: VENOPLASTY

 Once the above options have proved inadequate, PTA (Percutaneous Transluminal Angioplasty) or Venoplasty might be considered.

 ThisIsMs.com. features a very informative CCSVI thread.  See "Dr. Sclafani answers some questions" (which recently passed one million views.)  It is particularly informative since Dr. Sclafani presents reports of venoplasties he has performed complete with photos.  An excellent example revealing how CCSVI treatment has evolved can be found on page 519 May 21, 2013. Dr. Sclafani performed venography of "both dural sinuses, jugular veins, brachioicephalic veins, azygos vein, left renal vein, and ascending lumbar vein and the inferior vena cava". He has performed over 500 venoplasties.

 I myself have decided against venoplasty. January 2012 I resumed my diet after a long interlude (1992-2012) during which I lost some mobility on my right side. Since I read about the blood reflux theory summer 2010 I have been able to stop or minimize MS attacks. Nonetheless I know I am gradually losing ground. During sleep the CNS fluids probably stagnate and cause some nerve damage. However, I am now 65 and assume I can still walk (with a cane) for at least 15 years (age 80!). I don’t want to take the risk of being worse off than I am now, because I really am just fine except for the relatively minor neurological deficits.

 Let’s take another example. About 15 years ago a badly handicapped French woman told me that while in India she had enjoyed an Ayurvedic massage in which several women worked on her and afterwards she could walk normally again. This made no sense to me at the time, but now I realize she must have CCSVI venous stenosis. Her testimony resembles that of successful balloon angioplasty which opens the venous blood flow in MS patients implying that the massage opened up blood flow to the Central Nervous System. Upon returning to France she lost the benefits of the treatment. Acupuncture helped her, probably by enhancing blood circulation, but nothing like the dramatic improvement in India. She probably has a serious vein stenosis and is in need of angioplasty (or needs daily massages- an unlikely
possibility). Since massage DID OPEN her blood/fluid circulation, I assume her bony structure does not impede it. Young and faced with a rapidly declining condition, I believe she might well have been a good candidate for venoplasty.

 OPTION FOUR:  SURGERY AND VENOPLASTY

 Donnchadh writes on Thisisms.com, under “Atlas Compression of IJV”
Nov 26 2013 “ My "hunch" turned out to be correct-there was a bone spur on the right hand side of the C1 atlas vertebrae which was compressing the IJV…”
Dec 2 2013…”Turns out that the IJV was flattened against a bony knob on the Atlas; in addition it was also thethered to it. The neurosurgeon removed [ground by diamond drill] this and the IJV is now completely free… The next step is to have a venoplasty to break up the stenosis… It is now apparent why all the previous venoplasty attempts had failed.”

Donnchadh was able to find a highly skilled OPENMINDED Neurosurgeon to remove bone spurs which were obstructing venous blood flow.

Obviously one will need a very skilled Surgeon to treat such a condition. Massage and Diet won’t work nor will Venoplasty alone.  His treating Neurosurgeon did not want to be identified given this unorthodox approach to treating MS.

 Dr. Zamboni is continuing research on the multiple aspects of Neurodegenerative disease. Again on Thisisms.com see the thread “Dr. Zamboni’s SPECT & PECT research”.

With the venous blood reflux idea, Dr. Zamboni has let the cat out of the bag. There is an explosion of research into all possible ramifications suggested by his idea. Neurologists who are the first to see patients troubled by symptoms of paralysis should help direct them to appropriate therapists. It appears that will take time. For now patients must seek solutions in light of their own personal experience and research. I hope this synopsis will be of help.

Previously published on MS Cure Enigmas.net and Thisisms.com

Discuss

Recently I responded as follows to a series of entries on Thisisms.com by MS-UK  intended to discredit the CCSVI theory for MS.

“We can now see that symptoms of paralysis require a thorough examination of the structure surrounding the central nervous system – veins, arteries, cerebrospinal fluid, bones, muscles ligaments. Only then can a diagnosis and appropriate treatment be proposed. For some reason Neurologists seem unwilling to do  this. And the Big Pharma/Neurology lobby with the assistance of the FDA and national MS Societies (MS-UK for instance) are doing all in their power to impede development of CCSVI diagnosis and treatment for MS.

