Received from KP’s principal investigator of the KP Southern California Research on Genes, Environment and Health study, Department of Research & Evaluation, this form-letter dated May 23, 2019:
Dear [member] — or Legal Authorized Representative {LAR}:
...You/LAR agreed to participate in [this study] and signed a consent form on 07/01/2014….
On September 18, 2017, I became aware that your informed consent form was destroyed before we completed our research. Please accept our most sincere apology.
There was no breach of your private health information …
As soon as we discovered that your informed consent{sic} was destroyed, we placed a hold on our study until we hear from you…
If you are still interested in participating, please sign and return the informed consent{sic} in the self-addressed envelope enclosed.
If we do not hear from you within six months and do not receive your signed consent form, we will not use any speciments gathered from you in the past for research purposes.
Please call … if you have additional questions.
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“As soon as” —September 2017— they put the whole study on hold until they hear from me in May 2019?
My informed consent has been destroyed! Alas, how can I regain it in order to give it again?
These must be the additional questions ... although, as Alice wonders,”How can I have more tea if I haven’t had any yet?”
Am KP hostage since 1988. I sure am better informed about KP every time they pull yet another weird stunt. Oh, healthcare for the millions … yeah...