I thought that I would provide an update as it is a little less than two weeks to the day of my disability trial. I will see if I qualify for social security disability on the 13th of April. In the last two months I have been in the hospital for about just under half the time, for both kidney stone issues and crohn’s disease crud.
The last time in I originally went in for what was thought was chron's disease problems but turned out to be for kidney stone issues. I was then re-admitted two weeks later for another week for kidney stones issues. Just this week I had my stent removed for my stones and I hope the pain is gone as well.
My major issue now are the mounting medical bills from the recent times in the hospital visits, But G-d willing I will get disability in 2 weeks and life will finally get better. I have been given "home health aid" as they feel I would benefit from PT, OT and a home health nurse but they want me to go on-site for PT and OT which means I have to figure out how to do this, Since I cannot drive there is a debate as to if I will get it on or at home.
Until the decision though I am squeaking by with the love, support, and prayers of friends and family. I greatly appreciate everyone's kindness and would not be able to have survived as long as I have without you.
So...there you have it, the health care system in the US is not set up for the individual, I think. But hopefully I will get disability. If I do not I do not even want to begin to think what my next steps are.
But again I am taking things a day at a time and I realize things could be a lot worse. I have family and friends who have been helping me cope, and although often depression gets the best of me I do know I just have to log on here and emerse myself in Kos and I can forget about my problems for a little bit, and for that I can never repay each and everyone of you.
Thank you for everyone who has sent prayers, donations to my gofundme site or my paypal address, or written a kind note, shared an email or a video. Your kindness is most welcome.