Unfortunately, MS CCSVI is too easily discredited by the insistence of Angiologues to monopolize CCSVI treatment through Angioplasty. A “Skeletal” MS implies that pressure or restriction ON the vein rather than stenosis IN the vein is the problem and for this Angioplasty will prove fruitless, if not deleterious. It is touching of  MS-UK to report multiple “scientific” studies discounting CCSVI MS on the Thisisms.com website. “Touching” but unhelpful. What would be really helpful is a thorough survey of the approximately 30,000 Angioplasties performed thus far for MS. But of course this will never happen because CCSVI treatment for MS has been driven underground, the techniques and competences are varied and follow-up care sketchy (thanks to interest groups like MS-UK).”

Word is getting out. As an illustration, note the following post by Wendy Hess on CCSVI Locator October 25, 2013

"All heavy metals can cause lesions on an MRI if they accumulate in a sensitive area as is the nervous system ( and lesions lead to an MS diagnosis). Heavy metals can come from toxic exposure OR from improperly digested nutrients, like Iron,  that don't exit the body in normal excretion process. The reason they get to be a problem in the brain/spinal column is if the CSF (Cerbral Spinal Fluid) flow is disturbed , impaired, or in back flow where the body cannot flush them out normally ; they accumulate and block the -nutrients in/ waste products out -cycles .  This is explains why spinal taps can confirm diagnosis- high T cell counts go to the aid of the nervous system, but cannot really help there because it is a physical problem that needs addressing!
How does this happen? Many skeletal disruptions from whiplash, accidents, the birth process, or skeletal genetics can impede CSF flow. Resulting lesions can sometimes, but not always, take years to do damage and be realized in MS type symptoms. Heavy metals can accumulate and become deposited to block blood flow. One day, the answer to the MS riddle will be uniformly recognized as the result of obstruction from a COMBINATION of CSF and Vascular flow.  That's the piece of the puzzle Zamboni needs to recognize,too. If heavy metals (Iron included) cannot leave the central nervous system as the body has intended, and they accumulate to block nerve transmission, eventually lesions and subsequent possible disability are expressed. It begins in obstruction of the CSF flow. xxx"

On Thisisms.com a Mother of a 10 year old boy who developed “MS” symptoms after an accident reported that Ayurvedic treatment helped him. (She refused MS drug treatment for him.) The following was my response.
““About 15 years ago a badly handicapped French woman told me that while in India she had enjoyed an Ayurvedic massage in which several women worked on her and afterwards she could walk normally again. This made no sense to me at the time, but now I realize she must have CCSVI venous stenosis. Her testimony resembles that of successful balloon angioplasty which opens the venous blood flow in MS patients implying that the massage opened up blood flow to the Central Nervous System. Upon returning to France she lost the benefits of the treatment. Acupuncture helped her, probably by enhancing blood circulation, but nothing like the dramatic improvement in India. She probably has a serious vein stenosis and is in need of angioplasty (or needs daily massages- an unlikely possibility) OR needs treatment for some kind of skeletal obstruction of Central Nervous System blood/cerebrospinal fluid flow.””

Now tell me, MS-UK, if a 10 year old (or 7 year old) child who has suffered a head/neck/spine injury comes in with “MS” like symptoms, are you really going to put him on Chemotherapy or DMDs (Disease Modifying Drugs)? Wouldn’t it be better to see how the body structure impacts Central Nervous System fluid dynamics, (Blood/Cerebrospinal Fluid flow) and correct the physical injury?  

I wish the Big Pharma/Neurology lobby, their MS Societies, and the FDA would butt out of my business.

Previously published on MS Cure Enigmas.net, Thisisms.com and CCSVI locator

Discuss

Thu Jun 20, 2013 at 06:29 AM PDT

MS: The Blood Reflux Solution

by verokos

In Multiple Sclerosis blood vessels "deformed" by childhood stress cannot accommodate the blood flow. I believe the auto-immune activity is secondary to the true cause of MS, blood refluxes which injure the brain and spinal cord. The origin of the refluxes may be structural 1) CCSVI stenosis (as proposed by Professor Zamboni) and/or cerebrospinal fluid pressure or 2) it may be a stress reaction to toxicity.

Let's re-think first causes. And then move on to real solutions.

Epidemiological studies on MS show that those who grow up close to the equator have less chance to develop MS than those living in latitudes closer to the poles. It is the latitude where one lives before age 15 that counts, not where one lives subsequently. It is therefore thought that the lack of sunlight – hence Vit D – is a factor in susceptibility to MS. Vit D is recommended for M.S. patients.

But perhaps a better explanation of the geographical factor is Winter Cold.

