I have been feeling a strange feeling like I am going backwards in time. During Covid I grew my hair long. I recently cut it short. For like 8 years, I was captured by a little baby with the blackest eye I had ever seen. And also, when I changed her diaper, I saw the longest leg and a big thigh! I thought to my self, “What the Hell!”
So, ok her dad has some Native American so there’s that. Then we find out she has Cystic Fibrosis. So we are immediately in panic mode. Baby projectile vomits, has to drink extra thick formula because beast milk not rich enough plus finally got Pertzye to break down fats. Since then it has been a hands on deck for 8 years. Watch the scale, listen for chest rattling.
She is doing pretty good fighting an infection right now.
Doing that today as she is fighting an infection. So yeah our money goes to the CF foundation. Because of the CF foundation CF Foundation. They have raise money and give it to drug companies that develop these precision medications. We fight for TOMORROW. We don’t know how her health will be tomorrow so we try to save her lungs from damage today. She is on Trikafta now and it is kinda “fixing” the problem. When Obama was president he supported precision medications.
But all that said, I am not asking for my little child, my reason to be.
The Ukrainian children need shelter and help
ShelterBox USA
Airlink, inc
All the little kids of special needs of all kinds.