The shoulders and neck typically tense up under stress thus restricting
circulation to and from the brain. Cold weather stiffens the muscles. Winters
bring the body aches of colds and flus. Illness itself (e.g. Clamydia
Pneumoniae, Mononucleosis, Lyme disease, Guillaume Barré) may damage the cell
walls and valves of the vascular system.

It is also said that MS patients tend to be high powered, ambitious people. Tensed up in other words. MS cases cluster in northern Europe and North Amerca. Let’s say growing up in a culturally demanding family environment (or in any case stressful) while subject to Cold weather and frequent colds and flus actually compresses and deforms the circulatory system in the child’s developing body. By the time he/she reaches age 15, the stunted blood vessels can no longer accommodate the blood flow. MS first appears in adolescents, seldom in children. Let’s compare the deformity to ancient Chinese footbinding where the tiny child’s foot cannot support the adult
woman.

Food intolerances, especially to wheat and dairy products, can further compound the stress. The Neolithic agricultural revolution dates back not much more than 10,000 years, a blink of the eye in terms of biological evolution. Bowel problems are a sure sign of food “stress”. The significant increase in MS cases in Japan over the past 30 years points to food toxicity as root cause.

And the disadvantage of being female. Between puberty and menopause at least two-thirds of MS patients are women. This implies that gynecological problems (including menstrual cramps and birth control pills) both stress and require "poisoning" treatment which impact negatively the vascular system. Perhaps monthly menstrual cramps in a growing girl actually "stunt" the circulatory system. Perhaps female hormones affect the vascular system negatively. Factors of Stress.

Maybe the real story behind MS is the damage to the blood vessels caused by growing up female in a 1) driven, ambitious or otherwise stressful family environment compounded by 2) a climate of Cold winters which contribute to 3) frequent viral illnesses compounded by 4) an intolerance to the wheat and lactose of a Neolithic diet.

In any case, I believe the Italian Angiologue Professor Zamboni is right, it is
primarily a blood reflux which injures the brain in M.S. After having successfully overseen angioplasty treatment for his wife in 2006 (who had developed MS in 1995) he began research on his theory that MS is essentially a vascular disorder  leading to neurological injuries.  He theorized that reflux of veinous blood into the brain and spinal cord injures the tissue. He believes as well that it may be the iron in the blood which causes the much remarked demyelinating inflammation. This would seem to explain the lesions clustered around the veinous blood vessels in autopsies of MS victims observed by the great French Neurologist Dr. Jean Martin Charcot who first identified MS in 1868.

Professor Zamboni first published his work on the internet December 5, 2008. I  read about it the summer of 2010 on Daily Kos (thanks to my San Francisco Kinesiologist Carolyn Parker - see August 25, 2010 "There was good medical news yesterday. So now what?" by Joel Spinhirne.) In his paper “CCSVI – A New paradigm and therapy for multiple sclerosis” posted on July 25, 2010, Salvatore J.A. Sclafani, MD refers
to Dr. Zamboni’s work by writing “Chronic cerebrospinal venous insufficiency
(CCSVI) is a hemodynamic condition in which cerebrospinal drainage is altered
and inhibited. Outflow obstructions of the internal jugular veins (IJVs),
vertebral veins, and/or azygos vein( AZV) and their tributaries result in stasis
or reflux of these outflow veins and redirection of flow through vicarious
circuits…The majority of patients with CCSVI appear to have multiple sclerosis
(MS) and the majority of patients with MS have CCSVI.” (my emphasis).

Dr. Zamboni’s "liberation procedure" involves expanding the veins
exhibiting stenosis through angioplasty. While results have been promising, questions persist. Not all people exhibiting stenosis of the veins have MS, not all MS patients have stenosis (or CCSVI).  The rate of Jugular vein collapse after angioplasty is high and the use of stents is controversial. Some patients enjoy spectacular recoveries after angioplasty, others see little or no improvement. These varied results seem to cast  doubt on his theory. However, I believe his idea is substantially correct.   MS cases are as varied as the veins involved, the areas of the brain or spinal cord drained by these veins, their structural condition and the general metabolism of the patient.  

Another well-known MS therapy long popular in alternative medicine circles imposes a strict gluten free diet.  Under the care of a San Francisco nutritionist-kinesiologist as of February 1984, I recovered “permanent” nerve damage, my recovery being so impressive that my Neurologist declared I could not possibly have had MS. All was well until 1987 when I decided to leave my husband. The stress triggered a sore throat followed by an MS attack.  What happened? The answer is straightforward. The stress was so intense that it overwhelmed the positive effect of the diet.  

These 2 approaches  -angioplasty and diet/energy therapy - would
seem to be unrelated, but they converge.  I believe some MS patients have
structural deformities in their veins that, once corrected, can effectively  cure the disease. Others (perhaps myself) do not have such a structural deformity, but are sensitive to foods or allergies to such an extent that under stress the veins compress forcing the veinous blood to back-up. Or perhaps my veins are somewhat "stunted" so that I am excessively sensitive to stress of any kind. One can define this as primarily a BODY TENSION problem caused by toxicity. The former patient may be more severely handicapped until intervention brings the cure.  In my case the handicap has been less severe, but the solution requires more personal discipline.  

In any case Dr. Zamboni’s insight has allowed me to understand my symptoms, the history of my disease, and the direction I need to take to heal. This insight poses two distinct problems.  First, the reflux of veinous blood into the central nervous system must be halted (at best) or minimized.  Second, the injured tissue must be healed.

Summer 2010 I too felt liberated when  I read about the Dr. Zamboni’s  theory, now dubbed “Liberation Therapy”.  Eureka! Of course!  I now understood why an acute MS symptom could disappear after only an hour’s acupuncture treatment since it must open the blood flow and stop the reflux. This also explains why a severely handicapped Frenchwoman I spoke with experienced a miraculous recovery after an Ayurvedic massage in India. This made no sense to me. But now I can see that the massage must have  relaxed the veins to  open up her blood circulation.

If I had heard about Dr. Zamboni’s  theory 20 years ago  I am convinced I wouldn’t need a cane to walk  today. I remember when I began to limp.  May 1993 I was on vacation in Morocco with a companion who was particularly rude, I was very upset and began to cry. I can see nw that the blood must have been surging up into my brain and/or spinal cord. In San Francisco I would have rushed immediately to get an acupuncture treatment to put a stop to it.  I now realize I didn’t even need to do that, all I needed was an upper back and neck massage.  It seems incredible that a gesture so simple and ordinary could stop a process so devastating as an MS attack leading to paralysis. But at least for me, that’s the truth. Now at first sign of MS symptoms I ask someone to massage my upper back and neck visualizing bringing the blood down towards the heart. And it works, the next day I’m fine, no traces of an MS relapse. Recently upset and crying, I could feel my body freeze up, my nervous system began to burn and falter, I had difficulty emptying my bladder, I could imagine all the “plumbing” freeze up (urine, blood flow, who knows what else.) Again I asked for a massage which brought the process under control.

If I am alone I can use electrical stimulation pads (TENS device) on acupressure points to the same effect.  On learning of Professor Zamboni’s “blood reflux” theory  I began to use Gall Bladder 34 points outside the knees and the Spleen 6 points inside the ankle, my reasoning being that the Yang Gall Bladder meridian is indicated in MS
treatment (according to Dr. Lai, my San Francisco Acupuncture Doctor) and Spleen 6 can serve as a good Yin complement.  However,  I recently discovered that the upper back points just below and slightly outside the neck (GB21) are sufficient by themselves to stop the blood reflux and subsequently learned that these points  are also on the Gall Bladder meridian - the same meridian indicated to treat the migraine/tension headaches I had known before developing MS. Every morning now, after waking up groggy and depressed (blood stasis leading from the brain?) I use electrical stimulation pads on these points to “clear up” my head, as though the brain lacked oxygen.  

As for the question of angioplasty, until this year the only available treatment in France was experimental. October 2010 I did succeed in obtaining an Echodoppler of the neck to find that my Interior Jugular Veins (IJV) and Vertabral Veins are normal. The following January I received a confirming diagnosis . I was told by another Angiologue that if the Jugular veins are normal the Azygos vein will likely be normal as well. Being then unavailable in France, I made inquiries from a clinic in Brussels which diagnoses and treats CCSVI.  I delayed further inquiry and treatment which was probably just as well because treatment has evolved since then. Prior to 2010 angioplasty without the use of Intra Venous Ultra Sound (IVUS) sometimes resulted in injury to the veins and even blockage. Its use now has drastically reduced incidence of thrombosis. I have learned that treatment is now available in France from a Professor in Bordeaux. I remain ambivalent. A recent review of my medical records and personal journals suggest my first major attack struck the upper spinal cord, and a shiatsu massage stopped it. (See Pallis/Shiatsu Blog entry). The fact that an upper back and neck massage appears to open blood flow from the head implies that veins in my neck are narrowed or collapsing even if the Echodoppler exam found them normal. More likely the valves malfunction. Perhaps I am someone whose veins constrict without stenosis or that they are simply too narrow to accommodate normal blood flow. Perhaps the venous blood which "attacked" the spinal cord in 1980 cannot be treated with angioplasty. I'm glad I didn't act precipitously. (It must be said that an Ultrasound does not suffice to detect venous problems. One needs a thorough examination which is invasive - the angioplasty itself. This I've decided against for the moment.)

Recent observations about cranial fluid dynamics, the possibility that
cerebrospinal fluid build-up can "pressure" venous blood circulation leading to a blood reflux implies that attention should be paid to all aspects of brain physiology. In fact, before considering angioplasty, I believe one should consult specialists in skeletal adjustment - chiropractors, osteopaths, dentists - whose manipulations might release blocked blood/fluid circulation from the head and spinal cord. This is especially important if the MS develops after an accident. In such cases the problem does not reside IN the vein but pressure ON the vein.

Angioplasty thus becomes one of several means to stop the BLOOD REFLUX.

That problem solved one can turn to repairing the damaged nervous system.

"Scientists Find 'Cure' for MS By Turning Common Skin Cells Into Working Brain Cells" is the title of an article in Nature Biotechnology by Christine Hsu describing research at Case Western Research School of Medicine. Reconstitution of the myelin sheath damaged by MS attacks has long been the goal of scientists. Current stem cell therapy hopes to do the same by extracting bone marrow from an MS patient, growing his cells in a culture and then injecting these cells into the patient. However, once again, repairing the myelin sheath is only half the battle. One must stop (or minimize) the blood reflux into the central nervous system. Otherwise the repair will be under constant assault and perhaps progressively less effective.

Preventing the blood reflux is therefore the key to any "Cure" for Multiple
Sclerosis. That's CCSVI treatment in a nutshell.

Ah, but I can't ignore the impression that after this past winter's flu. I've been dragging along, unable to fully recover. This has happened before where I feel like something is "eating" at me. Here we come to another angle currently being studied in France, England and Switzerland which can't be overlooked - the role of the Epstein-Barr Virus - EBV (Mononucleosis which I had at the age of 9 being an example.) My
rough understanding of these studies is that remnants of the Epstein Barr Virus (among others) imbedded themselves in human genes over millions of years of evolution. If an individual with this genetic inheritance falls ill with an Epstein Barre virus illness, the immune system reaction to the virus ends up attacking the inherited DNA - hence the "self". Unlike current MS drugs designed to modulate or suppress the immune system, the proposed medication is designed to shut down the MS associated retrovirus and therefore the auto-immune demyelinating cascade which occurs when the latent Epstein-Barr virus periodically re-activates.

The recent flu left me weakened. Has the latent mononucleosis virus revived and is my immune system reacting against an inherited Human Endogenous Retrovirus (HERV) imbedded in the genes?

Conclusion: I must deal with the blood reflux on a daily basis. And not get sick.

That last imperative  returns me to the question of nutrition. First diagnosed with M.S. in 1980 while living in San Francisco, I turned almost immediately to acupuncture treatments which stopped or minimized the “attacks”.   However,  after going slowly downhill for 3 plus years, my real healing breakthrough came only in 1984 through diet modification and “energy balancing” therapy prescribed by a pioneering San Francisco Kinesiologist, Jimmy Scott, PhD.  Now a generally recognized treatment for MS in alternative medicine circles, mine was an individually prescribed "paleo" diet  No glutens such as wheat and no lactose.  My diet included vegetables ( lots of greens),  fruit, no meat, some poultry, raw fish, eggs,  papaya once a week, nuts and seeds, grains (rice, buckwheat, millet and corn are O.K. for me) and 12 cups a week of raw vegetable juice.  Forbidden items include glutens (such as wheat), lactose, alcohol and chemical food additives. He also prescribed a full round of dietary supplements which I continue to take to this day.  Coupled with Dr. Scott’s monthly “energy” treatments derived from Chinese acupuncture theory, it took a full year to detoxify my poisoned metabolism, to regulate my intestines and to heal “permanent” nerve damage.  As noted above, I suffered a MS relapse in 1987 when under severe emotional stress, but my legs were not affected and I could still walk miles in 1988. When I moved to France in 1992 I went off the diet. It took me a year to fall apart and, being without my acupuncture Doctor, I didn't recover well from the 1993 "attack". I began to limp and by 1997 needed a cane to walk. January 2012 I resumed the diet.

I believe proper diet serves 4 purposes; 1) to heal and reinforce the vascular system at the cellular level  - especially critical for Diabetic MS, 2) to prevent stress on the vascular system i.e. the blood reflux, 3) to nourish the brain cells, especially important if there has been some brain damage - the current Myelin reconstitution "cure" and 4) to re-inforce the immune system in order to de-activate a latent Virus or bacteria.  

Analysing my own situation, while I am able to control an outright M.S.“attack”, any nerve symptoms which manifest imply that  blood reflux is injuring the brain/spinal cord.  Mornings I have the impression blood is stagnating in my brain which again implies some injury.  Any anxiety triggers “burning” in my legs.  I can’t always
avoid stressful situations, or viral illnesses which cause the body to “seize” up.  Therefore I need to use nutritional therapy to both prevent stress on the vascular system while healing a nervous system under constant assault.

And, yes, I recognize that when a latent virus re-activates some slow moving nerve damage takes place. I suspect the blood reflux "attacks" are more damaging than an ongoing viral "seige". Since 1989 I have used Homeopathy to prevent viral illnesses and to reinforce my basic vitality. Optimal nutrition and supplements become all the more critical in keeping this viral (or infectious) factor at bay.

I believe MS patients exhibit these 2 basic factors to varying degrees - the blood reflux and the viral immune system assault. (Perhaps bacterial as well e.g. Chlamydia Pneumoniae) And to complicate things further, the origins of the blood reflux vary - body tension, skeletal, or vein stenosis. A complicated picture with no one-size-fits-all solution. While scientists thrash this out, I believe it is up to me to find practical solutions to take care of myself.

AND I BELIEVE IT IRRESPONSIBLE FOR NEUROLOGISTS TO IGNORE THE BLOOD REFLUX FACTOR IN MULTIPLE SCLEROSIS.

I describe My Personal Treatment on the site MS Cure Enigmas.net under the Cure
or Control section. My Diet Under the Paleo-Macro Diet section. Also important sources, my blog posts "Cure or Control Review" as well as "After Diagnosis".

For further information check out the site ThisIsMs.com. Under the CCSVI thread 1) for Angioplasty see "Dr. Sclafani answers some questions" which is particularly informative since Dr. Sclafani presents reports of angioplasties he has performed complete with photos. An excellent example revealing how CCSVI treatment has evolved can be found on page 519 May 21, 2013. Dr. Sclafani performed venography of "both dural sinuses, jugular veins, brachioicephalic veins, azygos vein, left rebal vein, and ascending lumbar vein and the inferior vena cava". 2) Skeletal issues are discussed under "CCSVI and CCSVBP" a) upright doc (Dr. Michael Flanagan) and b) "When CCSVI fails try AO
and/or the Dentist" by Rosegirl. (I am suggesting these sites for information only - a starting point in your own research.)

Even though Dr. Zamboni's insight has come a bit late for me, it has given me a new lease on life. I used to live in constant fear of a debilitating relapse. Now I know what to do to head off a breakdown. Having embarked once again on my diet I feel better and hopeful of improvement in the future. I know that anything which improves blood/brain fluid circulation (swimming, acupuncture, acupressure, massage, kinesiology osteopathic, chiropractic, any energy therapy) will make me feel better and prevent a relapse. And I need to be ever vigilant in avoiding illnesses which might trigger off a latent virus.

I hope other Multiple Sclerosis patients will reflect on their own history and that my experience will be of use in their Healing.

Previously published on MS Cure Enigmas.net and Thisisms.com

Discuss

Mon Feb 18, 2013 at 01:02 PM PST

MS: Cure and Control Revolt

by verokos

An article in Daily Kos dated August 25, 2010 – “There was good medical news yesterday, so now what?”  By Joel Spinhirne - changed my life by introducing the idea that MS is a  blood  circulation disorder froms the brain/spinal cord. Of course! I asked my husband to massage my neck forcing the blood down towards the heart to stop an incipient “relapse”. A month later I used a TENS self acupressure treatment one evening as all the symptoms of an MS attack overwhelmed me. No great reaction at the moment, but by the next morning all symptoms had disappeared. Stopped short! If I had known this 20 years ago I wouldn’t need a cane to walk today.

The main problem now is political, that is to say the power of the
big Pharma and Neurology lobby to block CCSVI research and other treatments for MS
patients.  Maybe Angioplasty (once called Liberation Therapy) isn’t the answer for someone who needs spinal/dental adjustments or someone who needs to remove toxins from his body or simply requires proper nourishment. My purpose here on Daily Kos will be to help people think things through and to suggest alternative therapies which I’ve found effective. And to encourage people to get angioplasty if they really need it.  (Sorry, Doctor, non medical therapists – naturopaths, acupuncturists, chiropractors, kinesiologists – may provide the best healing options for many MS patients.)

Continue Reading

Wed Feb 06, 2013 at 08:11 AM PST

MS: Five CCSVI Types

by verokos

I believe Dr. Zamboni has discovered the problem – venous blood reflux or CCSVI – but not the sole solution. Detoxification and nutritional therapy coupled with circulation therapies and/or skeletal adjustments may suffice to cure or control MS without taking the risk of angioplasty.
I've concluded there are 5 basic MS types, all of which leading to a reflux of venous blood into the Central Nervous System.
1) CONGENITAL vein malformations. 2) DEVELOPMENTAL vein malformations. 3) AGING vein malformations 4) SKELETAL – Cerebrospinal fluid pressure. 5) TOXIC MS.

As for the current categories of Relapse/Remit and the various Progressive MS's, I don't believe these properly describe the problem and certainly don't point to a solution. The various immunosuppressive drugs developed since 1990 are used only for the Relapse/Remit phase, so once you've hit the Progressive stage, you might as well listen to alternative ideas.
CONGENITAL: This idea is favoured by Phlebologists and Dr. Sclafani. However, it doesn’t account for the epidemiological variations in geography, culture or gender. It certainly can’t explain the dramatic increase in Japanese MS cases over the past 30 years. However, obviously it can be one factor.
DEVELOPMENTAL: My beginning hypothesis was that stress (of many potential origins) damages the veins in the child's developing body so that once adult the veins can no longer accommodate the blood flow. Defects in the circulatory system impede if not outright block blood flow leading from the brain and spinal cord leading to MS "attacks" and subsequent paralysis. It is for this reason that MS first generally manifests during or after adolescence. Dr. Zamboni himself observed deformities in the veins in the back and neck of MS patients. These areas correspond to Acupuncture meridians which control blood/fluid circulation.
AGING MS: The third type develops with age. There is no reason why veins shouldn't harden and malfunction as a part of the aging process. When the valves in veins draining the central nervous system malfunction, blood backs up to injure the myelin sheath.

THE ANGIOPLASTY CURE has been suggested for these types of MS (Congenital, Developmental, Aging) characterized by varied vein malformations - stenosed (narrowed), twisted, exhibiting stuck or deformed valves, or just plain missing. The Italian phlebologist Dr. Zamboni launched the theory he named CCSVI. The treatment consists of threading a catheter through the affected vein and opening it with a “balloon” . Initially the Internal Jugular Veins, the Vertebral Veins and the Chest Azygos vein were treated. Other veins leading from the spinal cord are now treated as well. Development of the Intravenous Ultrasound has allowed Interventional Radiologists to see what is going on inside the vein, determine the appropriate size of the balloon to open the stenosed vein without scarring, and avoid various complications. Stents have been inserted into veins which collapsed after being opened. (Dr. Sclafani believes the early 50% failure rate in the Jugular vein angioplasty occurred because the balloons were too small to open the veins sufficiently.) However, if the balloon is too large it risks scarring the vein lining tissue (endothelium) which might lead to thrombosis – the vein being closed off entirely. There have been cases where, after the initial “liberation”, the vein closes off again and each subsequent intervention leads to more scarring and tissue damage. Some have experienced little if any improvement. (Not all the veins leading from the spinal cord are treated.) Some have found themselves in a worse condition after the angioplasty than before. (One woman reported that her veins shriveled up into useless dried out structures through which no blood could flow.)  Presumably with experience and the development of new techniques and material the few early tragedies which have occurred can be avoided. (Already use of the IntravenousUltrasound IVUS has decreased the risk factor dramatically.)
Some have reported dramatic recoveries, often with stents inserted, at least 3 years after Angioplasty. They have been CURED. (I don’t know the longest post operative success story. Treatments began sometime in 2009.) The lives of some have been so transformed that they now wonder if they should declare themselves free of MS and therefore ineligible for disability benefits.

Nonetheless, while some have been apparently cured, the risks of angioplasty are real. Before rushing into the operating theater, consider first treatment of Types 4) SKELETAL and 5) TOXIC MS.

SKELETAL MS: A misaligned skeletal, bone or dental structure can actually restrict the free flow of cerebrospinal fluid which in turn can compress or impede venous blood circulation. Structural problems can be either congenital or developmental in origin (e.g. accidents.) Recent scientific studies have focused on the interdependent dynamic of brain "fluids", the blood and the cerebrospinal fluid (CBF) which bathes the Central Nervous System. Excess cerebrospinal fluid can actually "compress" or limit blood circulation, hence the interest of Chiropractors in adjusting the Atlas bone to assure proper CBF circulation. If the problem is SKELETAL, angioplasty would not be appropriate. In this case it is not a problem INSIDE the vein but OUTSIDE. Chiropractic, Osteopathic or Dental adjustment may suffice to release the brain fluids flow leading to CURE or CONTROL.

FINALLY THERE IS TOXIC MS.
I include in this category not only known toxins such as mercury in dental amalgams, aspartame, glutens and various food intolerances, but myriad microbes/viruses such as mononucleosis, epstein barr, and chlamydia pneumoniae as well as various metabolic disorders such as toxic "gut" and diabetes. OK that's a big category. One might say I am being simplistic. BUT MAYBE IT IS JUST THAT SIMPLE. Whatever stresses the body in those individuals with a compromised vascular system may trigger the blood reflux into the CNS. Illness in childhood may damage the vascular system, stress including toxic stress may trigger the reflux. Toxicity itself may damage the veins. All these factors may stress the vascular system leading to a venous blood reflux. Detoxification, intestinal cleansing, and appropriate nutrition will reduce pressure on the vascular system as well as nurture the brain and heal nerve damage.
CURE: Some MS patients recover through diet cleansing and nutritional therapy alone. Some may have a "temporary" stress reaction to a toxic substance such as aspartame (or mercury in dental almagam fillings.) The reaction is "temporary" in the sense that once the toxin is removed, the MS symptoms disappear. I have even heard that removing glutens from the diet is sufficient to heal.
CONTROL: Dr. Terry Wahls (see You Tube Minding Your Mitochondria) presents another excellent example. She began her treatment by de-toxifying from the MS drugs which were poisoning her and then optimized her nutrition. Her recovery implies that her veins were not actually blocked, but tensed up enough to cause a reflux. Also, she stimulated her blood circulation by electrical stimulation of the bands of muscles on her back, in other words, the bladder meridian. Optimal Diet/Supplements serve three purposes. 1) to prevent stress on the vascular system which might lead to blood reflux 2) to heal damaged tissue in the veins and 3)to heal damaged tissue in the central nervous system.

In addition to nutritional therapy, most MS patients probably will require treatment to enhance blood circulation to prevent blood refluxes – massage, ayervedic massage, acupuncture, self acupressure, osteopathy, chiropractic, swimming.

Again, to make a long story short, Dr. Zamboni has discovered the problem – venous blood reflux or CCSVI – but not the sole solution. Detoxification and nutritional therapy coupled with circulation therapies and/or skeletal adjustments may suffice without taking the risk of angioplasty.

MS Cure Enigmas.net

Discuss

Fri Feb 01, 2013 at 08:18 AM PST

MS: After Diagnosis

by verokos

Introduction:
A  Dailykos article in July 2010 on “Liberation Therapy” for Multiple Sclerosis changed my life by introducing the idea that MS is in fact a blood circulation disorder which injures the Central Nervous System. I immediately asked my husband to give me a neck massage forcing the venous blood down towards the heart in order to stop a blood reflux MS “attack”. I began to give myself daily TENS acupressure treatments to overcome the morning blood stagnation leading from the brain and stop attacks when necessary. And I began to reflect on my 30 year MS history. I am convinced that had I known about this theory 20 years ago I wouldn’t need a cane to walk today. But at least now I can slow the disease progression and perhaps regain lost function. The very idea has indeed liberated me.
However, I have decided against Angioplasty which is the treatment recommended for CCSVI  by the Italian Phlebologist Dr. Zamboni, the theory’s originator.  Based on his insight, I have identified five MS types and their corresponding therapies. Before choosing Angioplasty or Immunosuppressive drugs, I believe one can consider other effective treatments. Angioplasty may indeed be the key to “Liberation”, but one should be fully informed of the risks in relation to the likely benefits. I hope this first article titled “MS: After Diagnosis” can launch a discussion.

Continue Reading
You can add a private note to this diary when hotlisting it:
Are you sure you want to remove this diary from your hotlist?
Are you sure you want to remove your recommendation? You can only recommend a diary once, so you will not be able to re-recommend it afterwards.

RSS

Subscribe or Donate to support Daily Kos.

Click here for the mobile view of the site